Barb

#myelomasurvivor #progressive lover of good humor, dogs and babies, friend of #BillW

[Barb @bkinoglu]

@PoleDoctress Put yourself in places where you might just meet a nice person by chance.

[Barb @bkinoglu]

@arthurjack Feeling the need to remind you, everyone has bad days. Accept and know that tomorrow will probably be better. Soon that interval will be longer, so that good days way out number the bad.

[Devin Duke @sirDukeDevin]

It's the truth 👏

[Morie Gertz @MorieGertz]

I was in notified by the same insurance company, Blue Cross and Blue Shield of Minnesota that the patient has to fail thalidomide first before receiving Len. So I am now in the year 2002 please RT this so executives at Blue Cross and Blue Shield. See what a bunch of morons they R

[Barb @bkinoglu]

@JoshuaRichterMD @Bethfaiman @IMFmyeloma @TerryGlassman @TischCancer What a very thoughtful gift for your speaker. You may have started a trend @TerryGlassman

[Barb @bkinoglu]

@cutiieepie6 Esther

[Barb @bkinoglu]

CIPN is such a big problem, and yet nothing seems to help much, and nothing seems to prevent it🫩

[Ramy Sedhom, MD, FASCO @ramsedhom]

Alliance Trial - duloxetine does not prevent oxaliplatin induced peripheral neuropathy
https://t.co/VETdlXjusJ

[Barb @bkinoglu]

I’ll get the Covid vaccine every time it’s offered.

[Atul Gawande @Atul_Gawande]

The report - that CDC leadership blocked after clearing scientific review - showed the COVID vaccine cut ER visits and hospitalizations for healthy adults by 1/2 last winter. It followed widely used methods, incl in a CDC flu report last week. @bylenasun https://t.co/AkMDVm6Umx

[Barb @bkinoglu]

@arthurjack I’ve often wondered if they’re our way of reminding ourselves what it was like. Sober for over 45 years and still have the occasional drinking dream. They always end with me in tears.

[Barb @bkinoglu]

@PaulSaxMD Thank you. I have NTM and bronchiectasis. I also have #myeloma , and the drugs for that cause a ⬇️ in wbc’s. Currently NED, but if it comes back, plan is to treat both so I don’t die of lung disease! Ugh, all those drugs will surely kill me.

[Barb @bkinoglu]

@HQNewsNow How much has he wasted already? More dumbf$&ckery from the chief of said dumb….

[Barb @bkinoglu]

Love these people. I hope our elected reps listened and learned.

[International Myeloma Foundation @IMFmyeloma]

Hill yeah, we advocate! Last week, the IMF brought patients & care partners to Capitol Hill for a Myeloma Action Month Hill Day. Advocates shared their stories and pushed for cancer drug parity, faster access to care, clinical trial access, & research funding. #MoreThanMyeloma

[Barb @bkinoglu]

@JeromeAdamsMD New septic system, $30,000.

[Barb @bkinoglu]

@MikeNellis I have zero understanding of this perverted form of “Christianity “. How can he read about Jesus, yet call for an innocents death?

[Becky Bosley @MidAtlanticMSG]

*prior authorizations, with the Improving Seniors Timely Access To Care Act
*promote clinical trials with the Clinical Trials Modernization Act
*oral parity through the Cancer Drug Parity Act
These will not only help the myeloma coMMunity, but the entire patient population.

[Becky Bosley @MidAtlanticMSG]

Day 27: Measurable Action!
Yesterday, the @IMFmyeloma #advocacy team brought 24 advocates to Capitol Hill to engage in 47 meetings with members of congress. Copying @RiottoMa words on patient voice in advocacy. What powerful action during this #MyelomaActionMonth !

[Barb @bkinoglu]

@MidAtlanticMSG @IMFmyeloma @RiottoMa My gosh I know so many of these rock stars! Thank you advocacy team!

[Barb @bkinoglu]

@Mr_Husky1 Buttocks became BUTROCKS. makes me laugh every time.

[Barb @bkinoglu]

@ArthurCaplan What?!

[Barb @bkinoglu]

@Matt_Pinner Yea, now I wonder about their parenting skills!