ANZ Fontan Community

ANZFAC is the Australian and New Zealand community of people living with or affected by heart conditions which require a Fontan circulation.

[Derek L. Tran @derekleetran]

Thank you, @ClubLimeGyms, @FitnessFirstAU, @mariettamehanni, & @PolarAUS, for supporting this research!

If you live in Australia NSW, QLD, VIC, ACT, or WA, express your interest to find out more and see if you are eligible. https://t.co/Pn7rcAWfxw

@HeartKidsAust @anzfac

[Life_With_CHD @LifeWithCHD]

Wow hearing some of these Single Ventricle patients in the webinar video brings back memories of how I felt when I was in school. The feeling of being alone and the only one not normal. Thank you to the little boy who said he tells his friends he was cut in half. ❤️it @anzfac

[ANZ Fontan Community @anzfac]

If you're in Melbourne, Sydney or Brisbane and want to watch the Fontan Education Day on Saturday 29 October with other Australian patients and families, register for one of our community viewing parties. https://t.co/3lRPhGVRXi

[FON @FontanOutcomes]

Want to learn more about Emotional Health & Resilience in the Single Ventricle community? Register at the link below and join us for our inaugural FON Educational Webinar, taking place Tuesday, August 9 from 4 to 5 p.m. ET. https://t.co/R8BrndDVqa

[ANZ Fontan Community @anzfac]

This important statement is accompanied by supporting materials for patients and families.

[Dr. Nadine Kasparian @NKasparian]

@American_Heart releases 1st Scientific Statement addressing the psychological needs of people with congenital #heartdisease & call to action: Improve access to #mentalhealth care for all with #CHD across the lifespan https://t.co/oecBINkYgT

[FON @FontanOutcomes]

ICYMI: Meg Didier conducted our first-ever FON Social Media Takeover last Friday! She answered questions and shared a day in her life as 30-y/o born with #HLHS who is now >30-weeks pregnant. Check it out via the Takeovers archive on our Instagram profile: https://t.co/CrTgHbZhDe

[Dr Susie Cartledge @susiecartledge]

On now!! Or catch it on @ABCiview!

[Congenital Heart Initiative @ACHD_CHI]

Join other #ACHD patients in telling your #CHD story! It’s voices like yours and Scott’s that can improve the lives of adults living with CHD. Ready to share your experience? You can register here: https://t.co/7AFRXyc1o1

[The Cincinnati ACHD Program @CincyACHD]

@DrWinlaw discussing recent evolution in #Fontan circulation, from surgical options to medical interventions to exercise. #ACHD2022 @anzfac @FontanOutcomes @ZipperSisters

[FON @FontanOutcomes]

Calling all individuals with single ventricle and their parents/caregivers: We are excited to launch our new bimonthly event series called Single Ventricle Connection Chats! #FON #CardioTwitter #SingleVentricle https://t.co/EkFxHnpdz1

[Life_With_CHD @LifeWithCHD]

Ever wanted to connect with other Single Ventricle Patients or families from across the 🌎? Now you can virtually!😲❤️💙🙌 #chd #singleventricle #CardioTwitter @FontanOutcomes @anzfac. CHECK THIS OUT ⬇️⬇️⬇️ https://t.co/5GxLxNQ53u

[FON @FontanOutcomes]

Our FON Executive Co-Director Dr. Jack Rychik will deliver the Nadav Robinson Memorial Lecture at Mount Sinai Kravis Children’s Hospital this Thursday, April 14 at 8 a.m. ET. The topic will be “Life with single ventricle: The challenges and how we can optimize outcomes.”

[ANZ Fontan Community @anzfac]

Social determinants of health are so important for every part of life with a Fontan circulation.

[Additional Ventures @AdditionalVent]

"Family social class was the strongest predictor of executive functioning in adolescents with critical #CHD, even in the presence of medical risk factors" - latest in @JPediatr from Newburger, Wypij et al. @BostonChildrens

#machinelearning #Fontan https://t.co/nQKrrliS7D

[Int’l Society for Adult Congenital Heart Disease🌎 @ISACHD]

ISACHD is so pleased to endorse EuroACHD 2022 - what a terrific scientific programme in beautiful Rotterdam! #ACHD

https://t.co/2js67plMtE

[ANZ Fontan Community @anzfac]

One episode of this new documentary series follows the earliest days of Tilly’s life. Tilly was born with HLHS, one of the conditions which will eventually require a Fontan procedure.

[ABC Science @ABCscience]

Prepare to be amazed by the world of fetal surgery. 😲

From operating on strawberry-sized hearts to unborn fetuses, we follow the @maternews medics that care for high-risk pregnancies.

📺 Stream ‘Miracle Babies: Operation Hope’ on Tue 15 Feb, 8.30pm | #ABCCatalyst

[CanadianFontan @CanadianFontan]

Registration is now open for Fontan Education Day! To register, head over to: https://t.co/9hBWR6vRFc 💗

[ANZ Fontan Community @anzfac]

Are you a parent or carer of a person with a Fontan circulation? Register for our online catch-up this Sunday 6 February to speak with others in our Australian and New Zealand Fontan community with similar experiences. https://t.co/wwi7wbPSGx

[FON @FontanOutcomes]

In order for FON to have the largest impact possible, we need to reach as many patients, family members, caregivers, and clinicians as possible. Help spread the word about FON today by sharing one of our flyers available at the link below! #cardiotwitter https://t.co/pBsnLT7uPi

[ANZ Fontan Community @anzfac]

If you're part of the ANZ Fontan Community - living with a Fontan, a carer, a supporter - join us tomorrow (3.00pm AEDT; 5.00pm NZDT) for our first summer social. https://t.co/zW8getxl7c

[Additional Ventures @AdditionalVent]

🎉CONGRATULATIONS 🎉 to the 17 outstanding research teams receiving awards through #SVRF2021!!!

All day today we'll be announcing each of our awardees & highlighting their important work in advancing our understanding of #Cardiovascular Development!