Dr Mary Ann Wilmarth

#BeKind #Empathy PtDrPtAdvocate #DPT #OA #PI #CVID #PsA #Sjogrens #Arthritis #Immune #Migraine #Colitis #Endo #Zebra IG: @Docmaw_co @SunSeekerMiMi3

[Dr Mary Ann Wilmarth @Back2backPT]

It’s #WorldArthritisDay
See descriptors for #arthritis
@creakyjoints
@back2backpt

[CreakyJoints.org @CreakyJoints]

It’s #WorldArthritisDay!

We asked, and you answered: Here is how our community from all over the world describes arthritis in one word 🌎🗣🤝

[Dr Mary Ann Wilmarth @Back2backPT]

@Divoti Hello,
I just received my medic alert bracelet. The information was correct, but the band was size 6 instead of 8.0. And I had ordered 2 of the 8.0 bands! The bracelet is useless to me like it is. I am not getting any help anywhere. Can you please assist me?
@Back2backPT

[Psoriasis and Psoriatic Arthritis Hub @psoriasis_hub]

CONGRESS #EULAR2023 | @AnneRegierer, @DRFZ_Berlin, discussed changes in clinical parameters in patients who received DMARDS with or without MTX. 901 pts received monotherapy and 403 pts revived combination therapy. Reasons to stop treatment were similar between the groups.

[Dr Mary Ann Wilmarth @Back2backPT]

Explore healthy bones tonight at 7:00pm EDT
#CreakyChats
with @Doctor_Deena @bonehealthBHOF @MigraineDisordr @PCFA @MSKAust @CreakyJointsAus
See you then 👍
@Back2backPT

[CreakyJoints.org @CreakyJoints]

TONIGHT! Set your #CreakyChats reminders 🚨

We'll be exploring healthy bones with an all-star lineup of guests. So join us and our friends @Doctor_Deena, @bonehealthBHOF, @MigraineDisordr, @PCFA, @MSKAust, AND @CreakyJointsAus tonight at 7:00 pm EDT.

[Dr Mary Ann Wilmarth @Back2backPT]

May is #ArthritisAwarenessMonth @CreakyJoints is spreading the message: “Be kind to your joints - and your mind.”
Absolutely‼️
@Back2backPT

[CreakyJoints.org @CreakyJoints]

It's #ArthritisAwarenessMonth! And over the next 31 days, we'll be highlighting the voices and feelings of our patient community. We invite you to help us in sharing your own experiences!

So join us this month, as we spread the message “Be kind to your joints – and your mind.”

[Dr Mary Ann Wilmarth @Back2backPT]

So true‼️ It’s not unusual to wait 3-6 months for specialty doctor appointments! 🤷‍♀️ As a person with #chronicillnesses this can be very problematic even with lots of planning. We need to work together to help solve #healthcare crisis in this country. @Back2backPT @CreakyJoints

[CreakyJoints.org @CreakyJoints]

If you’ve been waiting months for your next doctor’s appointment, you’re certainly not alone.

Discover why this is happening and what you can do to get in sooner:
https://t.co/iaqI27S6hz

[Lori Shemek, PhD @LoriShemek]

Alzheimer's is showing to be largely a lifestyle disease. A new study showing gut health may impact the potential of getting Alzheimer's. Sugar is now being shown to disrupt the highly important bacteria in our gut which governs hormones & more.

Alzheimer's is now being referred to as Type 3 Diabetes. When we eat sugar, we are feeding the unhealthy gut bacteria - creating an abundance of them leading to health issues down the road.

[Dr Mary Ann Wilmarth @Back2backPT]

@TheSeatedView Well, if you’re a ZEBRA too…🤦‍♀️🤷‍♀️… Makes sense for me, except I should be primarily 🦓 with a little 🐎 lol 😂🤣😂

[Dr Mary Ann Wilmarth @Back2backPT]

#familycaregivers 👍👍
@AARPadvocates
@Back2backPT

[AARP @AARP]

Family caregivers are the backbone of our long-term care system, and they are in desperate need of more support. We applaud today’s Executive Order recognizing the need to make family caregivers a national priority.

Full statement from @NancyLeaMond: https://t.co/eRTl1o8RuX

[Dr Mary Ann Wilmarth @Back2backPT]

A Second Act for a Type 1 Industry Veteran https://t.co/Xq4aFSN3zH via @diaTribeNews. Looking forward to seeing my cousin in his film #WhiskyFloats tonight @BostonInterFF

[Dr Mary Ann Wilmarth @Back2backPT]

@CreakyJoints Absolutely! Examples: I worked >35yrs in healthcare & teaching. Lectured 🌎&🏨w/ chronic #OA Happened 2see few of same MDs who respected “expert” me. Walked into room w/#chronic #autoimmune #patient me: Suddenly I’m invisible #gaslighting ‼️@back2backpt #creakychats @CreakyJoints

[Dr Mary Ann Wilmarth @Back2backPT]

@Doitwell01 @CreakyJoints Yes I do. I’ve done a fair bit of research and the doctors tend to come in with more of a bias towards women not being able to tolerate pain, which as we know, is not the case. We still have a long way to go…one step at a time👣
#creakychats

[Dr Mary Ann Wilmarth @Back2backPT]

Hi Everyone 👋 I’m checking in from the NE coast of MA🌊 It’s strange to say that I am excited about the topic of “medical gaslighting” but I think that it needs to be discussed and addressed as it happens far too often!
@Back2backPT
#creakychats
@CreakyJoints

[Dr Mary Ann Wilmarth @Back2backPT]

A4 You know your body best. Make sure to advocate for yourself. When you’re not feeling well it helps 2bring someone w/you 2help when you’re not at your strongest. If you have rare disease, it’s harder. Be prepared. You know a lot! 😊
@Back2backPT
#creakychats
@CreakyJoints

[Dr Mary Ann Wilmarth @Back2backPT]

A2 1/3 Frustrated is an understatement. My latest. Woke up w/excruciating L shld pn. Had to go to ED (2r/o❤️) which I avoid in part due2 #CVID #PI DX: immune deficiency+
No ❤️attack 👍Over wks: 2EDs, Ortho, Neuro, PCP, Dx imaging.
Cont…
@Back2backPT
#creakychats
@CreakyJoints

[Dr Mary Ann Wilmarth @Back2backPT]

A1 I’ve experienced medical #gaslighting start in 1980’s: MD’s didn’t have answers, for ex. w/ endometriosis 🤷‍♀️ In >recent years I’ve had MDs see Dx: chronic… & that’s enough to gaslight me 😱 even when I lectured for some of their 🏨B4!
@Back2backPT
#creakychats
@CreakyJoints

[Dr Mary Ann Wilmarth @Back2backPT]

Tomorrow Monday 03/27/23 7:00pm ET #CreakyChats on “Medical gaslighting”
Let me count the times🤦‍♀️ unfortunately‼️ Join us👍
@Back2backPT
@CreakyJoints
#gaslighting #medical #chronicillness
#RareDisease
#chronicpain

[CreakyJoints.org @CreakyJoints]

🗓️ MARK YOUR CALENDARS 🗓️

Join us on Monday March 27th, for a #CreakyChats community conversation all about "medical gaslighting." We'll be kicking things off at 7:00 pm ET. We hope to see you there!

[Dr Mary Ann Wilmarth @Back2backPT]

FDA releases new regs intended to help detect breast cancer sooner https://t.co/Zs9gY0XuAG Anyone have #densebreasttissue ❓ Add that to family history of #breastcancer & you may want to read‼️ @US_FDA

[Dr Mary Ann Wilmarth @Back2backPT]

Rare Disease Day🦓
•I support #RareDiseaseDay2023
•I live w/ #raredisease every day of my life.
•There are >than 7,000 rare diseases affecting Americans according 2 NIH
https://t.co/UwQYw3XySn
@Back2backPT
@nord_rare
@idfcommunity
@nihgov
#advocate
#lightupforrare
#Zebra

[Dr Mary Ann Wilmarth @Back2backPT]

I’ve had major problems w/ #autorefills I noticed pharmacy was calling my doctors 2refill without my permission‼️ The names weren’t even ones I knew‼️ I also moved & called many times to transfer script’s: pharm kept filling. DANGEROUS‼️ Makes Pt look bad in MD eyes2: lose trust!

[Sjogrens_Speaks @elisa_comer]

I'm gonna get real honest w/a msg to PBMs and any pharmacy that performs auto-refill of meds. (thread)

Auto-refills can be and are very dangerous. It's a reasonable assumption that if the pharmacy fills the med, it's b/c the pt should be taking it. This is especially .... (1/x)