We are trying to raise money to help those affected by batten disease. All money raised will hopefully go towards finding a cure and raising much needed awareness. If you could donate anything,share it would be very much appreciated.Thank you 🧡https://t.co/j9XzYTrgOo
The final handover. After his mammoth 2,500+ mile journey around the UK Jeff Da Bear is now with his forever friend. Thank you to every one who made this possible. You’re all hero’s. Final count to come. #battenawareness#battendiseaseuk#jeffriesbikerjourney
Jeff the Bear set off on his round the UK relay ride on Saturday. He travelled from Accrington through Wales and is now having a well deserved rest in Exeter before continuing on via lands end to coast to Maidstone next weekend. See website in bio to join / follow progress.
Jeff the Bear is setting off on his round the UK trip on September 4th courtesy of hundreds of lovely bikers. The ride is spread over multiple weekends so if you fancy attending head over to https://t.co/ARIoywhcJQ for more info.
Finally completed a gentle jog with no major injury. I’m prepared to crawl to mcr half if it means raising as much money as we can for batten disease. If you could donate anything please go to my JustGiving page 🧡.https://t.co/H69GpBf6tM #BDFA#JustGiving#mcrhalf
Raising money for any charity is great. If you don’t have a charity close to your heart the bdfa is a worthy cause.All donations help and will hoping go towards finding a cure. Amazon donate 0.5% of every purchase you make to your chosen charity. Every bit helps!#bdfa
I started training a few week back. Every attempt going for a run resulted in a strain, mainly the legs so it was back to the excercise bike. I bought so compression socks and finally no injury. Hopefully stay this way 😀.https://t.co/Tj4WGZGSRt #bdfa#battendiseaseawarness
Our friends, Evan & @Dbrownnutt are running the #GNR40. The money raised helps us continue to support families affected by Batten Disease. We would really appreciate some RTs to help raise awareness. Thank you 🧡
@Great_Run@run_charity@paulajradcliffe
https://t.co/H0cPTCWNi4
Being on the other side,my 5 yr boy has seizures due to a rare genetic disease.Reassure him,plenty of cuddles and Sometimes a black current fruit-shoot #EpilepsyQuestion
Our mission is to enable everyone affected by Batten disease to live life to the full and to secure the care and support they need until we find a cure.
Visit @giveasyoulive to see how you can help
#battendisease#charity#battenawareness
Thanks to Jay Rodriguez signed boots for Deano day 👏🏻 Gates open 12
The @ClitheroeFC squad is …
Baz Hart / Lee Cryer / Reno / Joel Byrom / Si Garner / Bernard Morley / Ryan Cattermole / Carl Lomax / Gary Stopforth / Seargy / Seydou Bamba / Danny Brady ..
+ 4 Trialists 👥👥