No one person or organization speaks for the whole #epilepsy community. Your story matters, as it might help others. Thank you for being here, supporting us, and sharing who you are. #EpilepsyAwareness
@BrainAblaze I have simple philosophy on caring for someone with a chronic illness. After caring for my mother for 11 years. It was a labor of love.
No one choses to have chronic illness and they are never a burden. They lean on you because they have to not because they want to.
When the chronic illness burnout hits, that inner critic loves to whisper that we are a burden. But itโs an absolute lie. Your value isn't defined by your #epilepsy, and the people around you would deeply miss your presence if you weren't here. #EpilepsyAwareness
Have you thought about reaching out to other people with #epilepsy to gleam ideas on how to thrive with our condition? Our virtual #epilepsy Support Group meets TOMORROW! #EpilepsyAwareness
Join in!
https://t.co/ht0ypS7DXz
Eating less processed food is a great goal, but #epilepsy cannot be managed by generic fitness "cures." Even a medical ketogenic diet requires strict supervision from a neurologist and a dietitian. Never stop your meds because an online guru suggested it. #EpilepsyAwareness
https://t.co/outsTeCW5I
We've been getting a lot of questions about peptides and #epilepsy. While natural brain peptides are being researched, commercial wellness peptides are highly unpredictable and could lower the seizure threshold. Talk to your doctor before making any decisions! #EpilepsyAwareness
Nothing about #epilepsy is simple, but is there some aspect of your adaptation to the condition you've made more complicated than it actually should have been? #EpilepsyAwareness
Living with #epilepsy often means playing an exhausting guessing game with one's own body. Is this wave of nausea a prodrome warning that a seizure is on the horizon, or did we just eat something that our body didn't like? #EpilepsyAwareness
#InternationalDayOfSelfCare reminds those that are living with #epilepsy that our health requires daily intentionality. -- What are some self-care routines you've adopted to maintain a high quality of life while smartly managing the risk of a seizure? #EpilepsyAwareness
The film โUnder the Lightsโ and Miles Levin are coming to DFW! Join us for advanced screening of the movie benefiting @PERCepilepsy#epilepsyawareness ๐
๐จ๐NEW BLOG POST๐๐จ
Mayo called to say my RNS was showing more seizures again This only confirmed why I havenโt been feeling well. So I couldnโt blame it all on menopause๐คฃ please share https://t.co/hDAdSa9ZYv ๐#TeamParmer#KeepFighting#EpilepsyAwareness
It's officially 100 days until National #Epilepsy Awareness Month (this November). -- Do you have suggestions on how people can get ready to celebrate or raise #EpilepsyAwareness during our month?