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CDKL5-NL
@cdkl5_nl
Joined April 2015
3
Following
52
Followers
10
Posts
CDKL5-NL
@cdkl5_nl
over 10 years ago
Interessant artikel met nieuwe resultaten van een CDKL5 studie. Document dat je kunt downloaden is in het Engels. https://t.co/lM1OtTApQm
cdkl5_nl
retweeted
CDKL5 - IFCR
@CDKL5_IFCR
over 10 years ago
2016 CDKL5 Family Conference Scholarship information is now available! IFCR will award a limited number of... https://t.co/YxvBLd9IMn
cdkl5_nl
retweeted
Cure CDKL5
@CDKL5UK
over 10 years ago
Great article written by Martyn Newey our medical trustee about current and potential treatments for CDKL5 disorder https://t.co/CPi0DN65d4
CDKL5-NL
@cdkl5_nl
almost 11 years ago
Derde Europese CDKL5 conferentie, 2 en 3 juni 2016, in the UK. Meer info op https://t.co/WZOwmHgwpg
Who to follow
Ron Ralston
@chewyralston
I'm living in a real life reality show w/ a beautiful family. Cheers! C-Town, OSU and Heels Fan. Dad of daughter with CDKL5. Opinions are my own. 🇺🇸 ⛳️
ASOCIACIÓN CDKL5
@cdkl5spain
Asociación de Afectados por la mutación del gen CDKL5 o Síndrome de Deficiencia CDKL5 (CDD) en España.
Shelley Ashton
@ShelleyAshton2
Proud mum of 2 and passionate advocater for my daughter with CDKL5, determined that she won't be invisible. Trustee of @cdkl5uk. Views are my own.
CDKL5-NL
@cdkl5_nl
almost 11 years ago
Meer details over de tweede CDKL5 Nederland bijeenkomst, https://t.co/tC7KPhJkvg
CDKL5-NL
@cdkl5_nl
over 11 years ago
Juni is de internationale CDKL5 awareness maand, 17 juni de internationale CDKL5 awareness dag. http://t.co/ymElk3IZwb
cdkl5_nl
retweeted
CDKL5 Canada
@CDKL5Cad
over 11 years ago
@cdkl5_nl
we really like your logo.
cdkl5_nl
retweeted
CDKL5 - IFCR
@CDKL5_IFCR
over 11 years ago
We are wrapping up a fantastic webinar on CVI, presented by Ellen Cadigan Mazel, M.Ed. CTVI, Cortical Visual... http://t.co/cr5ODxlGAO
CDKL5-NL
@cdkl5_nl
over 11 years ago
De website van de Nederlandse CDKL5 community is live, http://t.co/FzVvgbCD6N. Nog lang niet compleet. We horen graag reacties.
CDKL5-NL
@cdkl5_nl
over 11 years ago
De website voor de Nederlandse CDKL5 community is bijna gereed. Dit weekend gaan we live. http://t.co/FzVvgbCD6N
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