If you enjoyed the Carmichael's talk AND @morgan_stalker's MCDS journey, we highly encourage you to read 9 year-old Jurek’s story of living with dysplasia Schmidt type in Spain with his family, Karolina and Jaime Gnacińska, too!
#McdsTherapy
https://t.co/LNE6NTIx2J
Hoy es el #DiaMundialDelLinfoma, el cáncer que me dignosticaron con 21 años. Dos años después de tratamientos sin descanso, me dieron menos de un mes de vida.
Hilo 🧵
@rfef Ya estabais tardando. A ver si tiene algo de decencia y dimite, no es la imagen de los españoles y mucho menos de los que nos gusta el fútbol. Dimite ya!
This is so important - and very exciting also. After over 30 years of research we are in a position to offer - what we believe - will be a safe and effective therapy for this very rare bone disease - this clinical trial will determine efficacy of CBZ to help treat MCDS 👍