CF Srbija

Udruženje za pomoć i podršku osobama sa cističnom fibrozom Srbije

[CF Srbija @cfsrbija]

Olivera zaslužuje da radi kao sve zdrave osobe, bez diskriminacije i čestih bolovanja. Ona i saborci žele da budu društveno korisni i to im treba omogućiti.
Naši životi su sada u rukama institucija i očekujemo pozitivan ishod da zajedno pobedimo cističnu fibrozu!
#HocemoTrikaftu

[CF Srbija @cfsrbija]

Ovo je priča o Sari, ali i priča o životu i svakodnevnoj borbi obolelih od CISTIČNE FIBROZE.
TRIKAFTA je inovativni lek za osobe koje boluju od ove retke bolesti.
https://t.co/hbVw9c1Rw2
#HocemoTrikaftu #CFSrbija #WeWantTrikafta

[CF Srbija @cfsrbija]

TRIKAFTA je inovativni lek koji omogućava osobama obolelim od CISTIČNE FIBROZE, da šaku lekova, 5 posebnih antibiotskih inahalcija, venske terapije, svakodnevnu fizikalnu terapiju, zamene sa nekoliko tableta dnevno i žive kao i svi drugi zdravi ljudi.
#HocemoTrikaftu

[CF Srbija @cfsrbija]

https://t.co/U9aEXs2e8a
#HocemoTrikaftu

[CF Srbija @cfsrbija]

https://t.co/91hzrb405V
#HocemoTrikaftu

[CF Srbija @cfsrbija]

TRIKAFTA je inovativni lek koji omogućava osobama obolelim od CISTIČNE FIBROZE, da šaku lekova, 5 posebnih antibiotskih inahalcija, česte venske terapije, svakodnevnu fizikalnu terapiju, zamene sa nekoliko tableta dnevno i žive kao i svi drugi zdravi ljudi.
#HocemoTrikaftu

[CF Srbija @cfsrbija]

Ovo je priča o Nini, ali i priča o životu i svakodnevnoj borbi obolelih od CISTIČNE FIBROZE.
TRIKAFTA je inovativni lek za osobe koje boluju od ove retke bolesti.
https://t.co/mMOaglUey4
#HocemoTrikaftu #CFSrbija #WeWantTrikafta

[CF Srbija @cfsrbija]

Ovo je priča o Danilu, ali i priča o životu i svakodnevnoj borbi obolelih od CISTIČNE FIBROZE.
TRIKAFTA je inovativni lek za osobe koje boluju od ove retke bolesti.
https://t.co/WxM3KDo1qy
#HocemoTrikaftu #CFSrbija #WeWantTrikafta

[anajoB @newBoki]

Beograd u plavo osvetljen u znak obeležavanja Svetskog dana dijabetesa 💙
Naš grad je i ove godine bio deo svetske kampanje u kojoj je preko 1000 građevina i znamenitosti bilo osvetljeno plavom bojom u okviru UN kampanje koji svake godine podržavaju ovaj događaj na svetskom nivou

[Cystic Fibrosis Foundation @CF_Foundation]

The approval of the triple-combination modulator represents a truly transformational milestone in the fight against #cysticfibrosis. We could not be more excited about this pivotal moment in the history of CF.

[D @ProfDGDowney]

Well done to Stuart Elborn on his #ECFS2019 award

[Nicola Rowbotham @nicrowbotham]

excellent advice on adherence in #cysticfibrosis from a patient’s perspective #ECFS2019

[DE CARLI Paola @paodecarli]

#ECFS2019 À full filled overview of Anti-infective compounds development and treatment strategies presented by Giovanni Taccetti A "come together" approach is proposed to answer to #patients priorities #Liverpool #Beatles @questionCF

[DE CARLI Paola @paodecarli]

ELX-02 lead compound under development for #nonsens mutations #CF #patients #ecfs2019 ready to go to phase 2

[Euro CF Pharmacy Group @ecfpg]

Adherence - The pharmacists perspective - informative session by our euro pharmacists #ecfs2019 @ukcfpg @SianABentley @NicolajshawShaw @ECFSConference

[Geneviève HéryArnaud @Genevieve_Hery]

Miles to go; why microbiome analysis is not ready yet to inform CF clinical care. An overview of pitfalls by P. Singh. By the way, you can read the review we published in the ⁦@JournalofCF⁩ and see that solutions may exist. #ECFS2019 https://t.co/BNYZon6Vt6

[Dragan Djurovic @djuronelly]

Sodium status and replacement in cystic fibrosis adults and children Dimitri Declercq
#ECFS2019

[Dragan Djurovic @djuronelly]

Who said #ECFS2019 has ended?
CF Trust & CF Europe "Family day" is on and continuing... Prof Kevin Southern,
"Recap on main ECFS",
Prof Jane Davies
@cfsrbija

[DE CARLI Paola @paodecarli]

#ECFS2019 15 new sites in the EU clinical trial network ECFS-CTN Welcome to all of them 🇪🇺 ! Bienvenue Grenoble 🇫🇷 ! @vaincrelamuco #cysticfibrosis #clinicaltrials

[DE CARLI Paola @paodecarli]

#ECFS2019 Here comes the sun: mapping the challenging future for people with #cysticfibrosis Excellent talk by Donald VanDevanter Bring greater competition to the market will be critical