a_ryback

Clare Francis Research fellow at IGC Uni Edinburgh (Ponting Lab), funded by Action for ME.

[a_ryback @aryback4]

@actionforme are running their "Big Give" campaign this week- any donation you make in the next 4 days is matched. Please consider donating/sharing if you can. My research is possible thanks to Action for ME! https://t.co/OBQFmHBvZG

[a_ryback @aryback4]

@NickyProctor @CBMEgroup @actionforme Thank you @NickyProctor, that means a lot!

[Charlie Hillier @CharlieHillier7]

Thank you so much for writing this @CGATist

If anyone wants to understand the dire situation people with ME/CFS (including myself) are faced with, do please read this very moving piece.

[a_ryback @aryback4]

@RobertHMcMullen Thanks for this question! I can't give a more specific answer than that we will publish the results when we are ready and certain that the research is as robust as we can make it. We're working really hard to make this happen as fast as possible.

[a_ryback @aryback4]

Excited to be presenting on how we are tackling the question: "Do ME blood factors change the behaviour of cells?"

[Action for ME @actionforme]

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🔬 Webinar: Updates from the Genetics Centre of Excellence (GCoE)

📆24 October

⏰2 – 3pm

The webinar is free to attend - full details & registration on our website 👇

https://t.co/Az0rbpjIJZ

Slides & recordings will be shared after!

#pwME #MECFS #MyalgicE #MEResearch

[DecodeME the ME/CFS Study @DecodeMEstudy]

@PSPForMECFS has just launched a researcher toolkit for #MECFS. ➡️ https://t.co/5N9GyilPx0

Here researchers can find funding opportunities, guides to embedding PPI, researcher application support & more.

[a_ryback @aryback4]

@cstroeckw @sjmnotes @weandmecfs @gabrielestroeck Thank you so much for reaching out Christoph, I'll certainly be in touch!

[a_ryback @aryback4]

Thank you so much @sjmnotes for writing about our project in your excellent blog. We really enjoyed discussing this work with you and will do everything we can to make it a success!

[DecodeME the ME/CFS Study @DecodeMEstudy]

With your help, #DecodeME has built the world’s largest data set on ME/CFS.

We are now welcoming data access applications from researchers who wish to use this in studies into ME/CFS and other diseases.

Find out more ➡️ https://t.co/sVd0sRIM5l

[a_ryback @aryback4]

@StylesSa191919 Thanks for your question and for sharing this study! We now have enough ME/CFS and healthy participants signed up for this study.

[a_ryback @aryback4]

We still urgently need 30 more healthy volunteers to carry out the study as planned. Please share with anyone eligible/who can spread the word in Sheffield! Volunteers get a £25 shopping voucher.

Thanks to all who signed up & shared so far, every sample makes a huge difference!

[a_ryback @aryback4]

@ThisisMEtweety Thanks for your question! We've hit our target for healthy volunteers, so we don't need any more new sign-ups at this stage.

[a_ryback @aryback4]

A huge thank you to everyone who spread the word and signed up! We now have enough potential healthy volunteers and we are working our way through the sign-ups we have not yet contacted.

[a_ryback @aryback4]

We believe we now have enough healthy participants and are stopping new invitations.

Thank you so much to everyone who spread the word and who took the time to sign up! Our small team is working through all of the sign ups so far.

We are really grateful for all your support!

[a_ryback @aryback4]

find out more here: https://t.co/Zb2O9V3NHA

#MECFS #Sheffield #MECFSresearch
Thanks again for spreading the word!
@sheffieldmefm @CGATist @actionforme @TomKindlon

[a_ryback @aryback4]

@ClagueNjc36 Thanks so much for your question! As well as our core hours (9:30-4), we can offer additional slots in the evenings in the week of Feb 19th. When they register, the study lead will contact them to arrange a time- we will do our best to accomodate participants' schedules.

[a_ryback @aryback4]

Female healthy participants needed for ME/CFS study in Sheffield!
Can you take part in our study as a healthy participant? Or if you're an ME/CFS patient, can you share this flyer with a friend (not blood related)?

Find out more at: https://t.co/Zb2O9V3NHA #MEResearch #MECFS

[a_ryback @aryback4]

can you share/re-tweet? Thanks! @CGATist @DecodeMEstudy @actionforme @sheffieldmefm @TomKindlon

[a_ryback @aryback4]

@DHSCgovuk Please also consider increasing funding for research into diseases that predominantly affect women: ME/CFS is the most severely underfunded female-biased disease (it receives 0.4 times the funding that it should based on its burden in terms of DALYs)

[DecodeME the ME/CFS Study @DecodeMEstudy]

A huge congratulations to Audrey Ryback who has been offered the very first Clare Francis Research Fellowship funded by @actionforme supervised by @CGATist 👏#MECFS