Ann Geffen

J.D., M.A. Strategic Public Relations. Executive Director of @TANGO2research #family #fashion #food #fundraising #philanthropy

[Ann Geffen @annngo]

Honored to be a part of this along with @NoyMari1965 to share @Sammy50223077 story and keep his memory alive. ❤️

[TANGO2 Research Foundation @TANGO2Research]

We are excited to share that the poster abstracts from the 2026 TANGO2 Family Conference have been published in Therapeutic Advances in Rare Disease.

View the publication at https://t.co/wRCKqrjN0t

#TANGO2ResearchFoundation
#TANGO2FamilyConference

[TANGO2 Research Foundation @TANGO2Research]

We’re thrilled to share that several TANGO2 Research Foundation (T2RF) leaders have been selected as mentors in national rare disease initiatives — helping empower other organizations and strengthen the global rare disease community.

#TANGO2ResearchFoundation

[Ann Geffen @annngo]

@mikeymo My pleasure!

[Ann Geffen @annngo]

Honored!

[TANGO2 Research Foundation @TANGO2Research]

Congratulations and Thank to Ann Geffen on her 5-Year Anniversary with the TANGO2 Research Foundation!!

🔗 Read the new blog post here: https://t.co/u98yQnbsKH

#TANGO2ResearchFoundation

[Samuel Mackenzie MD PhD @NotoriousEMG]

Forgot to post this last week, but it's a cool story worth sharing. TANGO2 deficiency disorder in a 61-year-old! The story continues... @TANGO2Research
https://t.co/Fn9DZmPA5Z

[Ann Geffen @annngo]

Feeling so grateful to be here this week. I’m inspired and invigorated to reach new heights for our @TANGO2Research families!

[Chan Zuckerberg Initiative @ChanZuckerberg]

We're leaving the #RareAsOne Network 2025 Meeting energized by powerful conversations + new connections! Participants shared examples of patient-led #RareDisease collaborations that are moving us closer to treatments and cures across diseases. Thanks to all who joined! #Patients

[Ann Geffen @annngo]

It’s been an incredible week at the @ChanZuckerberg Rare As One Network Science in Society Meeting. Inspiring and invigorating to say the least! Looking forward to reaching greater heights and making more progress for rare disease families.

[Ann Geffen @annngo]

@BPete9121 @onepeloton This!

[Ann Geffen @annngo]

Girl with the balloon I get. This I don’t.

[The New York Times @nytimes]

A banana duct-taped to a wall — a conceptual artwork by Maurizio Cattelan titled "Comedian" — sold to a crypto entrepreneur for $6.2 million with fees at Sotheby's contemporary art auction on Wednesday. https://t.co/bSewDkCv72

[Ann Geffen @annngo]

This little lady stole my heart when I got a chance to meet her in person this past summer at the @TANGO2Research family conference.

[TANGO2 Research Foundation @TANGO2Research]

🌟 Meet Heloisa, a courageous 6-year-old TANGO2 Warrior from São Paulo, Brazil! 🌟

Heloisa’s joy for life shines brightest when she's in the water, swimming her heart out at the club pool. When she's not in the water, you'll find her dancing up a storm or whipping up sweet t ...

[Ann Geffen @annngo]

First catch of the season! 🥰

[Ann Geffen @annngo]

The work that you do inspires so many patient led orgs like @TANGO2Research. Keep it up…we’re watching with so much admiration.

[I AM ALS @iamalsorg]

How cool was it to see I AM ALS represented on stage last night at the DNC? We’re so proud of the work this community is doing together. In case you missed it, you can watch Brian and Sandra’s remarks in full: https://t.co/pf7aDSGwD1

[Barack Obama @BarackObama]

Brian and Sandra are the epitome of hope.

When Brian was diagnosed with ALS, he turned tragedy into action by launching @iamalsorg and leading a movement to find a cure.

I’m inspired by these two—and after you hear their story at the @DemConvention, you will be, too.

[Ann Geffen @annngo]

@attorneyjeremy1 We were lucky to have in our lives. He will be missed by many. 🥺

[Ann Geffen @annngo]

@TANGO2Research Way to go Oliver!

[Ann Geffen @annngo]

Still thinking about the 2024 @TANGO2Research Conference. I already miss seeing everyone and the dynamic energy everyone brought! This group defines passion and purpose for me. #rarediseaseadvocate #tango2 #tango2conference

[Ann Geffen @annngo]

Well deserved @Sarahelegans! Congratulations! 🎊🎉🍾

[Samuel Mackenzie MD PhD @NotoriousEMG]

Congrats to @Sarahelegans for being one of the inaugural class of TANGO2 Emerging Investigators! @TANGO2Research @Pathology_URMC @URNeuroscience

[Ann Geffen @annngo]

@TANGO2Research That this is the most resilient and relentless community!

[Ann Geffen @annngo]

Just finished up an amazing @TANGO2Research family conference. When patient families, researchers, clinicians, and caregivers collaborate, we move mountains.

[Ann Geffen @annngo]

This!

[Samuel Mackenzie MD PhD @NotoriousEMG]

1:5 Americans lives with a disability, but disability remains wildly underrepresented in media and film.