Aud Noble

TWITTER ROOKIE!!! Raising awareness of Relapsing #Neuroblastoma, a brutal Childhood Cancer 💛🎗

[Aud Noble @audnoble]

Some positive news during challenging times.
Here we are on a necessary/mandatory car journey for active cancer treatment in Edinburgh Sick Kids Hospital. @Kiranoble3 has just had amazing results

https://t.co/j6HaoVj5lP

#Lorlatinib #SolvingKidsCancer #Neuroblastoma

[Dr Scott Arthur MP (Edinburgh South West) 🌍🌈🌹 @DrScottArthurMP]

Today, I was honored to welcome Kira the Machine, her mother Aud, and Emily from @SKC_UK to my office to discuss my Rare Cancers Bill.

Kira, a remarkable young woman from Edinburgh South West, was diagnosed with aggressive neuroblastoma at age eleven, a tumour that was a staggering two litress in volume.

She has spent years in hospitals enduring gruelling treatments, including twenty rounds of chemotherapy and battling numerous relapses.

Now, thanks to the drug Lorlatinib, Kira is finally able to live a more normal life. This is a testament to her incredible resilience, her mother's unwavering support, the exceptional care at the Sick Kids Hospital, and the vital work of Solving Kids' Cancer.

Both Kira and Solving Kids' Cancer are strong advocates for my bill, which they hope will lead to improved treatments for neuroblastoma and all pediatric cancers.

[Aud Noble @audnoble]

@STVLaura @CaledonianNews Huge congratulations, @STVLaura 👏🏻🫶🏻❤️

[Aud Noble @audnoble]

@andyburns180 @SKC_UK Thank you for your kind words .
The camraderie & support between us , as parents in the world of childhood cancer, keeps us all buoyant 💛🎗️

[Solving Kids' Cancer UK 🎗 @SKC_UK]

We were honoured to be invited to the premiere of @CwC_UK's documentary, ‘Kids Like Us’, an incredibly moving film following eight children navigating life after a cancer diagnosis 💛

Kids Like Us raises important awareness of childhood cancer and you can watch now on @skytv.

[Solving Kids' Cancer UK 🎗 @SKC_UK]

Kira is 21 years old. She was diagnosed with cancer when she was 11 years old 🎗️

#KidsGetCancerToo #ChildhoodCancer #Neuroblastoma #ChildhoodCancerAwarenessMonth #CCAM #ChildhoodCancerResearch

[Aud Noble @audnoble]

@SimonMcCoyTV So incredibly sorry , @SimonMcCoyTV .
Sending our deepest condolences and our love ❤️

[Children’s Oncology Group @COGorg]

#COGFall2023Meeting is well underway with over 2000 childhood cancer experts meetings to discuss results of current trials and to plan future ones that will help advance outcomes & treatment in pediatric oncology.

[Solving Kids' Cancer UK 🎗 @SKC_UK]

We're very pleased to see that today, a debate on neuroblastoma was called in the @HouseofCommons by @Gibbo4Darlo.

We welcome the response from Health Minister @willquince, and hope to see action on the priorities areas he identified, including investment in research🎗️

[Nick Bird @adamsappeal]

Kicking off 2023 with a renewed call for the U.K. government to kickstart and lead a new era of transatlantic clinical research to help children with cancer 👇.

[Aud Noble @audnoble]

👏🏻👏🏻👏🏻💛🎗

[Flora Gentleman 🎗️ @FlorasFight]

We had the lovely @indigo_stafford visit us to talk about Flora's end of treatment bell ringing and our trips to New York City for Flora’s vaccine trial.

📺 Tune into @STVNews at 6pm tonight to watch the segment!

[Aud Noble @audnoble]

@FlorasFight So happy for you and your family, Flora 👏🏻💛

[Leona Knox🎗 @LeonaKnox]

We did this! 👇😊🎗️

[Aud Noble @audnoble]

Excellent piece @FlorasFight @imhopewebb 👏🏻❤️

[Flora Gentleman 🎗️ @FlorasFight]

We had @imhopewebb @BBCScotlandNews round this morning for a segment on how the cost of living crisis is affecting families in different situations.

Tune in to BBC Scotland at 9pm tonight and possibly BBC One Reporting Scotland at 6.30pm tonight.

[Leona Knox🎗 @LeonaKnox]

Prof Jan Molenaar on precision medicine approaches: “DNA analysis is done as standard in many countries, but the drugs used are still experimental - there is a lot of scientific work still to be done” #NPGS2022🎗

[Leona Knox🎗 @LeonaKnox]

“There is still a long way to go but our aim is to cure more children, cure them better, do less harm”
He highlights the TITAN study as an excellent example of compounds “moving upfront”, with lorlatinib being made available at diagnosis. Driven by parent-led charities! #NPGS2022

[Aud Noble @audnoble]

WOOHOOOOO!!! What an amazing & well deserved accolade 👏🏻🫶🏻.
You are also looking GORGEOUS ! 😍💗

[Laura Boyd @STVLaura]

Erm, I’ve just won Scottish Influencer of the Year @SCOTINFLUENCER ❤️😭 Beyond overwhelmed and thrilled. I would never consider myself an influencer but if my story of cancer or surrogacy influences or helps anyone, then it’s all worthwhile. ❤️ pic 📸@jenniferreoch ❤️

[Gail Jackson🎗️ @_GailJackson]

If you're a delivery company and care about making a difference to children diagnosed with cancer and their families, we need you! Looking for a generous delivery company to help distribute up to 100 support bags to children across UK and Ireland. Please share! @SKC_UK 💛🎗️

[Solving Kids' Cancer UK 🎗 @SKC_UK]

Huge thank you to our corporate partners who ran on behalf of @SKC_UK at the @RoyalParksHalf on Sunday @SumoDigitalLtd @iTechMediaLDN @NJCDNA @MarksSattin

Thank you so much for your support - you play such a key role in improving the lives of those affected by #neuroblastoma 💛

[Dreamflight Official @Dreamflight]

It's just ONE MORE SLEEP until Dreamflight 2022 and we can't wait!😁

Who's excited? We are! ✈️🎢

#Dreamflight2022

[Aud Noble @audnoble]

@SKC_UK @LeonaKnox @adamsappeal @NicSco @zoe44life 👏🏻🙌🏻💛🎗