beth Vanstone

Podcast Producer @TheBonnellFoundation Liaison @UofT Pharmacology Dep Former Director @CFGetLoud , Advocate for Cystic Fibrosis and the rare disease community.

[beth Vanstone @bethdenniss]

Thank you Terry for recognizing ⁦@raredisorders⁩ and Madi and I for our efforts towards a #RDDS We appreciate your continued support and look forward to continuing our work together. #CdnPoli #Canada4Rare

[The Hospital for Sick Children (SickKids) @SickKidsNews]

SickKids is proud to be named one of the world's best children's hospitals!

For the 4️⃣th year in a row, SickKids is among the top in a @Newsweek ranking of hospitals that offer specialized care, based on a global survey of health-care professionals.

➡ https://t.co/5mXGusctP7

[beth Vanstone @bethdenniss]

We are experiencing the same challenges in Canada. It’s shameful patients should have the opportunity to trial.

Rare in Rare.

#dobetter #nooneleftbehind

[Partnership to Improve Patient Care (PIPC) @PIPCpatients]

New #CysticFibrosis therapies exist, but not all patients in France can access them due to restrictive mutation-specific policies. Why should life-saving treatments only benefit some? #ValueOurHealth #HealthEquity https://t.co/3hEYRTOGSM

[beth Vanstone @bethdenniss]

@WesternRare My daughter Madi and I are part of an exciting initiative working with the U of T pharmacology dept. Experiential learning. Luv what your podcast is doing to raise awareness for Rare Disease!

[beth Vanstone @bethdenniss]

Where’s the faucet? 😂

[Dean Blundell🇨🇦 @ItsDeanBlundell]

Spectacular.

Not sure how I missed Trump’s “Canada has a massive water faucet that I’ll make them turn on when I’m President” skit.

I think he’s referring to Niagara Falls. 😂
https://t.co/hN2T6MbLfs

[beth Vanstone @bethdenniss]

@stacey_wallen She didn’t tell anyone who to vote for, sooo get it right and shhhh 🙄

[CORD @raredisorders]

Registration Now Open! Apply for Scholarships & Book Your Hotel! Visit this link to register, secure your hotel room, and apply for scholarships!

https://t.co/b72BfYVaun

[beth Vanstone @bethdenniss]

This moment brought to you by gratitude. This morning I reached into my fridge grabbed the eggs, coffee and ketchup and paused to remember how lucky I am to have a full fridge. A moment of gratitude for the things we so often take for granted can provide peace.

[beth Vanstone @bethdenniss]

@KarluskaP I only needed to hear you speak to realize you are a Trumpster🙄😂

[beth Vanstone @bethdenniss]

@Maureenchats @CDA_AMC @dreyalcohen @OSSUtweets @INFORMRARE @IMPaCTrials @CochraneConsumr @McMasterForum @raredisorders @RareKidsCAN Congratulations Maureen! Wonderful recognition for your amazing contributions to the community 🥰

[beth Vanstone @bethdenniss]

@Maureenchats @CDA_AMC @dreyalcohen @OSSUtweets @INFORMRARE @IMPaCTrials @CochraneConsumr @McMasterForum @raredisorders @RareKidsCAN Congratulations Maureen! Well deserved 🥰

[beth Vanstone @bethdenniss]

@CDA_AMC Thanks for sharing!! I wish we could have attended!

[beth Vanstone @bethdenniss]

@billdempster @CDA_AMC I look forward to it.

[beth Vanstone @bethdenniss]

@Freshpet He just can’t get enough ! lol

[beth Vanstone @bethdenniss]

@Freshpet Harley aka Weiner was super excited to try #freshpet for small dogs today. He just can’t get enough! Wanted to let you know😂😂
#cutedog #goodfood #tastytreat

[beth Vanstone @bethdenniss]

@AreOhEssEyeEe Seriously, teachers don’t dictate when PA days land. Are you for real?

[Partnership to Improve Patient Care (PIPC) @PIPCpatients]

With the development of more metrics for #valueassessment, it's essential that policymakers and payers grasp the tradeoffs involved and focus on the needs of patients and individuals with disabilities. #HealthEquity #ValueOurHealth https://t.co/vUXJX4Mch0

[beth Vanstone @bethdenniss]

Never give up!!

[Avis Favaro @Avis_Favaro]

The power of parents - drug that Canadian father helped to create, now about to go into formal clinical trials for a rare neurological disorder called Spastic paraplegia 50 (SPG50) https://t.co/GuIf3NVA4O via @MailOnline

[beth Vanstone @bethdenniss]

@AlexpiersonAMP Heartbreaking! Don’t drink and drive, it’s not rocket science 🤬

[beth Vanstone @bethdenniss]

@KaidensCareKits @TSN_Sports Horrific 🥹

[Canadian Rare Disease Network (CRDN) @CanadianRDN]

Meet Daniel Kinchlea: A young champion of resilience

This #InternationalAutoinflammatoryAwarenessMonth, we celebrate the incredible journey of 10-year-old Daniel Kinchlea!

👉 Watch Daniel's inspiring story: https://t.co/dOkr3XLT3F