retired Methodist Minister living near Warwick diagnosed MND in July 2019. I want to raise awareness about MND and as much money for mnd association as I can.
I did it! 26 days of 26 steps all in spite of my MND. All done to raise valuable funds for @mndassoc Thanks to all those who donated to the £5375 I have raised. https://t.co/8ZsvIas5Or. You can still donate if you want to.
❗️Urgent #United2EndMND action: We need as many MPs as possible to show their support for increased Gov't funding into #MND research by writing to @DHSCgovuk before we meet with them in 2 weeks’ time
Ask your MP to support vital MND research now 👇🏿
https://t.co/fTKENwZhrV
I can’t believe it’s a week since my egg and spoon race! And what a week! Already this and the seven mini marathons so far have raised £4465 for @mndassoc . You can read more about my story here, or make a detonation: https://t.co/8ZsvIas5Or
It was a great start this month for motor neurone disease awareness with #MND once again featuring on #BBCBreakfast.
Let's keep the momentum going.
Please share our infographic and make sure at least one more person knows more about this disease 🧡 thank you for your support!
Last April 1 I did a reverse triathlon and raised nearly £9k for @mndassoc I’m doing an egg and spoon race on 1 April 21 and a Marathon of mini marathons, 26 steps with my wheely Walker, on 26 days in April. To learn more, or to sponsor me, go to https://t.co/8ZsvIas5Or
I've asked my MP to urge @hmtreasury@SteveBarclay to approve changes proposed by the @DWP to ensure that terminally ill people aren't forgotten in the Budget on 3 March.
⏰We have 2 weeks to get as many MPs to write as possible. Ask yours👇🏾https://t.co/PCOdDMbPJS #Scrap6Months
It's the first of the month and as always, time to raise awareness of motor neurone disease (#MND).
Please share our infographic and make sure at least one more person knows more about this disease 🧡 thank you for your support!
We're excited to announce the launch of our #GameOverMND weekend!
On 6 and 7 Feb we're hosting an epic weekend of gaming and inviting you and your kids to get involved.
Gaming marathon 👉 https://t.co/wivfWxqVr7
FIFA tournament 👉 https://t.co/zAYQRpwnJI
👊 #TakeOverMND
I've invited my MP to the @APPGonMND meeting to discuss housing adaptations and accessible housing for people with #MND and their families. #ActToAdapt
Invite yours too by clicking here: https://t.co/iyOY7meHvk
Heartbreaking that 3,000 more people in the UK have received the shattering diagnosis of #MND in 18 months. It is an evil killer. Government must #Scrap6Months@DWP and provide overdue research funds. Not incurable - just underfunded. #United2EndMND@alexwardfund@AmmarAlChalabi
Well done @mrdanwalker and @louiseminchin for this morning‘s focus on Voice banking. When diagnosed with MND 18 months ago I didn’t have a clue about MND. That wouldn’t be so today That’s all down to what #BBCBreakfast have done since then. Thank you so much.
All being well the BBC1 breakfast show tomorrow will feature the MND story, which will include a conversation with me, should be broadcast just after 9 am. Many thanks for all the supportive comments I received yesterday, I’ll carry them over to tomorrow.@mndassoc
Sadly the BBC have dropped the story I was to be involved in from this morning‘s breakfast programme. They are now hoping to run it in tomorrow’s show. @mndassoc
The @mndassoc Have nominated me to speak tomorrow on BBC 1’s breakfast show at around 8.45am in a feature they’re doing about having a voice and the impact of MND on the possibility of losing it.
Happy New Year everyone! Can you resolve to do something this year to raise some money for @mndassoc.? In a New Year we need new ideas for new virtual events which can be achieved simply. My virtual triathlon last year was hatched early in the new year. Get thinking and be bold!
It’s MNDA a pyjama day today; I’ve got mine on have you? The @mndassoc need every penny so every £5 donation really makes a difference. Just text MNDPJDAY to 70095.
Please donate to @mndassoc if you possibly can. I know there are lots of other demands in the Christmas period but please spare a pound or whatever for this exceptional cause, I already have.