CathBeyondStage4

Lung cancer survivor, Chair at ROS1ders UK Charity, SAP Solution Architect in past life, mum, dogmum, Animal lover

[CathBeyondStage4 @CatherineSap]

A glimpse of our first national conference ❤️

[ROS1DERS UK Charity @ros1dersuk]

Two unforgettable days at the ROS1ders UK National Conference 2026.

The conversations, the connections, the expertise and, most importantly, the people who made it all happen.

#ROS1 #ROS1dersuk #LungCancerCommunity #NationalConference2026 #rarecancer

[ROS1DERS UK Charity @ros1dersuk]

Appointments can go by in a blur.

Save this list and take it with you, or share it with someone newly diagnosed with ROS1-positive lung cancer. Have a question we missed? Tell us below.

For information only, not medical advice. Please speak to your own care team.

#ROS1 #Rarecancer #LungCancerAwareness #QuestionsToAsk #stage4cancer

[ROS1DERS UK Charity @ros1dersuk]

Rare doesn't mean alone. 🫁

Swipe through the basics of ROS1-positive lung cancer and share with someone who might need it.

https://t.co/Yoohg3TpNX

#ROS1 #rarecancer #LungCancerAwareness #biomarkertesting #TargetedTherapy

[ROS1DERS UK Charity @ros1dersuk]

Infections are an often-overlooked cause of some cancers.

Recent research by the @IARCWHO highlights the importance of infection prevention in reducing the global cancer burden.

The main takeaway is that prevention matters - vaccination, screening, early detection, and access to treatment are all key.

#CancerAwareness #CancerResearch #ROS1 #CancerCommunity #RareCancer

[CathBeyondStage4 @CatherineSap]

@peta There is no dearth of idiots in this world!!

[CathBeyondStage4 @CatherineSap]

“Our voice matters.” Wise words from one of the world’s leading oncologists. @DrSanjayPopat @Roy_Castle_Lung #ros1

[CathBeyondStage4 @CatherineSap]

“Our voice matters.” Wise words from one of the world’s leading oncologists. @DrSanjayPopat @Roy_Castle_Lung #ros1

[ROS1DERS UK Charity @ros1dersuk]

“Together, you are a powerful community, and you must use your voice.”

Professor Sanjay Popat, a leading UK oncologist specialising in thoracic and lung cancer, reminded attendees at the @ros1dersuk Cancer National Conference 2026 why communities like ours matter.

For people affected by a rare cancer like ROS1-positive lung cancer, coming together means more than support; it means having a collective voice that can be heard.

#ROS1 #LungCancer #PatientAdvocacy #LungCancerAwareness #RareCancer

[ROS1DERS UK Charity @ros1dersuk]

Two unforgettable days at the ROS1ders UK National Conference 2026.

The conversations, the connections, the expertise and, most importantly, the people who made it all happen.

#ROS1 #ROS1dersuk #LungCancerCommunity #NationalConference2026 #rarecancer

[CathBeyondStage4 @CatherineSap]

@TheDogMother_ सच में गवार लोग हैं !!

[CathBeyondStage4 @CatherineSap]

So nice to meet other ROS1ders UK

[ROS1DERS UK Charity @ros1dersuk]

Day 2 of the @ros1dersuk National Conference 2026 featured candid discussions on clinical trials, treatment options, and strategies for living well with ROS1+. Attendees gained invaluable insights from the nurses and doctors who support us every day.

We sincerely thank 🙏 every patient and caregiver who joined us for another full day of learning, asking questions, and supporting one another. This community truly makes it all worthwhile.✨

#ROS1 #LungCancerAwareness #RareCancer #PatientAdvocacy #CancerCommunity #NationalConference2026

[CathBeyondStage4 @CatherineSap]

One of the most special moments for ROS1ders UK charity

[ROS1DERS UK Charity @ros1dersuk]

Day 2 of the @ros1dersuk National Conference 2026 featured candid discussions on clinical trials, treatment options, and strategies for living well with ROS1+. Attendees gained invaluable insights from the nurses and doctors who support us every day.

We sincerely thank 🙏 every patient and caregiver who joined us for another full day of learning, asking questions, and supporting one another. This community truly makes it all worthwhile.✨

#ROS1 #LungCancerAwareness #RareCancer #PatientAdvocacy #CancerCommunity #NationalConference2026

[CathBeyondStage4 @CatherineSap]

ROS1ders UK First National conference will always be special to me getting to hear from some of the top healthcare professionals and meeting with the vibrant ROS1 community🩷

[ROS1DERS UK Charity @ros1dersuk]

Thank you 🤝 to everyone who joined us at the @ros1dersuk National Conference 2026! We shared expert sessions on the ROS1 patient journey, a keynote on Young Lung Cancer, and an evening of connection at our welcome drinks & Gala Dinner.

Here's Day 1 for you, and more highlights are coming soon. ✨

#ROS1 #LungCancerAwareness #RareCancer #NationalConference2026 #PatientAdvocacy

[CathBeyondStage4 @CatherineSap]

Day 1 @IASLC #lungcancer #2026

[ROS1DERS UK Charity @ros1dersuk]

Day 1 highlights from #WCLC2026 in Seoul 🇰🇷!

#lungcancerawareness #PatientAdvocacy #ROS1 #lcsm

[CathBeyondStage4 @CatherineSap]

Day 1 @IASLC loved the spirit 💕

[ROS1DERS UK Charity @ros1dersuk]

🇰🇷 Day one at the #WCLC2026 in Seoul, proudly representing @ros1dersuk.

Already learned so much and am mapping out how it connects back to our mission of supporting the ROS1+ community in the UK. Also loved connecting with fellow advocates, researchers, and clinicians along the way; such valuable conversations.

More updates to come as the conference continues.

#LungCancer #PatientAdvocacy #ROS1 #LCSM

[ROS1DERS UK Charity @ros1dersuk]

Huge thanks to our supporter Nadia, who's running the @London10K on September 27th with her friend Anya, in support of ROS1ders UK. 🏃‍♀️🏃‍♀️

After her mum's ROS1+ diagnosis in December 2023, Nadia found a lifeline in our community, and now she's giving back by raising funds for research, education, and support for patients and carers facing this rare diagnosis.

Nadia and Anya have already hit 50% of their fundraising target! Let's help them get the rest of the way before marathon day!

Donate here: https://t.co/p1mqho42YL

Thank you, Nadia and Anya, for running AND fundraising for our community. Let's finish this together.

#ROS1 #VitalityLondon10k #rarecancer #fundraise #lungcancerawareness

[CathBeyondStage4 @CatherineSap]

A daughter is often her mother’s best friend and Nadia truly proves it! @genevievenimo @ros1dersuk @_rarecancer @London10K #lungcancer

[ROS1DERS UK Charity @ros1dersuk]

Some people run for a finish line.🏁
Some run for someone they love.❤️

Nadia Angela Bekhti and her friend are taking on the @London10K in honour of Nadia’s mum, Genevieve — a Stage 4 cancer survivor.

Now, we’re looking for more people to join us and run for someone who matters to them.

🏃 10K. One purpose. A meaningful difference.

Want to run with us? Get in touch [email protected]

#ROS1dersUK #VitalityLondon10k #ROS1 #rarecancer #lungcancerawareness

[ROS1DERS UK Charity @ros1dersuk]

🏃‍♂️ 🏃‍♀️ Could you run 10K for ROS1ders UK?

We’re looking for runners to join us at the Vitality London City 10,000 and turn every kilometre into support for people affected by ROS1+ cancer

Places are limited, so if you’re interested in running with us, get in touch with Julia at [email protected].

#VitalityLondon10000 #ROS1Cancer #LungCancerAwareness #RunForACause #CancerCommunity

[ROS1DERS UK Charity @ros1dersuk]

Trying the gratitude list trend in @ros1dersuk edition. What are you grateful for today?

Ours includes every extra scan that catches it early. Tag someone who needs the reminder that small, ordinary things matter.

https://t.co/Q63Ku93dnF

#ROS1 #LungCancerAwareness #RareCancer #Gratefullist #UKCharity

[ROS1DERS UK Charity @ros1dersuk]

Targeted therapy treats ROS1-positive lung cancer. But how patients live alongside it matters too.

Movement. Nutrition. Community. Speaking up early with your care team. Small, consistent habits that support the harder work the treatment is doing.

Swipe through for what we mean.

#ROS1 #LungCancerAwareness #PatientAdvocacy #cancer

[CathBeyondStage4 @CatherineSap]

Run for this fabulous charity @ros1dersuk to support rare lung cancer patients and caregivers 🩷

[ROS1DERS UK Charity @ros1dersuk]

🏃‍♀️🏃 Runners wanted! 🏃🏃‍♂️

Ever fancied running 10K through the heart of London for a cause that really matters? We've secured places in the @London10K; join Team @ros1dersuk and help us breathe fresh air into our mission!

📅 Event: @London10K, 27th Sep 2026
⚠️ Limited spots - first come, first served!

Interested? Email at [email protected]

Let's cross that finish line outside Buckingham Palace together for lungs. 🫁

#LondonMarathon #Runforlungs #VitalityLondon #Ros1 #Lungcancerawareness