R.

Hi. severe #MEcfs ♿️ | Ex-Film crew📽 | they/them |

[R. @chronicsheepe]

My partner put together a gfm to help raise funds to get me a power wheelchair so I can have some independence back. Our insurance barely covers a fraction and we exhausted all other options.

Anything at all helps, even $5!

Link below!

#MutualAid #disability

[R. @chronicsheepe]

My partner put together a gfm to help raise funds to get me a power wheelchair so I can have some independence back. Our insurance barely covers a fraction and we exhausted all other options.

Anything at all helps, even $5!

Link below!

#MutualAid #disability

[R. @chronicsheepe]

@hostbodyhan 🫶

[R. @chronicsheepe]

https://t.co/Af558rxD4M

[R. @chronicsheepe]

My partner put together a gfm to help raise funds to get me a power wheelchair so I can have some independence back. Our insurance barely covers a fraction and we exhausted all other options.

Anything at all helps, even $5!

Link below!

#MutualAid #disability

[✨🎶Kristennnn🍉✨ @singingsox]

No one wants covid to actually be mild or “over” more than covid aware people

It’s actually shocking that some of you think this is fun for us, that we enjoy this

[R. @chronicsheepe]

Just tipped over the $1k mark! Still $26k to go until we reach our goal for this life changing mobility device! Anything helps, even just $5 #mutualaid #mecfs #longcovid

We’re raising funds for a (Dr and OT approved) wheelchair so I can independently leave my bed.

[R. @chronicsheepe]

Hey new friends! We have a fundraiser going right now. Would mean a lot if you could check it out!

https://t.co/7ZlXyfqfmB

[R. @chronicsheepe]

Hey new friends! We have a fundraiser going right now. Would mean a lot if you could check it out!

https://t.co/7ZlXyfqfmB

[R. @chronicsheepe]

I have severe #mecfs and I’m raising funds to get a power wheelchair. Anything helps, we have a long way to go

https://t.co/m1etb3H1QO

[R. @chronicsheepe]

We protect each other
Started off with surgicals/cloth, upgraded after I got long covid and we learned about fit. Having a significant other who masks to keeps you safe even when it’s hard, even when the whole world is telling him to unmask, means everything ❤️

[#LandBack @iiHeartPolitics]

It's so refreshing to date someone who masks consistently & doesn't wait to see if I put one on to wear it themselves.

Shoutout to the lovers who protect their own health as well as their partner's 🫶🏾😍

[Gwen B. with LC 🍂🫖🌬☕𓅓 @PenGwenWithLC]

@LongCovidAidBot Hello, I run AidBot and since being further disabled by COVID I have been unable to work. My Patreon income is my survival income and it is currently falling short. Any help getting this shared and seen is appreciated
https://t.co/veiT9H1vk5

[R. @chronicsheepe]

@LongCovidAidBot I’m raising money to get a power wheelchair to leave me bed independently. I have severe ME from Long covid. We have to raise $27,214 because insurance won’t cover more tha $2.3k

Anything helps!

https://t.co/be54VIRRdK

[R. @chronicsheepe]

Just tipped over the $1k mark! Still $26k to go until we reach our goal for this life changing mobility device! Anything helps, even just $5 #mutualaid #mecfs #longcovid

We’re raising funds for a (Dr and OT approved) wheelchair so I can independently leave my bed.

[R. @chronicsheepe]

I have severe #mecfs and I’m raising funds to get a power wheelchair. Anything helps, we have a long way to go

https://t.co/m1etb3H1QO

[H @hostbodyhan]

loving and admiring my friends

[R. @chronicsheepe]

@jasrichards2 @Naomi_D_Harvey @Lwardo4 You’re preaching to someone who has severe ME and long COVID.

Unfortunately, you might just have to make up a term if you feel those two don’t describe what you experience.

[R. @chronicsheepe]

@Naomi_D_Harvey @jasrichards2 @Lwardo4 Okay, then use a different term, and don’t appropriate a term used for PEM.

[R. @chronicsheepe]

@Naomi_D_Harvey @jasrichards2 @Lwardo4 I don’t understand your point. PENE and PESE were made up at the same time when people were debating which one to pick. There’s no difference?

I have distinct memories of people tweeting about how they liked “PESE” over “PENE” (and vice versa) as alternatives for PEM.

[R. @chronicsheepe]

@Naomi_D_Harvey @jasrichards2 @Lwardo4 It IS the same thing though. I was on twitter when people started talking to rename PEM to PESE/PENE. Bateman-Horne also says “PEM/PESE”.

There’s no studies differentiating them because they’re the same, and they started from discussions on social media apps.

[R. @chronicsheepe]

So I was on twitter back when the conversation started to rename PEM to PESE/PENE

And now I’m seeing people claim PESE and PEM are two different things when… they’re not. It’s just an alternative name for the same thing.

PESE, PENE, and PEM are all the same thing.

[R. @chronicsheepe]

@Naomi_D_Harvey @jasrichards2 @Lwardo4 Except PESE is just another word for PEM. They’re one and the same.