alexandra turley

@rollerwarrior on Instagram. I blog on there about my health, surgerys. I had ileostomy surgery on the 4/11/19.

[alexandra turley @alexturley86]

@LloydsBank On the apps it just crashes. On the internet it has the loading sign and doesn’t and then says try again later. If this problem has been since the post I’m oct and it still isn’t fixed that’s madness.

[alexandra turley @alexturley86]

@LloydsBank banking app on iPhone and iPad isn’t working for last couple of weeks. Uninstalled and reinstalled nothing happened

[alexandra turley @alexturley86]

@LloydsBank Is this why I still can’t get online onto my internet banking in Jan. tbh if it’s taken that long I’ll be looking at changing banks

[alexandra turley @alexturley86]

@42wizardofOz @defiaye @EssexPoliceUK This is not the first school he has done it to in this area.!

[alexandra turley @alexturley86]

@maritess_mt @RBandH Hopefully all good news. 😊 glad your doing well

[alexandra turley @alexturley86]

@Sammiiee_1992 Marmite. Liquorice. Camomile tea.

[alexandra turley @alexturley86]

@Protexin_Vet have you stopped cystophan.? I’m in the U.K. if that makes a difference.

[alexandra turley @alexturley86]

Bad enuf my neuro condition has killed off internal organs.
I wait for what it’ll do next.
No treatments or slowing it down. Major surgery to bypass the organs.
#panspandas has a small treatment plan working.
But the bpna are more bothered to mask symptoms.

[alexandra turley @alexturley86]

#bpna let’s treat brain inflammation with psych meds. But dermatologists can still use antibiotics to bring down inflammatory responses in the body. How many more kids will now be failed rather than protected. #panspandas

[A. Müller @A_Mueller_12]

Dear @BPNA_org interesting consensus statement you have released on PANS and PANDAS. It does not seem to match-up with the existing research and guidelines on these conditions. What were the stakeholders views in this process?

[alexandra turley @alexturley86]

Awful these kids need the root cause treated not psych meds. Bad enough the nhs severely fails #panspandas kids and most have to go private in the first place.

[Dawn Lewis @DawnLewisd14]

This is disgusting! Our children have a autoimmune condition! #panspandas

[Hope @hopestardust20]

@DrHilaryJones @DrAmirKhanGP @DrRanj @piersmorgan @susannareid100 @kategarraway PLS 🙏🏻 raise awareness of #PANS #PANDAS @GMB @reallorraine an autoimmune inflammation triggered by #EBV, #Strep, #COVID etc affecting 1/200 often misdiagnosed or undiagnosed 💚 #bemyvoice

[alexandra turley @alexturley86]

@maritess_mt Happy birthday. Hope you’ve had a lovely day

[alexandra turley @alexturley86]

@maritess_mt @PHA_UK Chelmsford echo I think it was. Have been doing pieces on invisible Illnesses. One of my friends was featured

[alexandra turley @alexturley86]

I was hoping to get out of it but gastroscopy booked. Manchester hospital booked. Spc and general anaesthetic awaiting being booked. Going be one busy pre Xmas

[alexandra turley @alexturley86]

Monday was my first day from #ileostomy surgery that I went to the gym 😂💕

[alexandra turley @alexturley86]

Iv done it. Iv signed back up to the gym. First session is Monday

[alexandra turley @alexturley86]

@CaseAtlanta Ill add it to my list for them tomo.🤣 thank you. Frustrating it’s a lot better but this bit may need to be surgically closed. Been open since dec. I don’t do anything by half 🤣

[alexandra turley @alexturley86]

Brava elastic tape, need two per bag for a full circle. However ccg only allows 30 per 30 bags so you can only secure half your #stomabag #ostomy 🤦‍♀️

[alexandra turley @alexturley86]

@CaseAtlanta No I did want to try them so at night I could pop a larger bag on and not need set a three am alarm. But the wound is so bleedy and exudate. I’ll see if they think trying it now or once under control will be better. It’s similar looking to pyoderma gangrenosum

[alexandra turley @alexturley86]

@CaseAtlanta I use two bottles adhesive remover and sixty on brava tape. I’ll get my stoma nurses to remind them then at least if there was another problem Iv got the letter.