AFBuildStrength

Nemaline myopathy (NM) is a group of congenital, hereditary neuromuscular disorders that cause severe muscle weakness.

[AFBuildStrength @AFBuildStrength]

Today is #rarediseaseday. Nemaline Myopathy is a rare muscle disorder - it affects 1 in 50 000 & severe forms of NM show up to 66% mortality rates before the age of two. Help is find a cure and raise awareness. https://t.co/we4oNiEN6m

[AFBuildStrength @AFBuildStrength]

#strongwhereitmatters - Help us to continue our search for a cure, watch this special video from a few of our friends living with #NemalineMyopathy https://t.co/urpI85QCs4

[AFBuildStrength @AFBuildStrength]

This #GivingTuesday, please give to help us fund research for a cure for #NemalineMyopathy. Donations through our facebook page will be doubled up until midnight, tonight! Thank you! https://t.co/sBnfT8fiSX

[AFBuildStrength @AFBuildStrength]

#GivingTuesday 2017 is Nov 28th. We're proud to be part of the global celebration of giving. With your help, we can continue to fund research for treatments for #NemalineMyopathy!

[MDA Central IL @MDACentralIL]

Meet Team Momentum runner Pat Sawhill and his son Finley, who lives with nemaline myopathy https://t.co/FzH3SU0s0f

[AFBuildStrength @AFBuildStrength]

Shop @amazonsmile today, 5% will go to our foundation to fund research for Nemaline Myopathy treatments https://t.co/80r7ekiOKi

[AFBuildStrength @AFBuildStrength]

Informative webinar on nutrition issues for families with #nemalinemyopathy with Dietitian Patricia Novak https://t.co/Cd5ViZyQAv

[AFBuildStrength @AFBuildStrength]

We need you to #research #NemalineMyopathy. We encourage you to contact us with your grant applications. https://t.co/fbZJlC6aUo

[Matthew S. Alexander @Matt_Muscle_Guy]

New @AJHGNews paper: Biallelic mutatations in MYPN are assoc. with childhood-onset, slowly prog. Nemaline myopathy. https://t.co/ESMevd0B1b

[Jon Rettinger @Jon4Lakers]

I'm donating to the LoveLiv event to support Nemaline Myopathy. Here's a vid about Liv, please support this cause! https://t.co/oeBryK0zDG

[AFBuildStrength @AFBuildStrength]

#RareDiseaseDay, share why NM research is important to you - use hashtags #isupportNMresearch, #AFbuildingstrength https://t.co/we4oNiWouW

[AFBuildStrength @AFBuildStrength]

Watch @helploveliv story, living with #nemalinemyopathy https://t.co/s4TsZQ2iyY & support her fundraiser for a #cure https://t.co/igHx4L7Zpf

[AFBuildStrength @AFBuildStrength]

Incredibly grateful for your generous donation @Sia! Thanks for supporting #nemalinemyopathy research https://t.co/igHx4L7Zpf @helploveliv

[KUTV2news @KUTV2News]

WATCH: 8-year-old St. George girl, who lives with rare disease, receives a special gift #NemalineMyopathy https://t.co/zTGmbtdisa

[Punkaste @punkaste]

#triathletes parents, with a son with a rare neuromuscular disease! Help, create awareness #nemalinemyopathy @Oprah

[AFBuildStrength @AFBuildStrength]

2 weeks until @helploveliv 's fundraiser @soulcycle event! Help us find a #cure for #NemalineMyopathy! https://t.co/igHx4L7Zpf

[AFBuildStrength @AFBuildStrength]

Please support @helploveliv @soulcycle event, raise funds for promising #nemalinemyopathy #research for treatment! https://t.co/igHx4L7Zpf

[Punkaste @punkaste]

can I ask all my #endurance friends help spread the word of #nemalinemyopathy cycling awareness day #goLukeWygand
https://t.co/w1OessLLqe

[AFBuildStrength @AFBuildStrength]

#nemalinemyopathy awareness cycling day, with @RWygand on July 16. #golukewygand https://t.co/5lpbrThhMu

[AFBuildStrength @AFBuildStrength]

Check out the #LovLivYoga fundraiser. All profits go to research efforts to cure #NemalineMyopathy
https://t.co/bstTTSCRVF