#HuntingtonsDisease Community Advocate. Entrepreneur. Passion to Help Others. Founder @HD_Genetics & Co-F @hdyofeed Viau’s Are My Own. Tommie Hoops Fan
Hey @mplspiv forget the NIT, what about @TommieMBBall and @GopherSports just schedule a 1 game championship between schools? Host at either school, split revenue, invite all the recruits, start the tradition with “nothing” on the line.
@ranianasis@adamfeuerstein Perfectly said. People don’t realize this about HD community. Not calling the community weak, but totally at a disadvantage to be compared to DMD or CF or other rare conditions where you have two healthy parents able to fight!
@DesertDweller93 I believe it was. Other rare advocates outside of HD were in-person and seemed to have been invited. My guess is they invited a handful of rare advocates to join in person, but it wasn’t a “meeting”, it was a pre planned press event focusing on ultra rare conditions.