Top Tweets for #HealthEquityInRare
It's National Pediatric Transplant Week! Let's shine a spotlight on the incredible strength and resilience of pediatric transplant recipients and their families. #PediatricTransplantWeek #DonateLife #Inspiration #rise4rare #raiseawareness #zebrastrong #HealthEquityinRARE
March is Multiple Sclerosis Education & Awareness Month. Two types of rare and unusual variants of MS are Marburg variant MS (aka malignant MS) &
Balo's concentric sclerosis. #rarediseasediversity #raiseawareness #zebrastrong #HealthEquityinRARE #MSawareness #MultipleSclerosis
Today is National Donor Day - an observance dedicated to spreading awareness and education about organ, eye and tissue donation. Share the love and register today! #rise4rare #rarediseasediversity #zebrastrong #HealthEquityinRARE #nationaldonorday #raredisease #donationsaveslives
Swipe to check out a summary of the 2023 Health Equity Forum. Our 2024 Health Equity Forum will take place September 25-28 2024 in Kansas City, MS. To check out the full recap, click here: https://t.co/V2kOi4MjeO
#HealthEquity #HealthEquityForum #HealthEquityinRARE #WeekinRARE
We hope that you now have ideas to put Equity in Action. Here are the top 10 things that the Global Genes team learned during this year’s RARE Health Equity Forum! For more info on our Top 10: https://t.co/4aDBZnPQW2
#WeekinRARE #HealthEquityForum #HealthEquityinRARE #SanDiego
"If we can expand on the idea of genetic altruism to people beyond ourselves, we can better advocate for a larger community beyond ourselves." - Aditi Kantipuly, MD, MS, @blkwomenshealth
#WeekinRARE #HealthEquityForum #HealthEquityinRARE #diversityandinclusion #RDDC
A groundbreaking quote from Jevon Gibson, CEO of Fulton-Dekalb Hospital Authority during “The New Generation of Medical Care” panel discussion.
Tune into sessions live here: https://t.co/ZlUdBumw54
#WeekinRARE #HealthEquityForum #HealthEquityinRARE #diversityandinclusion
@TheFDHA
Such an important point when it comes to getting diagnosed, misdiagnosis, and being undiagnosed
-Connie Lee, PsyD
Tune into sessions here: https://t.co/J76waqchve
@alliancetocure
#WeekinRARE #HealthEquityinRARE #Misdiagnosis #Undiagnosed #GGSummit23 #diversityandinclusion
One of our staff members will join @GlobalGenes @RareDiseaseDiversity at the RARE Health Equity Forum!
Learn more here 👉🏽https://t.co/oJ4rV9yx6o
#HealthEquityForum #CareAboutRARE #HealthEquityInRare #RAREDiesase #RDDC #GlobalGenes #SanDiego #diversityandinclusion
We'd like to introduce the #RareDiseaseCommunity to our newly launched #FriedreichAtaxia (FA) patient perspective column and our newest columnist Lauren Gaczhias.
Read more here: https://t.co/pi91f1yJTt
#RareDisease #RareDiseaseAdvocate #Zebra #HealthEquityInRare
In her latest patient perspective, Alithea Athans, #ColdAgglutininDisease (#CAD) contributor, ponders what triggered her #RareDisease.
Read more from Alithea here: https://t.co/4iN6nSsgk6
#AutoimmuneDisease #RareDiseaseAdvocate #Zebra #CareAboutRare #HealthEquityInRare
Top @US_FDA official touts ‘promise of #GeneTherapy’ at @MDAorg annual #MDAConference.
Read @LLuxner's MDA conference coverage: https://t.co/fJ1KsVjewM
#RareDisease #OrphanDrug #SpinalMuscularAtrophy #Hemophilia #MedNews #MedEd #DuchenneMuscularDystrophy #HealthEquityInRare
We’re accepting applications for the Health Equity in RARE Impact Grant starting today through April 7, 2023. This grant opportunity is open to our Global Advocacy Alliance. To learn more:
https://t.co/22drhfudex
#HealthEquityGrant #GlobalGenes #CareAboutRare #HealthEquityInRARE
Rare Disease Advisor is proud to support the #RareDiseaseCommunity today and all days!
To view curated #RareDiseaseDay content including patient perspective, breaking news and medical insights click here: https://t.co/mVpweJJ3I7
#Zebra #HealthEquityInRare @rarediseaseday
There are racial and ethnic differences in terms of age at certain diagnostic and treatment milestones among patients with #DuchenneMuscularDystrophy (#DMD) in the US. Study in Neuroepidemiology @NeuroKarger https://t.co/5UvsJc1JAK #HealthEquityInRare #RareDisease #NeuroTwitter
We are excited to have 3 of the 7 filmmakers in person for a panel discussion about the impact of their film and sharing their story. #2022HES #GGHealthEquity #CareAboutRare #HealthEquityInRare #RAREDiease #RDDC #GlobalGenes #Atlanta #RARElyToldStories
It was an absolute honor to moderate this discussion on effectively partnering with patient organizations at the Global Genes Health Equity Summit. #2022HES #HealthEquityInRare
“There’s an inherent sense of trauma. Having to fix trust is difficult, you have to rebuild trust. You have to start over.” - @SaritaEdwards @EveryoneIsWe
#GGHealthEquity Session: Effective Communication with Patient Partners
#2022HES #CareAboutRare #HealthEquityInRare
Panelists will delve into the gaps that must be addressed to support greater access to treatment and clinical trials. #2022HES #GGHealthEquity #HealthEquityInRare #CareAboutRare @durhane @hologic @EveryLifeOrg @theMMRF
Keynote with Charles Hammond, MD: Removing the Hurdles in the Clinical Care of Rare Diseases in low resource settings. #2022HES #GGHealthEquity #CareAboutRare #HealthEquityInRare #RAREDiease #RDDC #GlobalGenes #Atlanta #diversityandinclusion
Panelists will dissect the value, advantages and challenges of clinical research and explore key concepts that are needed to engage under-represented populations. #2022HES #GGHealthEquity #HealthEquityInRare #CareAboutRare @iconplc
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