Chloé de Canson

formerly assistant prof in philosophy @wijsbegeerte • now bedbound w myalgic encephalomyelitis/long covid

[Chloé de Canson @chloedecanson]

@CiaraGlenville Congratulations on this wonderful poster!

[Ciara Wright PhD, Positive Nutrition @CiaraGlenville]

Our poster from the ISLC-PAIS conference:

PEM is characteristic of and unique to ME, and is equivalent to PENE as defined by the ICC. Required to be prolonged, disproportionate, systemic, may be delayed, can cause lasting functional decline 🧵

https://t.co/EnjWRIv0jb

[Prof. dr. Vivienne Matthies-Boon @V_MatthiesBoon]

Truly amazing and excellent article by @chloedecanson. I cannot recommend this enough, too many gold gems in there to put in an X post. So: simply read it. ;-)
#MECFS #Science #controversialisation #philosophyofscience

[Chloé de Canson @chloedecanson]

@V_MatthiesBoon What incredible praise, thank you so so much Vivienne! It really means a lot coming from you

[Dan 🦠➡️🧠🔥 @Dan_Wyke]

📄 "I present a case study, that of myalgic encephalomyelitis, wherein, due to severely dysfunctional institutional knowledge production and transmission mechanisms, the medical aspects of the illness are on the whole better understood by sick people than by their doctors."

[Tom Kindlon @TomKindlon]

I was one of a number of patient scientists & advocates who was interviewed for this sympathetic, open access paper.

"Patient's knowledge, doctor's ignorance: The production of knowledge about myalgic encephalomyelitis"

https://t.co/2ZexjfDR9y

#MEcfs #PwME

[Chloé de Canson @chloedecanson]

@TomKindlon Oh no, I'm really sorry about the typo!!

[Chloé de Canson @chloedecanson]

@subversivepsych Thank you so much for your kind words!

[Chloé de Canson @chloedecanson]

Why do people with ME claim to know more about the medical aspects of their disease than their doctors? Bc the mechanisms that ensure doctors' knowledge fail in the case of ME, and sick people have created mechanisms of knowledge production and dissemination to pick up the slack

[Chloé de Canson @chloedecanson]

@PneumaNeura Thank you so much for your very very kind words, about my paper but also about Gemma 🥺 I hope you like the paper :) yes, the treatment that helped me regain a lot of cognitive function was LDA

[Chloé de Canson @chloedecanson]

@Naomi_D_Harvey Thank you for your kind words Naomi, for agreeing to be interviewed, and for everything you do for the community 🤍🤍🤍

[Chloé de Canson @chloedecanson]

@ME_Vereniging Yes, I talk about that in the paper

[Chloé de Canson @chloedecanson]

@neurostingl Thank you very much for reading!

[Michael Stingl @neurostingl]

Spannender Artikel darüber, warum Patientenwissen bei ME/CFS so relevant ist.

Sehr treffend: Kritik sollte nicht nur dem medical gaslighting gelten sondern vor allem den institutionellen Strukturen, durch die Ärzte überhaupt mit falschem/obsoletem Vorwissen in Kontakt kommen.

[Chloé de Canson @chloedecanson]

@VladVexler Thank you, I hope you enjoy!

[Chloé de Canson @chloedecanson]

@themupsmuppet Dank je wel, ik hoop dat je het interessant vindt!

[Chloé de Canson @chloedecanson]

@AnilvanderZee Thank you, and thank you for your amazing documentaries :)

[Yashaswi More @itsyashi24]

9 am: i can’t wait till bedtime

10 pm: i’ve always wanted to write my own operating system

[Fernando Borretti @zetalyrae]

People should do less first-principles thinking and instead read more.

[Chloé de Canson @chloedecanson]

@sunsopeningband Thank you for the kind words, and especially for your collaboration with patients in your research!

[Chloé de Canson @chloedecanson]

@ValeBodi I'm very curious what you'll think!