Clare Ogden

Avid reader, occasional baker. All views my own.

[Clare Ogden @clarejogden]

@GWRHelp Hiya. Is there a replacement bus service from Taunton to St Erth today, and how long it takes please? Do you have a route map for this? Thank you.

[Frances Ryan @DrFrancesRyan]

Truly incredible to see all the non-disabled people say they’re not going to wear a mask anymore because it’s too uncomfortable for them. Babe, I assure you the clinically vulnerable people sitting next to your maskless face will feel a tad more than uncomfortable.

[ME/CFS Priority Setting Partnership @PSPforMECFS]

URGENT UPDATE We've been made aware that a couple of people have experienced technical problems when submitting their completed survey. We are very sorry this has happened and are keeping it open for an extra 48 hours. Closing date now 5pm Wed 7 July.

https://t.co/ASknMazApq

[Clare Ogden @clarejogden]

#BlueSunday2021 #TeaPartyForME2021 enthusiastically underway here with a generously iced banana and apricot loaf, and a donation from my lovely family to @actionforme via https://t.co/4H3A5nNGjZ

[Clare Ogden @clarejogden]

Looking forward to taking part in #teapartyforME2021 to raise money for #actionforme... I'm thinking something with blueberries feels appropriate 🫐💙🦋

[Action for ME @actionforme]

Sunday 16 May is #BlueSunday2021 - time to dig out the best china and bake something delicious. https://t.co/pghxXWcZxe

Organised by the fabulous @theslowlane_ME, this event has raised thousands for M.E. charities. So what will you bake?
#teapartyforME2021 #pwME #MECFS #spoonie

[Action for ME @actionforme]

Brilliant thread, brilliant article, highlighting @NICEComms ' analysis of

"PACE trial findings and other claims that CBT and GET can treat #MECFS. It found without exception that the quality of the science was either “low” or “very low”."

#pwME #LongCovid #MedEd #healthcare

[Sonya Chowdhury @SonyaChowdhury]

What a great piece of writing, once again, @GeorgeMonbiot The sad thing is, many people continue to suffer because of the scandalous misinformation (she says more kindly than she feels) that pervades this disease field #ME #MECFS #LongCovid #COVID19

[Carers Trust @CarersTrust]

#Youngcarers learn incredible #skills through their caring role like resilience, time-management and empathy.

We've loved seeing so many #YoungCarers sharing their skill card. It's not too late to join in! Download the card 👉 https://t.co/wbafMG5i3C #YoungCarersActionDay

[Clare Ogden @clarejogden]

Huge thanks to Craig and @Annakwood talking about their experience or our podcast highlighting free CPD module on #MECFS diagnosis and symptom management.

Podcast https://t.co/XvIik6zTs6
Module https://t.co/JGo9dQgNir

#GPnews #MedEd #MedTwitter

[Action for ME @actionforme]

Craig, who has #mecfs, discusses the varying symptoms of M.E. in our ‘Learn about M.E.’ podcast, promoting the professional development module developed by Nina Muirhead.

[Action for ME @actionforme]

Our Services and Communications @clarejogden is stepping in for Sonya this morning, who is unwell. We'll be on air in around half an hour 👍

[Clare Ogden @clarejogden]

This was so much fun! Great to have some social time with my lovely colleagues, and a delicious dinner too.

[Sonya Chowdhury @SonyaChowdhury]

By request, our Wellbeing Wednesday session for the @actionforme team this evening was a curry cooking session from me! The #CurryforME fundraiser dish plus dhall, mushroom bhaji, rice & onion salad. I really loved it....maybe cooking lessons as a sideline???!

[Clare Ogden @clarejogden]

Bowled over by the generosity of our supporters, and so excited that we are now able to grow our brilliant #actionforme team to support more people with #MECFS 🧡

[Action for ME @actionforme]

❄️Big Give final total ❄️

A big thank you to everyone who supported our #MECFS Big Give Christmas Challenge campaign this year.

We’re delighted to confirm that, because of you, we were able to raise a grand total of £169,710 from 619 donations.

[Clare Ogden @clarejogden]

Last batch of ⁦@actionforme⁩ Christmas Angels cards ready for the post office! More than 200 cards, full of festive spirit and support, exchanged by #pwME 🎄☃️❤️

[Clare Ogden @clarejogden]

That's me, festooned in fairy lights in the bottom right and bowled over by the generosity of our amazing supporters 🧡👍

Thank you for helping us hit £100,000 with three #ChristmasChallenge20 days still to go! #pwME #MECFS

[Action for ME @actionforme]

With 3 days left of our campaign still to go... we have hit our £100,000 @BigGive #ChristmasChallenge20 target!

If you've donated or plan to - you still can at https://t.co/h8INoF8yRq - THANK YOU. Because of you, we can support more #pwME #MECFS in urgent need.

[Clare Ogden @clarejogden]

Maria is one of the many young people with #MECFS we have set up with a pen pal. Love this film she made explaining how this helps her feel less alone 🧡

[Action for ME @actionforme]

Maria was 13 when a viral infection left her struggling to even walk. Months later, she was diagnosed with #mecfs.

Because of you, we can support more people like Maria to feel less alone.

Donate to our #ChristmasChallenge20 campaign today at https://t.co/H144P6hdCK

[Clare Ogden @clarejogden]

@EmilyBeardall1 @actionforme Brilliant, Emily! - thank you 🧡

[Clare Ogden @clarejogden]

We're less than 48-hours into our @BigGive #ChristmasChallenge20 campaign - and already more than halfway to our total 🧡🎁😍

So grateful to everyone who has donated, and to our amazing team supporting #pwME #MECFS @actionforme

[Clare Ogden @clarejogden]

@Danny_Redhead @actionforme Danny, this is brilliant. Thank you so much for helping us reach more #pwME #MECFS

[Clare Ogden @clarejogden]

So exciting to see donations being doubled as we speak, starting from just £1, at https://t.co/MXjcMWuw50

Because of you, we can support more #pwME #MECFS across the UK. Thank you.

[Action for ME @actionforme]

And we’re off… our @BigGive #ChristmasChallenge20 week starts now! ❄️

Between now and noon on Tues 8 Dec, see your #BigGive donations of £1 and up doubled, thanks to our match pot provided by @candismagazine and other philanthropists.

#givingtuesday

https://t.co/H144P6hdCK