Top Tweets for #CFproblems
Looking at travel insurance for my trip to the states & get one quote for over £1300 for the 10 days then went to world first insurance who I used to use & its £216 for 1 year. Think I’ll go with that one 😂 #CFProblems
Hands up who ran out of drugs while away from home, 🙋🏻♂️. Thanks to the 111 website and a very nice pharmacist at @LloydsPharmacy in Longbridge I now have enough to see me through until I get home. #CFProblems
Daughter to optician: Mummy smokes her medication.
Me: umm. It’s not my appointment. But I can explain!
#cysticfibrosis #cfproblems @CFAware
Anyone else get the overwhelming urge to eat their lunch time sandwiches when they are making them at 7am?
No? Just me then.
#thanksTrikaftor #cysticfibrosis #cfproblems
2 hours, 12 phone calls & 1 email later safe to say #covid19 is ****ing things up across the #nhs
With a pre covid wait of 38+ weeks for one referral, god knows what that is now🤯 and a procedure that can’t even be done!😩 #CFproblems #chronicillness #invisibleillness #struggling
Name something more frustrating than running out of tokens when using the @Philips INEB
#CFProblems
#CysticFibrosis
#CF
Ive just come back from a 17 min appointment with my doc and that is my record for the shortest one ever! Never mind the hour and a half of driving to and fro -.- can #telemedicine be more accepted and used pls
asking for chronic patients around
#cfproblems #cysticfibrosis
Recommenced Cipro today after my DIOS symptoms have eased. Chest is absolutely in the bin though. Just got breathless walking 2 flights of stairs up to the loft. Not felt like that for a few years. #CFProblems
Cipro is kicking my ass. Gone from the trots to nausea and now vomiting. I get varying symptoms every time I take this drug. But it’s damn effective for my lungs, so I’ll continue to ride this wave. #CFProblems
Good lord my chest ain’t half feeling tight today 😖 #CFProblems
Oh how nice it must be to eat a meal without the fear of stomach pain, constipation or malabsorption🙄🙃
@CFAware @CF_dietitians
#CFproblems
#EatingwithCF
The only one good thing about not going to school... we dont have to get up at 5 to do meds before school 🙈 #cfproblems
Chest is tighter than a ducks arse atm. Repeated oral antibiotics within the last 4 months, why am I ignoring the signs. It’s time for some IVs me thinks. Second lot in 2 years, so not too bad. Better make that call tomorrow. #CFProblems
When your GP surgery refuse to give you your steroids even though you’re due to have them and you only have tomorrow’s dose left 😡 #CFProblems @CFAware #CysticFibrosis
That annoying feeling when someone says “I know how you feel” when coughing at work! Oh really.....you have CF too do you? #cfproblems #cflife #cysticfibrosis @cftrust
Right, off to clinic. Annual review results day and seeing the MSK about some persistent pain after exercising in my left thigh. Let’s go! #CFProblems
Don't you just hate it when you clearly haven't taken enough Creon...
#CF #CysticFibrosis #CFProblems
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