Chronic Chronicles

Too sick right now to think of something catchy.. I'll have to get back to you. -#chronicmigraine - #IBS - #chiarimalformation - #sleepapnea -

[Chronic Chronicles @chronicallycool]

Everyone, please remember this. I wrote this when I was sickest, and sometimes it's so hard to remember 💪 #spoonie

[Chronic Chronicles @chronicallycool]

Guess who's going for their second #MRI in two weeks... #thisgirl #wishmeluck

[Chronic Chronicles @chronicallycool]

Going for an Emergnecy head MRI tomorrow morning.. Knowing that the current wait time is around 480 days, I'm terrified...

[Chronic Chronicles @chronicallycool]

I have to say, it's not very comforting when both your specialists are worried, but I'm stuck waiting for a MRI before anything can be done😞

[Chronic Chronicles @chronicallycool]

I've known for weeks now that I needed to go back for my follow up MRI that I've put off for 4 years..now I'm afraid I've left it too long😔

[Chronic Chronicles @chronicallycool]

@BrainAndBowel Hmm! I'll look into it. I had pretty extensive and regular blood monitoring a year or so ago, so I'll have to check if that was included!

[Chronic Chronicles @chronicallycool]

Found a better way to describe myself:Girl who's brain thinks she has a constant hangover and decides to stop breathing for fun #causewhynot

[Chronic Chronicles @chronicallycool]

Currently in the ER, with what they believe is a broken foot 😐

[Chronic Chronicles @chronicallycool]

@hellodiannalove thanks for the rt 💜 this came from an extended stay in the ER, where I realized I needed more in my life than being sick

[Chronic Chronicles @chronicallycool]

When snapchat finally gives a #spoonie friendly filter 🙈😷😍

[Chronic Chronicles @chronicallycool]

Could ya'll please rt my last tweet? It would mean so much 💜 #BellLetsTalk

[Chronic Chronicles @chronicallycool]

@pbartolone sorry for the super late response! I haven't been on it in a while, but shoot me a message if you want :)

[Chronic Chronicles @chronicallycool]

But seriously. When you need a drug every 12 weeks, a 6 week delay is insane. But it doesn't matter, because I'm "not missing work"

[Chronic Chronicles @chronicallycool]

So my Botox appointment (which was 3 wks late) was pushed 3 more wks. But they called without a blocked # so now I have their direct line 😈

[Chronic Chronicles @chronicallycool]

My Halloween Mask 🎃 #CPAP #spoonie #happyhalloween

[Chronic Chronicles @chronicallycool]

@flowerchild5692 what kind of mask do you use?? ( of you don't mind me asking!!)

[Chronic Chronicles @chronicallycool]

@flowerchild5692 do you have the resmed air sense???

[Chronic Chronicles @chronicallycool]

Getting more used to sleeping with my #CPAP machine.. any #spoonie out there that use one? Would love some tips :)

[Chronic Chronicles @chronicallycool]

Today is the first day since 2009 my pain has dropped below an 8.. I'm so confused, but so happy #what #spoonie #progress? #fingerscrossed

[Chronic Chronicles @chronicallycool]

Well I don't hate the #cpap machine as much as I thought I would.. On the plus side, my mask is white/pink and grey 💁🏻

[Chronic Chronicles @chronicallycool]

After being on crutches for the part 5 days, I have a new appreciation for those who use them all the time #spoonie #yallaresuperheroes