Our first study based off of our online survey of #LongCovid patients last Fall is now published.
We document the language of gaslighting used to describe experiences of dismissal from doctors, prolonged diagnostic odysseys, and the lack of treatment.
https://t.co/uP9gQwGVj9
Sharing our new essay, with Gil Eyal and Cristian Capotescu, on "Trust is a Verb!: A Critical Reconstruction of the Sociological Theory of Trust" 🤝
Published with commentaries from Elena Esposito and Guido Möllering and our response in @sociologica_
https://t.co/rxZQLoD70O
Our research group received a Democracy, Governance & Trust Grant from the Trans‑Atlantic Platform for Social Sciences and Humanities: “Emergent Diseases, Patient Activism, and the Co‑Production of Expertise and Democracy in Three Countries” for $660,780
https://t.co/atWapAeMRR
Our new Long Covid research team paper compares the politics of naming post-Covid symptoms in the United States, China, and Brazil published in the inaugural issue of Ciencia, Público y Sociedad (Science, Public and Society)!
Translated Spanish version:
https://t.co/Xv0gQ72euW
Our new article on "How People Decide to Trust in Science" (with Cristian Capotescu, Gil Eyal, and Sophie Sharp) is out in the new issue of @AmSciMag!
Love the accompanying illustrations.
Link 🔗: https://t.co/6tjx2oJ4iR
Second, on Sat, a paper from the @CATSprojectCU team on Long Covid in China and changing public health guidance, on a panel on the “social aspects of the COVID-19 crisis”. Looking forward to learning from these studies!
2/2
Watch the latest @ProjectECHO Long COVID webinar with @patientled & @MEActNet to learn about new findings, diagnostics, treatments options, recovery timelines, policy actions, and much more. This is a must-watch for patients and providers!
https://t.co/k5UpzrN2sM
Thrilled to see our commentary just published in @tandfonline's Global Health Action! Another great outcome resulting from our 🇺🇸��🇷 partnership, @CATSprojectCU, based at @INCITE_Columbia and led by my brilliant colleague, @larryau 🌎
Our commentary on Long Covid as a global health problem, drawing on our research in the U.S. and Brazil now online @CATSprojectCU!
Thank you @leonnelrg and the editors and peer reviewers at Global Health Action.
Open Access here: https://t.co/FiuJ0fwcRQ
*virtual event* Excited for 'author meets critics' event with @SASE_Meeting on July 11 (Tuesday). Also a great panel + papers pre-ceding the book event. Check it out 👇👇👇
➡️ Register for the Zoom link in the program: https://t.co/vDyXvqegT6 cc: @larryau@bmohunter@alya_gu
We're kicking off #SASE2023 virtually in two weeks! Come by our two sessions from MC 6: A Future for Health on July 11 (Tues) starting at 10 am EDT/4 pm CET.
➡️ Register for the Zoom link in the program: https://t.co/z9mB9OyaP2
Register for the Launch Event for the Trust Collaboratory on April 20 (Thursday), 2023. Free, hybrid, open to the public.
Feat. Harry Collins, Andrew Lakoff, E. Summerson Carr, Paul Starr, Eleanor Townsley, Frank Pasquale, and more!
https://t.co/mMEyhTBISN
NBC News: 'Long Covid patients face medical debt after insurance denies claims'
'Millions in the U.S. are out of work because of severe long Covid symptoms, and many are struggling to pay their medical bills. Here's how to navigate insurance coverage.'
https://t.co/RBLodbPPJy
Fascinating article on rural health and #LongCovid: "Perspectives on the Long of COVID: From Doomscrolling to Rural Management Strategies" in The Rural Monitor
Cites our work on Long Covid and difficulties in establishing a diagnosis!
https://t.co/TdTh12KT3T
The gaslighting rhetoric that Long Covid patients mobilize is a form of “ontological politics" -- Patients contest the ontological status assigned to their symptoms and elevate individual troubles into collective contention. https://t.co/RiTV3EeD1E
Long Covid patients accuse their doctors of gaslighting, saying doctors deny their version of reality and ignore their symptoms and complaints, attributing the symptoms to anxiety or outright malingering and doing little to help alleviate their suffering. https://t.co/ZHV5AGzEvV