Ben

Brain tumor survivor, Advocate, Pre-med college student, father of a sassy cat. Aspiring Pediatric Neuro-Oncologist.

[Ben @b3n4945]

I’m running the 2025 Medtronic Twin Cities 10-miler with the National Brain Tumor Society!

Check out Ben Kelly's fundraising page - https://t.co/vnOtZn9IsR

[Ben @b3n4945]

@hgainsboro @NBTStweets It was so amazing to meet you too!

[Ben @b3n4945]

I am grateful that I was able to #Head2Hill for the first time with @NBTStweets to urge congressional members to pass the #BRAINAct in efforts to cure brain tumors. #braintumorawarenessmonth

[Ben @b3n4945]

I’m proud to join @NBTSTweets and brain tumor advocates across the country in urging @Ilhan @SenAmyKlobuchar @SenTinaSmith to support stronger brain tumor research funding and patient-focused policies. The need is urgent. #Head2Hill #GoGrayInMay

[Ben @b3n4945]

I #GoGrayInMay to highlight and honor the importance of these resources in my journey, the families of cancer patients that I work with, and the patients I comfort through my volunteering.

[Ben @b3n4945]

Today is the first day of #BrainTumorAwarenessMonth! This year will be my first year traveling to D.C. for the National Brain Tumor Society’s #Head2Hill advocacy event.

[Ben @b3n4945]

Over this past year since my surgery, I have gained an enormous amount of appreciation for life and the people around me. I am elated to continue to enthusiastically advocate for advancements in research, clinical trials, and so much more in the fight for a #cure .

[National Brain Tumor Society @NBTStweets]

Today, we kick off #BrainTumorAwarenessMonth – a time to come together to support, empower, and amplify the voice of the #braintumor community.

Learn how you can #GoGrayInMay at https://t.co/Z36bJy3wJy 🩶

#BTAM #GrayMay

[National Brain Tumor Society @NBTStweets]

The NIH is the largest funder of brain tumor research in the world. Its grants and trials have supported many of the biggest advances ever made in brain tumor research and treatment.

Urge your members of Congress to support a high-functioning NIH: https://t.co/4RGsgbidrA

[Pediatric Brain Tumor Foundation @PBTF]

This evening, the @Celtics will take on the Houston Rockets for PBTF Night, dedicated to supporting kids w/ brain cancer & celebrating the legacy of Heather Walker.

Join us in supporting the team while supporting kids with brain cancer at https://t.co/4Kd6YHv56A.

[Ben @b3n4945]

@Ilhan @SenAmyKlobuchar @SenTinaSmith As an @NBTStweets advocate, I urge you to support the @NIH and @theNCI in FY25 Appropriations; the #AKACA; and Priority Review Vouchers through the FDA.

[Ben @b3n4945]

@Ilhan @SenAmyKlobuchar @SenTinaSmith As an @NBTStweets advocate, I urge you to show your support for the brain tumor community. Increase funding to @NIH and @theNCI in FY25, pass the Accelerating Kids' Access to Care Act, and support the BRAIN Act (H.R.9113/S.4739). Thank you!

[Ben @b3n4945]

Happy #InternationalBrainTumorAwarenessWeek ! From age 5 to 20, and counting, “Brian” the brain tumor has been quite persistent. Good thing I’m competitive when it comes to brain tumors in my head! #btsm #advocate

[Hydrocephalus Assoc. @HydroAssoc]

Today is World Spina Bifida & Hydrocephalus Day! This year’s theme, #BridgingGapsTogether, highlights the need to create an inclusive society that respects the rights of people with #spinabifida and #hydrocephalus (#SBH).
Learn More: https://t.co/RpqsrQAr6U
#WSBHD24

[Ben @b3n4945]

Happy #InvisibleDisabilityWeek Brain tumors may affect someone’s cognitive, physical, and mental health. Just because I’m 20 and “look able-bodied” doesn’t mean that I may need to ask to sit on public transit or need a computer included in my accommodations for college.
#btsm

[maria g castro @castro2355_mg]

How pediatric brain cancers remodel their epigenome. Uncovering novel therapies ⁦@umichneuro⁩ ⁦@UMneurosciences⁩ ⁦@UMRogelCancer⁩ ⁦@UMBiointerfaces⁩ ⁦⁦@PBTF⁩ ⁦@IansFriends⁩ ⁦⁦@NIH_NINDS⁩ ⁦@chadtough⁩ https://t.co/GwAwk6LXcX

[Ben @b3n4945]

What an amazing event! I had a great time at @theABTA BT5K Twin Cities a few weeks ago. I loved seeing everyone’s furry friends. I’m so proud of my team, we raised over $500! I can’t wait to come back next year - maybe I’ll bring even more people…watch out🥳
#btsm

[Ben @b3n4945]

This provides me, my circle of support, and team of doctors to have a plan if I have recurrence. #braintumor #biotesting #clinicaltrials #targetedtreatment

[Ben @b3n4945]

Check out these info-boxes by @NBTStweets that excellently explain the importance of bio marker testing in the diagnosis of brain tumors. As an #advocate and survivor, I’d like to share part of my story. I was diagnosed with NPH at 5 due to tectal glioma and had an ETV then.

[Ben @b3n4945]

This information was incredibly satisfying after 15 years of not knowing what mutations my tumor had. In this past year a drug has been approved for pediatric BRAF-altered low grade gliomas, with another drug following a few months after, because of well-run #ClinicalTrials