So many today say, " I took the Ice Bucket Challenge, & shockingly I got #ALS years later"
I was in perfect health @ 35 when my ALS nightmare began overnight.
Even after diagnosis, I couldn't imagine how EXTREME the suffering would become.
HEALTHY PUBLIC: ALS IS NOT RARE & the incidence is expected to ⬆️70% by 2040.
If you have military members in your family, there is even more reason to fear #ALS. They have a 2 to 10X greater risk depending on military occupation.
DON'T WAIT FOR ALS TO ENTER YOUR LIFE TO ACT.
#ALS has been marginalized by the FDA. More than anything we need people to contact your members of Congress & tell them to urge the FDA to exercise regulatory flexibility for 100% FATAL ALS.
Tell them to grant safe & effective #NUROWN Accelerated Approval.
Find your Congresspeople's phone number here:
https://t.co/fKgOVTZfkY
Go to the @iamalsorg website to get involved further. 🙏❤️
@RepAnnaEshoo @RepGuthrie@RepMikeQuigley@janschakowsky@lisamurkowski @SenatorBraun @rosadelauro@RepAndyHarrisMD
Chicago Mayor Lori Lightfoot lost her re-election bid, AP projects. The pandemic, spats with unions and a rise in crime caused her popularity to fall. https://t.co/urBjCzLjYh
@kelsieswrites You’re such a talented writer, @kelsieswrites sending you, @ChrisSnowCGY & your sweet kids my love & prayers 🙏🏻❤️ this disease is brutal- I wish we could say otherwise 💔
@Troy_W_Fields If there’s any silver lining, I think it makes the kids more compassionate & aware of those around them. I see it with my nephews daily who love to help their grandpa out (and still make memories in new ways) ❤️😊
@ScottFightsALS@JamieLW8 Sending your whole family love & prayers—keep staying strong & fighting this beast 💪🏻as others have pointed out, you can come off hospice ❤️
Dear @US_FDA,
Yesterday, 17 Americans passed away from ALS. To you, they are statistics. To the rest of the world, they are our friends and our family.
One of those who left us yesterday was @sandymorris333. You know her because she met with you twice since 2019.
And then there were 4.
We are the Truest Most Beautiful Love Story.
You won't 'move on' but you will move forward-w/all the love I was able to pour into your hearts w/the time allowed.
It was my privilege & honor being your mom.
Until we meet again my beloveds 💫
#MomIs#SandyIs
@stevens_nation@TODAYshow That’s incredible, so happy for you guys! 🙏🏻❤️ Been impossible for us to get it for my dad since he doesn’t qualify for any trials due to his age. It’s so disheartening how unattainable NurOwn still is when there’s evidence that it seems to work for most.
Our city is lost. It’s so sad. The damage that the @chicagosmayor administration and @KimFoxx office have done in just 2 years is monumental. It will take decades to repair.
Thanks for everybody’s concern that’s reached out. Tonight a car was stolen, driven recklessly down a major street, Wells, and crashed into our restaurant @UproarChi. Please pray for the 6 people taken to the hospital, 2 of our dedicated staff.