ARPKD/CHF

A place for ARPKD/CHF and ADPKD in Children support/information. Managed by Michele Karl , volunteer for @PKDFoundation. Thank you to Julia Roberts for starting

[ARPKD/CHF @ARPKDCHF]

Best of the best.... pediatric specialists donating their time to the PKDF for the PKD in Children conference. Thanks to Drs Katherine Dell, Lisa Guay-Woodford, Jamie Chu, Erum Hartung.

[ARPKD/CHF @ARPKDCHF]

How the PKD Foundation was formed and some amazing people involved with it. #endpkd #endarpkd https://t.co/oExCYK40pW

[ARPKD/CHF @ARPKDCHF]

Exciting things happening for the future!! So many research grants, including an ARPKD one! #endPKD #endarpkd #endarpkdchf #researchgrants #pkdfoundation #PKDCon2018 #pkdgrants

[ARPKD/CHF @ARPKDCHF]

The best of the best #pediatricnephrologist #endarpkd #endarpkdchf #endpkd #PKDCon2018 #pkdfoundation @Guaywoodford #katherinedell #lisaguaywoodford @PKDFoundation

[ARPKD/CHF @ARPKDCHF]

#PKDCon2018 #excitedtobehere #endpkd #endarpkd #endarpkdchf #pkdfoundation #togetherwecan @PKDFoundation

[ARPKD/CHF @ARPKDCHF]

#arpkdhandbook #arpkdchf #endpkd #PKDCon2018 #endarpkd #thanksPKDF #firstonelikethis

[PKD Foundation @PKDFoundation]

Rare Disease Week is NEXT week and there are tons of ways to get involved. Stop by https://t.co/P86HQJ921j to find out how you can get join in. @RareDiseases #RareDiseaseWeek #endPKD

[ARPKD/CHF @ARPKDCHF]

#pkdfoundationConference #pkdconnect #pkdconnectconference #endpkd #endarpkd #endarpkdchf https://t.co/SVQcx4cbdf

[ARPKD/CHF @ARPKDCHF]

#NationalDonorDay #DonateLife #shareyourspare #endpkd #endarpkd #endarpkchf #pkdfoundation

[ARPKD/CHF @ARPKDCHF]

Honored to have THE GURU of PKD in children be a part of the new council @PKDFoundation #pkdinchildrencouncil. One of the smartest, nicest drs out there, yet very humble. @Guaywoodford #endpkd #endarpkd #endarpkchf

[ARPKD/CHF @ARPKDCHF]

Surrounded by leading doctors in the field at our first meeting for the new PKD in Children Council #endpkd #endarpkd #arpkdchf #adpkdinchildren @PKDFoundation

[ARPKD/CHF @ARPKDCHF]

The @PKDFoundation has given more than $3 million dollars related to #arpkdchf #arpkd research and programs.

[ARPKD/CHF @ARPKDCHF]

On way back home after awesome conference. Thanks @PKDFoundation and @MountSinaiNYC #pkdkids

[ARPKD/CHF @ARPKDCHF]

"...It's hard to see other kids my age be at college...but I will live up to my potential." Brit, 19 #amazing #pkdkids

[ARPKD/CHF @ARPKDCHF]

"It's okay to laugh at yourself." #pkdkids

[ARPKD/CHF @ARPKDCHF]

Perspective about living with PKD from Brit, age 19. ❤️ #pkdkids

[ARPKD/CHF @ARPKDCHF]

Dr. Jeffrey Saland is speaking about clinical care for #pkdkids @MountSinaiNYC @PKDFoundation

[ARPKD/CHF @ARPKDCHF]

Nutritional talk! #pkdkids

[ARPKD/CHF @ARPKDCHF]

#pkdkids from Dr. Lai @MountSinaiNYC

[ARPKD/CHF @ARPKDCHF]

CHF (congenital hepatic fibrosis) can cause large spleens. Yay picture for showing us where a spleen is. #pkdkids @PKDFoundation