Birds for Sofia Foundation

a 501c3 on a mission to help children with rare diseases get access to life-saving treatments. Advocating for #Childrenofwar from #Ukraine

[Birds for Sofia Foundation @birdsforsofia]

Mariyka from #Ukraine has been taking #Trikafta for the 4th month. The family managed to buy this extremely expensive medicine themselves. There is no money for the next dose. Without it, Mariyka will die. @VertexPharma, provide an extra dose, save a Ukrainian girl's life🙏🇺🇦

[Vertex Save Us @VertexSaveUs]

ALL children & young people with #cysticfibrosis deserve to live, not just those in the richest nations. @VertexPharma must stop holding sick children in LMICs to ransom & get #Trikafta to all that need it. #CFWontWait #GlobalCFFamily #CFAwarenessMonth

[Birds for Sofia Foundation @birdsforsofia]

Please retweet and help us to save Andrey's life!

[Birds for Sofia Foundation @birdsforsofia]

The occupation of Bucha had a tragic effect on children with rare diseases. Andrey Rudenko was left without Evrisdi for his SMA,1 Andrey spent 11 days in shelled Bucha with no electricity and access to his breathing device @roche @rocheukraine we are asking for an emergency dose!

[Birds for Sofia Foundation @birdsforsofia]

The occupation of Bucha had a tragic effect on children with rare diseases. Andrey Rudenko was left without Evrisdi for his SMA,1 Andrey spent 11 days in shelled Bucha with no electricity and access to his breathing device @roche @rocheukraine we are asking for an emergency dose!

[Rare Disease Day @rarediseaseday]

Does your organisation support the rare disease community?

Register today as a Friend of #RareDiseaseDay and join a community of over 6000 organisations from all around the world!

👉 Register here: https://t.co/06MiVqXDgR

[Birds for Sofia Foundation @birdsforsofia]

@GudymaTetiana Thank you!

[Birds for Sofia Foundation @birdsforsofia]

Please sign this petition🙏 We are asking @NovartisGene to give #SMAchildrenofwar in #Ukraine Zolgensma free of charge. Each dose of Zolgensma costs unattainable 2M dollars.
These Ukrainian kids can be saved! Retweet please❤️https://t.co/0vhE8hAko4

[SMA Ireland @SMAIrelandCom]

Yuliya Matyushenko shelters with her mother from the ongoing fierce fighting in Kharkiv. Yuliya has the neuromuscular condition #SpinalMuscularAtrophy. @SMAIrelandCom and your Irish #SMA friends are with you all. #Ukraine #Innocents