Karen Ellis

Wife, mother of middle aged children, Gammy to 4!! MBC since November 2019 after 12 years with stage 1!!

[Karen Ellis @barteeellis]

I think I need to vent….Sorry in advance. Everytime I attend a Zoom support group it hits me in the face how many are on their 1st or 2nd line of treatment, usually and AI and CDK46 inhibitor like Ibrance etc. While I am happy for all the members who get a long time on their

[Karen Ellis @barteeellis]

@timeforAna I m so sorry Anna, you don't lose hair with enhertu..it thins a bit

[Karen Ellis @barteeellis]

@ehgkulow I know this is a shocker, I have been told similar prognosis but I am going to keep going till I not. 16 years is amazing and I would consider you onc to be one of the best.

[Karen Ellis @barteeellis]

@kierasmom @LibbyMbc @ThanksCancer So sorry

[Karen Ellis @barteeellis]

@itsnot_pink @jillfeldman4 @US_FDA @FDAOncology Me too

[Karen Ellis @barteeellis]

@thisdyinglife @ThanksCancer How fast things can go south

[Karen Ellis @barteeellis]

@ehgkulow You and i are in the same place, just started trodelvy (lots of side effects) and have to have WBR for brain mets, all came within the last 3 months, hope this new treatment does the trick

[Karen Ellis @barteeellis]

@LibbyMbc SOB got worst but it was vague not as bad as yours no o2

[Karen Ellis @barteeellis]

Scans where really bad, innumerable brain mets grew in 3 months; right Lung os a mess and liver grew and got another lesion
Duke wants me to do
Toldevey and whole brain radiation its my hail mary; I just did not get lucky.

[Karen Ellis @barteeellis]

I promised god and the u inverse I would give up sugar if my MRI and CT scans are ok this am. I love sugar. #scaredshitless #mbcdrama

[Karen Ellis @barteeellis]

@CBCjournal anything fot er that is endocrine resistant5?

[Karen Ellis @barteeellis]

@ehgkulow never heard of that treatment, I gone thru 8 treatments is it for her2?

[Karen Ellis @barteeellis]

@PTarantinoMD @JavierCortesMD Yes but does it work?

[Karen Ellis @barteeellis]

@bryanadams @deb_maes61 He was brilliant

[Karen Ellis @barteeellis]

@timeforAna I’m hanging in there, I get MRI of brain end of June at Duke to see if radiation https://t.co/7m80E7cBru place to be with brain mets…

[Karen Ellis @barteeellis]

@BethCioffoletti @mikejwhelan Wow 10.5 years, I only 4 years in and only on pills for 8 months. I. Er+ but resistant to endodrine therapies.

[Karen Ellis @barteeellis]

@jackieburnsg No you are not

[Karen Ellis @barteeellis]

@AMJohnston1315 @ehgkulow @JaniceTNBCmets @AmandaRaffenaud This has to stop at some point, we need better treatments.

[Paolo Tarantino @PTarantinoMD]

Elacestrant, alpelisib, capivasertib, everolimus, ribo maintenance. A rapidly expanding arsenal to fill the critical gap between CDK4/6-inh and chemo. Check our latest open access review, led by @abhenilmittal, for a deep dive into this evolving landscape!
https://t.co/Ba1fy5mREX

[Karen Ellis @barteeellis]

@drsarahsam It is such a tragedy and it is about the assault weapons. My daughter has lived in fear since Sandy Hook.