Dear @BPNA_org interesting consensus statement you have released on PANS and PANDAS. It does not seem to match-up with the existing research and guidelines on these conditions. What were the stakeholders views in this process?
1/2 In spite of their efforts to get research over the line, Ass. Prof. Karl Morten, Prof Lambert, Dr Jinyu Shan et al are considered not a strong enough research team and Lyme data having not been published prevents the invaluable proposal going forwards.
2/2 In the meantime, people continue to suffer enduring symptoms and sub- therapeutic treatment. A contingency plan would help from @NIHRresearch and those proposing the investigation to move this forwards. #LYME
NIHR outline grant on Lyme. See link below. This is our best effort so far. Fell down because the Lyme data on antibiotics is not published and the research team wasn't considered strong enough. For Lyme research this would have been a big step forwards.
https://t.co/jMq9SR6Sof
🌟AONM WEBINAR ~ WEDNESDAY 3RD MAY🌟
Professor Craig D. Shimasaki
TITLE: The Rise in Other Infections Post-COVID and our Immune Response: What impact can these have on an increase in autoimmune encephalitis?
Wed 3rd May 2023
19:00 BST
REGISTER HERE: https://t.co/ahZJ4Ubu0u
An invitation to the 3rd European
CRYPTO-INFECTIONS CONFERENCE: LYME DISEASE &
OTHER HIDDEN INFECTIONS BACTERIAL PERSISTENCE
Catherine McAuley Centre, 21 Nelson Street, Dublin 7, Ireland
Sat 17th - Sun 18th June 2023
Book your place ⬇️
https://t.co/dp0PaWBBje
@invisibleintl
“I don’t like conspiracy theories. But, this is like the time when the conspiracy theory came true. And the tick bite turns you into someone that’s allergic to the food,” said Dr. Cosby Stone Jr., assistant professor of Allergy & Immunology @VUMC_Medicine https://t.co/EQOHuVE5HD
Ticks are active year round in some areas. Fewer than 1/3rd remember a tick bite.
Our Symptom Checker helps you list exposure to #Lyme and possible symptoms. You can print out and take to the doctor. https://t.co/ugnPwPLgVZ
"Lyme disease can also cause behavioral or mood changes in children.Some children develop neuropsychiatric manifestations such as anxiety,depression,panic attacks,or obsessive-compulsive disorders.All these symptoms can come and go..."
Thank you to the many people who have got in touch after my PMQ yesterday. Weekly PANSPANDA Hour takes place tonight for those seeking further information and support.
I'll update on my progress with the Government.
#panspandas
@wendychambLD Thank you so much for speaking up for our children and raising this in Parliament. They've been ignored, misdiagnosed, gaslighted and more for far too long.
https://t.co/fOgV0FWzXX