Colin Werth

[Colin Werth @cjwerth10]

Thank you to @mdnewstoday_ for helping me share my story for World Duchenne Awareness Day and DMD Awareness Month! #WDAD25 #EndDuchenne

https://t.co/U9lceirp0I

[Kuwait Mission to the UN 🇰🇼 @KuwaitMissionUN]

On the second-ever #WorldDuchenneAwarenessDay, the Permanent Mission of Kuwait was honored to host a screening of a community-produced documentary.

We are grateful for opening remarks by H.E. Ms Amina J. Mohammed (@AminaJMohammed), Deputy Secretary General of the UN and H.E. Sheika Alya-Al Thani (@AmbAlyaAlThani), Permanent Representative of Qatar. As well as video messages by H.E. Dr. Tedros Adhanom Ghebreyrsus (@DrTedros), Director General of WHO and H.E. Mr. Philémon Yang (@UN_PGA), the President of the 79th Session of the General Assembly.

Actor and long time advocate, Steve Way, joined us to emphasize the need for more awareness to make way for research.

Following the film, we heard heartfelt reflections from the Duchenne and rare diseases community, including Pat Furlong, President of @ParentProjectMD.

The support has been nothing short of inspiring 🎈

[Coalition Duchenne @CoalitionDMD]

Today is World Duchenne Awareness Day, September 7. We unite to raise awareness for Duchenne muscular dystrophy. #WDAD2025 #WorldDuchenneAwarenessDay
This year’s theme: “Family: The Heart of Care” 💙 A powerful reminder that true care begins at home, and family takes many forms.

[Dyne Therapeutics @Dyne_tx]

On #WDAD2025, we stand with the #Duchenne community, honoring their strength, sharing their stories and learning from their experiences. Learn more & hear their perspectives: https://t.co/twhaRXdfLR #DMD

[Parent Project Muscular Dystrophy (PPMD) @ParentProjectMD]

Today, September 7, is World Duchenne Awareness Day! On this day, the global Duchenne community comes together to raise our voices for #Duchenne and #Becker. This year—and every day—we recognize the families at the center of care, community, and support.

[myTomorrows @myTomorrows]

♥️ Today on #DuchenneAwarenessDay, our global team wears red to stand with the Duchenne community. Beyond today, we remain committed to guiding families worldwide on their journey to discover and access clinical research. #RareDisease #PatientSupport

[Solid Biosciences @Solid_Bio]

Solid is proud to sponsor @JettFoundation's #WorldDuchenneAwarenessDay 2025, taking place September 7.

Each year, #WDAD brings together families, advocates, clinicians, and industry partners to raise awareness in support of the Duchenne community, recognize the challenges ahead, and celebrate the strength and resilience of those living with Duchenne.

This year’s program includes:
🔴 In-person Event – Saturday, Sept. 6
🔴 Virtual Activities – Sunday, Sept. 7

Learn more here: https://t.co/j0nqSYSrm3

#StrongerThanDuchenne #JettFoundationWDAD #WDAD2025

[World Duchenne Organization @worldduchenne]

📷 The World Duchenne Awareness Day 2025 documentary “Family: the heart of care” is now available!
Discover three powerful stories of the Duchenne Community in Japan, Mauritius and Greece.
Directed: @nicolettamadia
Produced: Arim Communication
#WDAD2025
https://t.co/4iYjy1NXVI

[Solid Biosciences @Solid_Bio]

Our team joined the global community in honoring #WorldDuchenneAwarenessDay by wearing red.

We were proud to host Mark Chauppetta and his twin sons, Troy and Andrew, @JettFoundation ambassadors, athletes and co-hosts of TwinTalk Podcast, who inspire daily: https://t.co/gfTOLj4XuA

In unity, our neighbors at Hood Park Charlestown lit the campus smoke stacks red.

At Solid, we remain committed to advancing therapies for Duchenne and other neuromuscular and cardiac diseases, guided by the voices of patients and families. Learn more: https://t.co/YfPWYrsrd8

@worldduchenne #WDAD2025

[Colin Werth @cjwerth10]

@_clairvoyance 😂

[Colin Werth @cjwerth10]

@_clairvoyance Yes 😂

[Colin Werth @cjwerth10]

@_clairvoyance Of course you did! 😂

[Colin Werth @cjwerth10]

@_clairvoyance 😂

[Colin Werth @cjwerth10]

@Delta @SouthwestAir @united @JetBlue @AmericanAir From a disabled traveler just trying to make life easier for me and my friends. #DoBetter #AccessibleAirTravel #DisabilityRights

[Colin Werth @cjwerth10]

@_clairvoyance 😂

[Colin Werth @cjwerth10]

@SashXD22 Happy Birthday!

[AnnemiekeAartsma-Rus @oligogirl]

@TREAT_NMD 15 years of TACT (TREAT-NMD advisory committee for therapeutics) symposium is in full swing with now the patient voice panel with 2 experts (Kelly Brazo mother of a patient with LGMD and Colin Werth, Duchenne patient) chaired by Sharon Hesterlee

[Parent Project Muscular Dystrophy (PPMD) @ParentProjectMD]

The PPMD Adult Advisory Committee (PAAC) aims to elevate the lives of individuals living with #Duchenne and #Becker through advocacy, education, mentorship, and awareness, and is seeking new members. Learn more and apply by November 25th: https://t.co/j7tRByGidM

[Colin Werth @cjwerth10]

@richardblade Please play some China Crisis on 1st Wave. Thanks!

[Colin Werth @cjwerth10]

@Disabled4Kamala

[United Nations @UN]

Duchenne muscular dystrophy is a genetic disorder causing progressive muscle degeneration & weakness.

Saturday’s 1st-ever #WorldDuchenneAwarenessDay is an opportunity to advocate for the rights, inclusion & well-being of those living with this condition. https://t.co/ImVOUFHiBl