allison

progressive policy • vintage photobooths • independent music • women’s college grad • Bernie 2020 volunteer • now living with #LongCovid #MECFS

[allison @artists4bern]

@RubleKB Thank you for citing Senator Riegle’s record. He hoped to see universal healthcare passed in his lifetime, I wish we’d succeeded. M4A was one of many key reasons he backed Bernie twice. I know he’d be incredibly proud of Abdul for winning the primary against all odds!

[allison @artists4bern]

@michael_hoerger Holy shit, since when did Northern MI heat up like that?!? I looked back at the last few weeks and accidentally interpreted it as low, but now realizing perhaps there weren’t numbers for that region yet. Did this data just appear? Alarmed seeing this, thank you for elaborating.

[allison @artists4bern]

@atranscendedman Man, I feel like I’m the only one not tolerating it well / feeling good 🥲 two weeks on .3 mg: Developed a lower baseline, stronger, more frequent headaches, gi issues, and my horrible leg pain (gone for yrs) is back. Supposed to double dose today…how long do I stick with it?

[allison @artists4bern]

@SillyPutty78 @Gmwetz Wow I’m the same combo as you! First person I’ve encountered. Doxy + Truvada took my Deep/REM sleep from average 26% to 38%. Doxy alone leaves me with about 1 crash a year (still get PEM but more mild). Been on Val in addition for 2 months now, it helps. Guan too.

[allison @artists4bern]

@curemetogether Unknown. Negative PCR for Flu A B RSV and Covid. I was barely & briefly symptomatic in acute phase, but declined significantly and developed new ME/LC symptoms. Tracking HRV (went v low) and RHR (went v high) is worth doing to track recovery from acute phase.

[allison @artists4bern]

@michael_hoerger Are the current 🔥 states ones that had a relatively lower summer wave? I see Louisiana is high again though and I remember it being high in summer. Trying to understand if CA, which had our horrible peak early Sept, will have another big winter wave eventually. Thank you always!

[allison @artists4bern]

@curemetogether If I could go back and mask outside to avoid this setback, I would. Surrender, rest, and come up with a new plan to ensure this doesn’t happen again is my best advice. I am very mad I have lost 7 months after experiencing good progress in the first half of 2025.

[allison @artists4bern]

@curemetogether My acute illness was extremely mild, but it cost me 7 weeks bed rest (no opening blinds, sitting outside etc) followed by couch two months. No friend visits or calls, very mindful resting. Then resumed my old moderate norm and crashed badly. So now it’s approaching 7 months lost.

[allison @artists4bern]

@dustindrury Omg how I missed the link, I do not know 🤦🏼‍♀️ Thank you, that’s upsettingly high.

[allison @artists4bern]

@dustindrury Many friends work at these venues 😮‍💨 Do you have stats on The Echo and Echoplex? My old work place that I miss dearly (I’m CC but homebound with moderate longcovid)

[allison @artists4bern]

@SillyPutty78 100 mg doxy, morning and bedtime daily.

[allison @artists4bern]

@curemetogether I caught something (PCR neg for Covid flu RSV) outdoors this summer, ended up in bed for 2 months. 3rd month on the couch, no visits, cooking, anything. Developed many new symptoms. I’m finally closer to baseline 4 months later. Can’t imagine what Covid would do. REST REST REST🩷

[allison @artists4bern]

@SamRNolen Argh I completely relate! My prothrombin fragment was 28x the upper limit. The highest my doctor at RTHM had ever seen. My TAT was 12x. Would you be willing to share what they treat you with? I’m on Plavix & Elliquis, two years now

[allison @artists4bern]

@WomenInTheBurbs Hi Teri!! Thank you so much — so glad you got Novavax, my parents got theirs too 💓💓

[allison @artists4bern]

@Biff234523 Adding Ralph’s, San Diego, CA. Parents successfully received Novavax yesterday morning, 9/24/25.

[allison @artists4bern]

@Pyke_Wielder Hi Pyke! Ralph’s Pharmacy inside the grocery stores just got it. Let me know if you have any luck, but definitely call first - there are many locations in SD, so hopefully one not too far from you!

[allison @artists4bern]

@WomenInTheBurbs Hi Teri! Ralph’s Pharmacy inside the grocery stores just got it. Let me know if you have any luck, but definitely call first - there are many locations in SD, so hopefully one not too far from you!

[allison @artists4bern]

@randi_allyn @WomenInTheBurbs Thank you Randi!!

[allison @artists4bern]

@WomenInTheBurbs I did, thank you! We called them and they gave us the runaround — “don’t have it” “don’t know when we’ll get it” but I of course tend to believe the person who had the in-person experience. Too far for my parents to drive though without confirmation :(

[allison @artists4bern]

@WomenInTheBurbs Hi Teri! Good luck & please let me know if you succeed — trying to help my 87 year old dad get Novavax before an upcoming procedure in SD. I’ll keep you posted if I find any new leads too 💓