This Metastatic Life

Hoarding joy & time. Cancer devours both. Along with my organs, future, career pride, mobility, independence etc. Still here & trying!

[This Metastatic Life @thisdyinglife]

@LibbyMbc made this space better.
I guess I’m among countless strangers, who learned a lot from & truly admired her. She made her love for Violet so vivid, & helped me, by broaching thorny ‘sick/dying mom’ fears & issues. 🌺 #fuckcancer

[This Metastatic Life @thisdyinglife]

@wstrikzr Im just asking questions… 🤷🏼‍♀️

[This Metastatic Life @thisdyinglife]

@DanielG48332101 I mean look at this account 👀 The ratio of media in the timeline, of real video to cartoons, it’s hysterical! What’s wrong? REAL Trump v Kamala video not helping your agenda? You need crude, wishfully cruel cartoons to make your case? Have a real debate, we don’t bite.

[This Metastatic Life @thisdyinglife]

@DanielG48332101 Notice how most MAGA rely on FAKE, media, cartoon or AI memes, to ‘win’ points & push their views? Their effort to argue their ‘case’, to criticize the dems (or own the libtards), is so weak, they rely on a steady flood of this pathetic ‘snarky’ propaganda. /1

[This Metastatic Life @thisdyinglife]

@wstrikzr Wow how do you possess such shocking insights? That we sheeple don’t? Your Personal experience? Formal research? Your many past lives as a woman? do tell! Me more about how we women REALLY are… 😜

[This Metastatic Life @thisdyinglife]

@planetbrady @emilykmay Of course you did 😒

[This Metastatic Life @thisdyinglife]

@snoopsmom123 @johnrich 😟 Trump hates that song! Listen 👂 It’s about ‘loser’ soldiers with war injuries, who wants to sing about that, gross?!? Maybe Toby K has a more Trumpy song? “Worked with my racist daddy, to be a mean slumlord , grab 🐱, cheat, lie steal.. la da da… 🎶 Lyrics like that?

[This Metastatic Life @thisdyinglife]

@BethT79 I know much of that ‘overwhelming’ (to us) concern, is their sincere love & concern, combined with their own inexperience showing through- perspective from being on this side, knowing what does or doesn’t feel helpful. It’s stil so hard, & keeps being hard in new ways…

[This Metastatic Life @thisdyinglife]

@OrderGoodDeath Maybe us late stage #cancer patients can hang out there too, someday (kinda soon)? Maybe sims will help develop the next gen of death-friendly mental health care professionals, that many of us wish to encounter…

[This Metastatic Life @thisdyinglife]

@JJSingleton1 Why do I feel like the longer I survive as a cancer patient, the harder it gets for me to communicate effectively? To manage my relationships; my life or any of this…?

[This Metastatic Life @thisdyinglife]

@refugeingrief Great way to help cancer etc patients grieving their “coulda” life. But feel like gratitude is the only ok emotion to show. I am so grateful, I’m also grieving a different life. What a gift, to simply hear a person grappling with these issues. My sorrow & joy are both true.

[This Metastatic Life @thisdyinglife]

@ThanksCancer My cat knew (& tried alarming me) about my #coloncancer before anyone-even the many docs who sent me home with laxatives or yoga tips when my BAD abdominal pain landed me in their ER/urgent care etc. (But I was 2 young for cancer 🤷, they ordered mental health care, not scans!)

[This Metastatic Life @thisdyinglife]

@sheilamcronin @CancerFinalGirl I admire your courage and commitment! I agree we have to aggressively clear space, to protect any of ourselves from IT. But i also am trying to learn not to negative self talk, for just existing sometimes, be.. it also takes work, to rewire years of productivity thinking/living.

[This Metastatic Life @thisdyinglife]

@CancerFinalGirl @sheilamcronin No just not your thing and no way should you worry about it deserving your time. I hope (like me) you will have phases of feeling better (ups/downs) and something may inspire u- don’t force it and goodness no extra pressure on your self (lol I’m so bad at my own advice)

[This Metastatic Life @thisdyinglife]

@peachesvermont Miraculously, yes! Dif chemo, dif side fx now; but I was so grateful to heal from that one. It felt especially cruel, to become allergic to the sun & my favorite summer stuff/cancer distractions.

[This Metastatic Life @thisdyinglife]

ALSO #thisiswhatcancerlookslike Painful side fx of a previous chemo; extreme photo-sensitivity. Despite ‘suiting up’ (pic. r) anytime I stepped outside, rays of sun would filter through, igniting my face into searing hot blisters.
Solid chemo, tho. 4 stars

[This Metastatic Life @thisdyinglife]

@peachesvermont @ThanksCancer @nytimes Jennifer 44. #Stage4 #coloncancer. Several surgeries, 100 + rounds chemo. Outlived my original prognosis by 1+ year 🤩
Why did I keep much head hair? 🤷🏼‍♀️ We’re all unique! Different chemo cocktails & responses. #thisiswhatcancerlookslike

[This Metastatic Life @thisdyinglife]

@katievscancer …be suffering such profound loss of identity, purpose and value in the world, or even to their own loved ones, that they lose confidence & genuinely wonder about cost v benefit of trying to stick around

[This Metastatic Life @thisdyinglife]

@rhughesphd @Juliaswart3 @katievscancer Sure! link? 🤔 I only see how cancer patients ‘r ugly, annoy u by how we process…anyway u came to the ideal place to ask- community of empathetic folks Katie gathered; with her UNIQUE insights on cancer, clever thoughts that help me laugh, reframe shit, and feel less alone.

[This Metastatic Life @thisdyinglife]

Has anyone else been at this (#stage4cancer) so long, they get kinda excited about new urgent surgeries?

Surgery = Mandatory #chemo break
💃🏼 🪩 🕺 😎

Obvi I can take any break, anytime- but my courage to make my own life quality/quantity calculations, is shamefully flimsy.

[This Metastatic Life @thisdyinglife]

😂 YES!!! I BEGGED for screenings, was dismissed 1+ years bc I wasn’t ’old enough’ (39). It was much easier to send me home from er with laxatives and notes I was ‘hysterical’ bc I cried from the pain. That ended up being stage4 . Bc they… caught it late. If only I had ‘thoughr’ of early screening!?!?!

[This Metastatic Life @thisdyinglife]

…you just seek advice on practical logistics & questions with HUGE consequences for your future (and your kid). I agree recovery first! But you deserve to ask about the other areas too- your “problem” doesn’t negate your desire or ability to investigate and prepare for all u can. Please keep trying. Good luck ❤️/2

[This Metastatic Life @thisdyinglife]

@deorumdefectum Advice from others here (“just commit/it’s always some excuse/only treatment should matter now” etc) is kind & true. BUT a bit dismissive, of you as a whole, smart person. I read your posts as VERY sincere about recovery intentions/1