@raisingbushs @MichaelOmbrello Hey, Dr. Ombrello — I’m going to be contacting Michelle soon, if you are still interested in our wonky #SJia and #Jia family. 🥴
If anyone can help this family with ideas as to how to get their child home (while meeting her extensive oxygen needs in a home setting), we would be grateful.
Affirmation: I notice my own healing. Other people notice my shifts. I am responding rather than reacting. I forgive me for my past. I am grateful for the new future I’m creating.
A few old fashioned things I still believe:
You can tell everything you need to know about a person by observing (1) how they treat service workers and (2) whether they put their shopping cart back.
(read on)
It was a nice break of 6 months of #SJIA symptoms and happiness of remission. But now my child is back to fighting an unrelenting disease. Surprised? No. Sad, yes. Such is the life of a refractory patient. #drugtrialdiary#update#pedsrheum#rheumtwitter
I had a miscarriage last night and the first thing I had to do was Google if I broke a law.
I didn’t even know I was pregnant. I was 8 days late.
Just, uh, sit with that for a second.
If you give me two more Democratic senators, and Democrats keep the House, I promise you we will codify Roe v. Wade.
We will once again make Roe the law of the land.
We will once again protect a woman’s right to choose.
Women's rights are human rights and human rights are women's rights.
An extreme wing of the Supreme Court may seek to deny that fundamental truth.
They may try to force their views on a country where 70% of people want Roe upheld.
We will not be quiet and we will not go back.
@Dallas_Holladay How did you a physician to OK to this protocol? 😭I’ve hat a BTL, cannot be on estrogen, but ‘too young’for a https://t.co/6BEKFdx3Ag doc has been pushing another IUD since my last child (4yo)and I cant get over the pain of previous insertions so instead, Ive dealt w severe pain
@FoodieScience@DrShannonSmith This makes me so PUMPED! I absolutely love Hunt, Gather, Parent. Has changed my household dynamic completely. I rec your book to all my friends!
SJIA Foundation is excited to receive a 3rd yr of funding from CZI Rare as One. Grateful to be part of this invaluable network
#RareAsOne is a quiet revolution in how science happens for rare diseases. When its impacted patients who drive the research ques
#curesjia