@CanadaforRare

Patients in Canada with rare diseases have worse access to essential medicines. Your voice is needed now to ensure Canada delivers in 2022.

[@CanadaforRare @canadaforrare]

📢@rarediseases community: #budget2022 didn’t mention Canada’s Rare Disease Drug Strategy. #SaveRareLives. Sign the petition to raise awareness w/ provincial & federal leaders to follow through on commitments to patients & families. https://t.co/9MrDS8g488 #Canada4Rare #cdnpoli

[@CanadaforRare @canadaforrare]

No mention of Canada’s Rare Disease Drug Strategy in #Budget2022?! Previous budgets committed $500M/yr starting 2022. Where is it? Sign @raredisorders petition to get #Ottawa to keep its promise & get provinces to act.
https://t.co/9MrDS7YtgA #SaveRareLives #Canada4Rare #cdnpoli

[@CanadaforRare @canadaforrare]

Fact: Ottawa promised $1B for Canada's 1st Rare Disease Drug Strategy by 2022. Provinces need to take the baton and get the money to the 3M people who need it. Learn how YOU can help #SaveRareLives: https://t.co/n0utWvzNQg #Canada4Rare #cdnpoli

[@CanadaforRare @canadaforrare]

Fact: One in 12 Canadians have serious, chronic conditions that are debilitating or life-threatening. Chances are you know someone with a rare disease. Will you give them 30 secs? Sign the petition & get elected officials to act.https://t.co/9MrDS8g488 #Canada4Rare #SaveRareLives

[@CanadaforRare @canadaforrare]

@celliottability: The federal government has committed $1 billion to set up Canada’s first rare disease drug strategy and promised to roll it out in 2022. What's @ONThealth doing? YOU have the 'ability' to act NOW. 🌟 https://t.co/n0utWvzNQg
#Canada4Rare #SaveRareLives #ONpoli

[@CanadaforRare @canadaforrare]

YOUR VOICE can help #SaveRareLives: SIGN the petition. Send a message to your MP & MPP. 3M people have a rare disease –it's a big community @raredisorders. Amplify it 🔊 to get the same treatment & medicines as common illnesses. https://t.co/9MrDS7YtgA
#Canada4Rare #healthequity

[CORD @raredisorders]

Your Voice is Needed Now to Help Save Rare Lives! @canadaforrare In just 5 seconds, you can help save the lives of Canadians living with rare diseases. Sign CORD petition. Send message to your government representative #Canada4Rare
https://t.co/KSdbWsDM4L

[@CanadaforRare @canadaforrare]

@MikeBarrettON & @DonDavies: Do you agree your postal code should NOT determine what kind of care or treatment you receive for a rare disease? Break down barriers to timely treatment & effective medicines for rare diseases. #Canada4Rare #SaveRareLives https://t.co/n0utWvzNQg

[@CanadaforRare @canadaforrare]

@GovCanHealth: Canada can learn from other jurisdictions when building our national rare disease framework – one that is unique, works for Canadians and prioritizes patients. @CFCanada @MetisNationBC @MetisNationON @CADTH_ACMTS https://t.co/n0utWvRpeQ
#Canada4Rare #SaveRareLives

[@CanadaforRare @canadaforrare]

@jyduclos: Looking forward to seeing strategy for rare diseases that was promised for 2022 in your mandate letter, "...proceeding with a national strategy on high-cost drugs for rare diseases."😍https://t.co/TpwYjdrSqU https://t.co/n0utWvRpeQ
#Canada4Rare #SaveRareLives #cdnpoli

[@CanadaforRare @canadaforrare]

📢Calling all Canadians: If you believe patients with a rare disease should get the same care & consideration as those with common illnesses – use YOUR voice to #SaveRareLives. Ottawa has the funding. Urge provinces to follow through: https://t.co/9MrDS8g488
#Canada4Rare #cdnpoli

[@CanadaforRare @canadaforrare]

Nearly 3 million Canadians will benefit from these new funds. Most are children who can live healthier & longer lives with timely diagnosis & specialty care. 📝SIGN THE PETITION to let your elected officials know they must #SaveRareLives NOW❗️
https://t.co/9MrDS7YtgA #Canada4Rare

[@CanadaforRare @canadaforrare]

The federal government has committed $1 billion to set up Canada’s first rare disease drug strategy and promised to roll it out this year. 💗 @raredisorders
#Canada4Rare #SaveRareLives

[@CanadaforRare @canadaforrare]

But after 2 years of planning there's no clear plan yet. Canadians suffering from rare diseases have poorer access to effective medicines and timely care than people with common conditions.❤️‍🩹Provinces need to step up. https://t.co/ZY0gDuga2o
#SaveRareLives #Canada4Rare

[@CanadaforRare @canadaforrare]

Save Rare Lives! Canada needs a national plan for rare diseases and the Canadian Organization for Rare Disorders (CORD) is calling all Canadians to send governments a message: It's time to act. Learn more: https://t.co/ZY0gDuga2o #SaveRareLives #Canada4Rare #Support

[@CanadaforRare @canadaforrare]

Did you know Patients in Canada with rare diseases have worse access to essential medicines than other patients?❤️‍🩹
YOU can change that NOW!
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Learn more:https://t.co/JmQoEISXHX
📝📨Sign the petition: https://t.co/9MrDS7YtgA
#Canada4Rare #SaveRareLives