Adrienne Palange Hoffmann (she/her)

HR Leader; Rare Disease Advocate

[Adrienne Palange Hoffmann (she/her) @aphoffmann623]

Calling all rare disease community members – patients, caregivers, clinicians, researchers, and advocates to join a petition Congress in honor of Rare Disease Week on Capitol Hill 2025. https://t.co/EbyYqI0hkR

[Adrienne Palange Hoffmann (she/her) @aphoffmann623]

.@Z100NewYork Has Your Chance To Win TWO Taylor Swift | The Eras Tour Tickets, free flights and hotel in Toronto! https://t.co/ZZs8aTloRp

[Fairfield CT, Superintendent of Schools @FairfieldSuper]

Jennings students are showing their stripes for Rare Disease Day to support and celebrate friends impacted by a rare disease. Rare Disease Day is a global movement that raises awareness for those living with, supporting, and treating rare diseases. #RareDiseaseDay2024

[Global Genes @GlobalGenes]

Today is National Caregiver's Day. As a caregiver, you are one of millions caring for a loved one in the U.S., but being one of millions, means there is a whole community ready to support you! Access caregiver resources: 
https://t.co/WZOr0jdF1o
#Caregiver #CareAboutRare

[Adrienne Palange Hoffmann (she/her) @aphoffmann623]

@ananavarro 🤣

[National Organization for Rare Disorders (NORD) @RareDiseases]

Want to rep some new #RareDiseaseDay gear on February 29, the rarest day of the year?

Join the global rare community and #ShowYourStripes with your favorite items from our Rare Disease Day store. Proceeds benefit NORD! https://t.co/HgMP6KwovU

[Adrienne Palange Hoffmann (she/her) @aphoffmann623]

@taylorswift13 hi, my name is Stella and I love your music!

[Adrienne Palange Hoffmann (she/her) @aphoffmann623]

@RedSox Congrats @CraigBreslow !!

[Adrienne Palange Hoffmann (she/her) @aphoffmann623]

@BetteMidler 🤣🤣🤣

[National Organization for Rare Disorders (NORD) @RareDiseases]

Have you or a loved one in the #RareDisease community been affected by the recent fires in #Hawaii? NORD is proud to offer a Hurricane & Natural Disaster Emergency Relief fund that can help pay for repairs, temporary lodging, and more.

Apply here: https://t.co/AV8EuwgKw2

[Adrienne Palange Hoffmann (she/her) @aphoffmann623]

⁦@BrendaKupchick⁩ ⁦@SenatorHwang⁩ ⁦@CMcCarthyVahey⁩ ⁦@GovNedLamont⁩ ⁦@ChrisMurphyCT⁩ ⁦@SenBlumenthal⁩ ⁦@ffldcitizen⁩ ⁦@FairfieldSuper⁩

[Adrienne Palange Hoffmann (she/her) @aphoffmann623]

@FairfieldSuper Save neighborhood schools!

[Adrienne Palange Hoffmann (she/her) @aphoffmann623]

@fairfieldpatch @FairfieldSuper @BrendaKupchick @connpost @GovNedLamont @SenatorHwang

[Adrienne Palange Hoffmann (she/her) @aphoffmann623]

@thehill Please proofread

[Adrienne Palange Hoffmann (she/her) @aphoffmann623]

@FairfieldSuper @FSelectwoman @fairfieldpatch @ffldcitizen

[Fairfield CT, Superintendent of Schools @FairfieldSuper]

We are so proud of our FPS inventors who participated in the Invention Convention State Finals! Congrats to Jennings Grade 5 Student Noah, who was invited to participate in US Nationals for his invention, The Connect O’ Ramp, a portable wheelchair ramp inspired by his sister

[National Organization for Rare Disorders (NORD) @RareDiseases]

Happy #MothersDay to all the #RareDisease moms! Including chosen mothers. Your passion & responsibility as advocates for your children is the model for everything we do 💙

#Moms living with #RareDiseases, know you are a gift for all the ways you show up in your children's lives.

[Adrienne Palange Hoffmann (she/her) @aphoffmann623]

Thank you @trexorobotics for letting me watch my girl walk today 🥰

[Adrienne Palange Hoffmann (she/her) @aphoffmann623]

@FairfieldSuper 👏👏👏 our Paras are fantastic!!

[Rare Disease Innovations Institute @rdii_org]

Today is National Doctors' Day! We are thankful for all doctors, but especially those who specialize in treating patients with rare diseases! #nationaldoctorsday