Anisa Rowhani-Farid

Meta-researcher interested in Open Science - Data Sharing - Research Transparency

[Anisa Rowhani-Farid @AnisaFarid]

NIH Data Sharing Index (S-index) Challenge - $1,000,000 Cash Prize! Goal: The S-index Challenge aims to advance the NIH mission by actively promoting data sharing and developing a robust metric to reward exemplary data sharers. 
https://t.co/CGrrrAFvFh

[Joseph Ross @jsross119]

Today, @VivliCenter has convened leaders and scholars @theNAMedicine to consider what can be done over the next 10 years to promote data sharing; in @NEJM, Joanne Waldstreicher, @hmkyale, & I offer our suggestions to maximize U.S. govt investments (1/3) https://t.co/a17CStDfMK

[Anisa Rowhani-Farid @AnisaFarid]

Future research on the outcomes of data sharing models is needed to inform effective policies which maximize clinical trial data sharing, particularly in light of the 2023 @NIH data management and sharing policy. 10/10
https://t.co/3EW0H7SsO1

[Anisa Rowhani-Farid @AnisaFarid]

New @ScientificData paper published today! Myself, Mikas Grewal, Steven Solar, @AllenEghrari, @cpgYALE, @hmkyale and @jsross119 studied the outcomes of two @NIH data sharing models. 1/10
https://t.co/aHrHEnmhqg

[Anisa Rowhani-Farid @AnisaFarid]

Overall, we found low rates of data sharing and low numbers of shared data publications for the largest and most costly trials funded by the Institutes from 2010 to 2013. 9/10

[BMJ Evidence-Based Medicine @BMJ_EBM]

Consistency between trials presented at conferences, their subsequent publications and press releases

@AnisaFarid @KyungwanHong @AudreyDZhang @JoshuaDWallach @jsross119

#OpenAccess

Link: https://t.co/fOs601VJww

[Peer Review Congress #PRC11 Coming 2029! @peerrevcongress]

In a sample of 62 trials among all RCTs for new meds given approval by the @EU_Commission Jan 2017 -Dec 2019, 10 (16%; 95% CI, 8%-28%) were reproduced, 52 had no data to attempt reproduction
https://t.co/ys7sXlh1wc
@MaximilianSieb @dmoher @NaudetFlorian @_Journalology

[Peer Review Congress #PRC11 Coming 2029! @peerrevcongress]

An analysis of 240 RCTs presented at 12 conferences found consistent reporting of primary efficacy endpoints and consistent results characterization between conference and published abstracts
https://t.co/s6mlSZW9W2
@AnisaFarid @jsross119 @JoshuaDWallach @RIATinitiative #PRC9

[Joseph Ross @jsross119]

Very proud of ⁦@AnisaFarid⁩, presenting her study #PRC9 examining reporting consistency for RCTs presented at major conferences and then published

[medRxiv @medrxivpreprint]

Clinical Trial Data Sharing: A Cross-Sectional Study of Outcomes Associated with Two NIH Models https://t.co/pba4pzhrQ1 #medRxiv

[Anisa Rowhani-Farid @AnisaFarid]

Clinical Trial Data Sharing: A Cross-Sectional Study of Outcomes Associated with Two NIH Models
https://t.co/EjKofzAxHC

[Anisa Rowhani-Farid @AnisaFarid]

Very happy to have pre-printed our paper studying outcomes associated with two NIH data sharing models. Both the NHLBI and the NCI models resulted in only 21% of trials sharing data and few shared data publications
@alex_egilman @AudreyDZhang @cpgYALE @hmkyale @jsross119
🧵

[Anisa Rowhani-Farid @AnisaFarid]

This indicates that there are opportunities to optimize clinical trial data sharing efforts both to enhance clinical trial data sharing and increase the number of shared data publications. Link to pre-print @medrxivpreprint below.