Bertha's Army

Bertha's Army currently raised £25,000+ for Better Life Appeal @AllWalesCF #UKhasKaftrio #CFMeds4The10%

[Bertha's Army @berthasarmy]

Such an exciting time for CF adults in Wales #betterlifeappeal 💚

[Bertha's Army @berthasarmy]

I transitioned to the All Wales CF Centre in 1999 when unbelievably you could still mingle with other CF patients. Times change and the new ward is finally here. I’ve loved being here today! My dodgy lungs had good timing for once🙃 @allwalescf @Health_Charity #betterlifeappeal

[Bertha's Army @berthasarmy]

Can anyone name me any Welsh Cystic Fibrosis charities/appeals? #CysticFibrosis

[Bertha's Army @berthasarmy]

CF WEEK 9-15 June!!
My tips for getting through a long hospital stay, add yours in the comments #CFweek

[Scope @scope]

The government has announced the most devastating cuts to disability benefits on record.

These plans should shame the government to its core.

Here's our initial response to the new Welfare Green Paper 🧵👇

[Bertha's Army @berthasarmy]

Wow, even now (5 years after I tried Kaftrio for the first time) this is so validating!! https://t.co/5Aqxi1MqRU

[Beth @short4nowt]

Any info at all please contact the police. South Wales Police Cardiff and the Vale

[Bertha's Army @berthasarmy]

😜#October #challenge #autumn #life #CF #CFproblems

[Bertha's Army @berthasarmy]

Good luck out there my friends!!!😉

[Bertha's Army @berthasarmy]

Wondering, with the growing popularity of well-being retreats are there any out there that specifically cater for those with chronic illnesses?
Perhaps there are charities that provide these but I’m not aware of any.
#wellbeing #retreat #chronicillness

[Bertha's Army @berthasarmy]

After taking part in the Kaftrio trial and experiencing the problems I did this absolutely terrified me. That young children would face such psychological problems due to the drug. A lot of tweaking needs to be done!

https://t.co/EV1ch7v4YZ

[Bertha's Army @berthasarmy]

I was gona finish #CFweek with something quite deep n poignant but I’m sorry I’m in a daft mood so instead… over n out for now💛

[Bertha's Army @berthasarmy]

A snippet of hospital stays & treatments. I tend to keep these events private at the time cos let’s face it’s not very glamorous or exciting is it. I always keep a photo diary so I can look back at the things I’ve overcome #CFweek #cfawareness
https://t.co/6xVHdW0SK9

[Bertha's Army @berthasarmy]

Despite my experience I can’t ignore the fact Kaftrio has changed many lives for the better which is wonderful.
That’s why we mustn’t forget the 10% that aren’t eligible. Everyone deserves the opportunity. Future research is vital
#CFMedsforthe10%
#CFWeek #CFAwareness

[Bertha's Army @berthasarmy]

If CF was a person they’d be a two-faced eejit. I feel like I lead a double life. Either frustratingly poorly or squeezing the fun out of life like my actual life depends on it (ironic).
These pics were taken last Sept just 14 days apart #CFweek #CFAwareness

[Bertha's Army @berthasarmy]

My friend spurred me on to start #skip4CF today. Skip for 11 minutes every day for four weeks to support those living with cystic fibrosis (CF).
Feel free to join in!!!
Your 11 minutes of skipping recognises the 11,000 people in the UK living with CF #CFAwareness #CFWeek

[Cystic Fibrosis Trust @cftrust]

🌟 Sometimes it’s not just about the skips, but the hops, trips, and slips along the way! 🌟
Whether it’s tangled ropes or the occasional stumble, our community knows how to keep bouncing back.
Thanks to our amazing staff for the skipping efforts! #Skip4CF

[Cystic Fibrosis Trust @cftrust]

🌟 Join us for CF Week from 17-23 June as we recognise 60 years of Cystic Fibrosis Trust! 🌟

Our Chief Executive, David Ramsden, invites the entire CF community to come together in marking this incredible milestone in his #CFWeek blog.

➡️ https://t.co/6F9g04EkpX

[Cystic Fibrosis Trust @cftrust]

Today we have released new data which shows almost 80 per cent of people with CF said their physical health had prevented them living life to the fullest over the last year, and a third worried about their health every day. (1/6)

[Cystic Fibrosis Trust @cftrust]

A message from our Chief Executive, David Ramsden, following our awareness campaign launch this morning.

Our website is up to date with the latest information on Creon, but please get in touch with your CF teams if you have any additional concerns.

➡️ https://t.co/i3zUSKVZEG

[Bertha's Army @berthasarmy]

@ginnymelons Some glorious examples🤯

[Bertha's Army @berthasarmy]

@ginnymelons I’ve been filling out questionnaires, making complaints and tweeting gov for years about my bad food experiences in hospital. Sadly nothing ever changes. I’m in Wales.