Top Tweets for #GGHealthEquity
Here is our top 10 things we learned at the 2022 RARE Health Equity Summit! Let us know below which quote is your favorite 👇
#GGHealthEquity #GGHealthEquitySummit #2022HES

At #GGHealthEquity, we had this amazing quote said by Jevon Gibson during the welcome remarks, where he highlighted the power of listening and connecting with others in the rare disease space to find solutions to health inequities! #CareAboutRare #RareDisease #2022HES

During the 2022 Health Equity Summit, we heard this amazing quote from Ebony Madden! Access is so important, as well as trials and testing, to better understand diseases and how they affect different ethnicities and races #2022HES #GGHealthEquity

At our #GGHealthEquity we hosted Congressman G.K. Butterfield as he gave remarks about how to bring about change and assist with inequities in the healthcare field #2022HES #CareAboutRare

Another great quote from #GGHealthEquity. We are so grateful for the amazing panel speakers during all of our sessions and their insights on how to bring growth and change in the healthcare field! #CareAboutRare #2022HES

Our goal is to ensure everyone affected by #TBDs has access to care, community, & resources. Health equity, inclusion, & accessibility are key components.
Check out our Scientific Meeting session on Diversity, Health Equity, & Inclusion in TBDs and our #GGHealthEquity poster.

In the "Experience Matters" session at #GGHealthEquity, Umar Rehman highlighted the importance of rare disease education to help with disparities in the health care system! #2022HES

“People don't care how much you know until they know how much you care.” Thrilled to represent the Rare Genome Project @globalgenes Rare Health Equity Summit in Atlanta! #GGHealthEquity
We are excited to have 3 of the 7 filmmakers in person for a panel discussion about the impact of their film and sharing their story. #2022HES #GGHealthEquity #CareAboutRare #HealthEquityInRare #RAREDiease #RDDC #GlobalGenes #Atlanta #RARElyToldStories


"...This is not an easy conversation for policyholders or healthcare professionals, but it needs to be had because people should not be discounted for situations beyond their control." @MiaKeeys, Director of Federal Affairs, Hologic, Inc. (2/2)
#2022HES #GGHealthEquity
"When you center a patient's healthcare experience around equity, focusing on their specific needs, the diagnostic and treatment process will move forward..." @MiaKeeys, Director of Federal Affairs, Hologic, Inc. (1/2)
#2022HES #GGHealthEquity #raredisease @GlobalGenes
Panelists will delve into the gaps that must be addressed to support greater access to treatment and clinical trials. #2022HES #GGHealthEquity #HealthEquityInRare #CareAboutRare @durhane @hologic @EveryLifeOrg @theMMRF

“If we ask ourselves, “What is the why behind what we are doing?“,it will help us engage individuals and address the major barrier of distrust. If we make stakeholders see a why and believe in your why, they will work alongside you.” - Veronica Ajewole. #2022HES #GGHealthEquity

Day 2 of the #2022HES is underway! Excited about what today has in store!
@GlobalGenes #healthequity #GGHealthEquity #raredisease
Keynote with Charles Hammond, MD: Removing the Hurdles in the Clinical Care of Rare Diseases in low resource settings. #2022HES #GGHealthEquity #CareAboutRare #HealthEquityInRare #RAREDiease #RDDC #GlobalGenes #Atlanta #diversityandinclusion

Panelists will dissect the value, advantages and challenges of clinical research and explore key concepts that are needed to engage under-represented populations. #2022HES #GGHealthEquity #HealthEquityInRare #CareAboutRare @iconplc

“How do we use empathy as a tool to understand our position.
Seek first to understand then to be understood.
It requires intentionality. The intentionality that comes from understanding.” - Jevon Gibson, Fulton-DeKalb Hospital Authority
#GGHealthEquity #2022HES

“We can’t all do it alone, we need partners and collaborators.” - Steve Scalia, @TannerPharma. “More partners = more collaboration = more patient impact.” #2022HES #GGHealthEquity #CareAboutRare #HealthEquityInRare #RAREDiease #RDDC #GlobalGenes #Atlanta #diversityandinclusion

Dr. Charles Hammond, @KNUSTGH, speaks on the barriers to healthcare in low- and middle-income countries and what needs to happen to remove these hurdles.#2022HES #GGHealthEquity #HealthEquityInRare #CareAboutRare

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