Catherine Martin

sarcastic, opinionated, respectful and ironic.

[Fondazione LIRH @LirhOnlus]

Roche announced a phase II study with #tominersen. Do we know enough? Our call for a full #transparency for the sake of #huntingtondisease #patients
https://t.co/ZNG6xbjPc6
@EuroHuntington @EHDN_News @hdyo @HDSA @HDA_tweeting @Roche @HuntingtonSG @huntingtonNSW @huntingtonSC

[HDYO @HDYOFeed]

Funds raised support our Virtual Congress, JOIN-HD Registry, Research Update Series, Youth Mentorship program and much more all aimed to support, educate and empower young people in the HD community. #caregiver #givingback #impact #raredisease @Srotberg15 @BJsView @AwarenessHD

[BJ Viau @BJsView]

If you have one or a million Pennys, please consider making a donation to @HDYOFeed today on #GivingTuesday . An organization that is doing great work to support young people impacted by a crappy condition! #HuntingtonsDisease

[Factor-H @FactorH_LatAm]

Today is #GivingTuesday, a global day of generosity and social change and together we can do
even more to help at-risk HD children.
Help us reach our goal of $50,000 to assist the close to 400 at-risk children in Colombia and Venezuela becoming a sustaining patron at $25 monthly

[Catherine Martin @cat9878]

@Srotberg15 @BJsView @jcarroll42 @laurencurehd @ProfEdWild @doc4hd Patient and family engagement needs to be re thought. Loose the barriers, let the families and patients be the Key Opinion Leaders with the same level of respect as the HCPs. Families spend a life time living with HD every day. Their perspective is 360

[Catherine Martin @cat9878]

@Srotberg15 @BJsView @jcarroll42 @laurencurehd @ProfEdWild @doc4hd I think one of the fundamental issues is that the patient perspective is missing and completely under valued in HD research. The same voices mostly from the same demographic are used. There is no meaningful or real consultation with families. We need to break the mold

[Catherine Martin @cat9878]

@BJsView @Srotberg15 @jcarroll42 @laurencurehd @ProfEdWild @doc4hd I still like the idea a young person had about finding the positive about HD. It was a start line of I'm HD positive because....

[Paul Champ @PaulChampLaw]

Because of my job, I’m speaking to a lot of people opposed to vaccination requirements at work. One argument I hear is, well, vaccinated people can get COVID too. Statistically, that’s like saying sober people get in car accidents too, so there’s nothing wrong if I drive drunk.

[Jude Rogers 💙 @juderogers]

Twitter! Quite a busy night ahead here. At 7.30 I'm interviewing *massive breath* @MarianKeyes (!) & @cbrookmyre (!) for @homewith4indies - lots of people coming already but do come and join us. Bonus points: you can all see my new haircut #wales

[HD Genetics @HD_Genetics]

Everyone needs a first tweet. I guess this is ours. Hello everyone in the #huntingtonsdisease community! We look forward to listening, learning and sharing updates and twitter worthy news with you all.

[Rare Disease UK @rarediseaseuk]

⭐️Star in our upcoming #rarediseaseday2021 video! We’re looking for people with #rareconditions and their families, friends, carers to share any video footage they might have - no matter how big or small!
Find out more here: https://t.co/csDU22Ae8F

[Dr Lauren Byrne @LaurenByrne7337]

I am delighted to announce the publication of our latest #teamwild paper, "Mutant huntingtin and neurofilament light have distinct longitudinal dynamics in #Huntingtonsdisease" Rodrigues/Byrne et al 2020 in @ScienceTM:
https://t.co/hDcLZKESDw
#HDResearch

[Catherine Martin @cat9878]

I have a huge amount of admiration for Michael J Fox. He is such an amazing ambassador of hope, positivity and for embracing each and every moment

[BBC Breakfast @BBCBreakfast]

“Going to the bathroom...It’s life or death - it’s really risky”
On #BBCBreakfast Michael J Fox explains the dangers of everyday life living with Parkinson’s.
Watch the full interview: https://t.co/mdXNnRMN4B

[Catherine Martin @cat9878]

@BJsView Way to nail the cheering up Jett

[Catherine Martin @cat9878]

@DierksBentley @SevenPeaksFest @Loxyduc @jaclynskinnnner this time last year ladies

[Factor-H @FactorH_LatAm]

Our #ProjectAbrazos aims to assist approximately 140 children at-risk for HD and living in poverty in Colombia and Venezuela. We are currently seeking funding to expand a remote learning project so these children can stay on track with their learning during the pandemic. 📚 🧡

[Suzanne Zeedyk @suzannezeedyk]

"Neuroscientists [had] tended to view attachment theory as [merely] suggestive and thought-provoking work within the “soft science” of psychology....In 1998, images from Romanian orphanages changed the course of the study of attachment." Note: ONLY 1998. https://t.co/6Eb1IoD9Cl

[Suzanne Zeedyk @suzannezeedyk]

I keep retweeting every one of these positive moments, because they generate hope -- and that is the vantage point from which to fight fear & injustice. Hope is what helps you keep going.

[Serena Williams @serenawilliams]

“Don’t pretend there’s not a problem in America.” @Nike