I added my voice to the inspiring CF advocates at Teen Advocacy Day urging Congress to prioritize the needs of the CF community. Join @cf_foundation’s Online Day of Action to amply the next generation of CF community leaders on Capitol Hill. #CFadvocacy https://t.co/9urPjKW3ZR
Thank you so much to @CF_Foundation and to @CFF_DC for their endless commitment to giving all of us with cf and our families so many more tomorrows. I am beyond grateful for this honor.
@CFF_DC Thank you so much @CFF_DC, it is truly an honor to work alongside you all and to be a part of such a special community. Thank you so much for the opportunities you provide for me and my family.
@smelis73 @CF_Foundation@RiedyCarl Thanks friend, such an honor to be though of in this way. You and this community have had such a huge impact on my life and I could be more grateful.
Wunderfest! Our Oktoberfest party is this Saturday! Tomorrow! We’ll have games and music and rare Port City German-style beers! Come by!
(I’ll follow back anyone who Retweets this!)
So proud of my friend KC for becoming the first persons with #cf to be named the Chair of the Board of Trustees for @CF_Foundation! I couldn’t think of a better person to lead the charge as we look forward to ultimately find a cure for #cf! Way to go KC!
We’re thrilled to announce that KC White has been elected by the Foundation’s Board of Trustees as its next Board Chair. This marks the first time in our history that the Board will be led by a person with #cysticfibrosis. https://t.co/WwYYoLoo8B