Center for Medical Technology Policy Home of #GPC (Green Park Collaborative), a multi-stakeholder forum developing #CoreOutcomeSets for clinical trial design.
September is National #SickleCellAwarenessMonth, designated by Congress to help focus attention on the need for research and treatment of sickle cell disease...learn more with @SCDAAorg's facts and stats https://t.co/YoJDubSrDc #SickleCellMatters2021
Check out our poster: Knowledge and Attitudes Toward Gene Therapy for Hemophilia. Patient Perceptions: Findings from the coreHEM Mental Health Initiative at NHF's Bleeding Disorder Conference #NHF2021. Register for free below! https://t.co/YucjvKkvB5
@CMTP_Baltimore is recruiting men/adolescents age 15+ with moderate/severe haemophilia A or B for study on gene therapy and mental health. Participants will be paid $100 USD or equivalent for a 90-minute online interview. More info: https://t.co/AKzlb8vPWR
August is National Immunization Awareness Month (#NIAM), a time to highlight the importance of vaccination for people of all ages. Spread the word about being #VaccineReady and stay up to date with recommended #vaccinations: https://t.co/1LfSbjB0I3. #iVax2Protect
Have you read our latest newsletter? Includes @DonnaMessner1 's perspective on the new, controversial Alzheimer's drug approval. What is the measure of hope? #alzheimersdisease#aducanumab
https://t.co/NDbYlxdlGm
June is Alzheimer's & Brain Awareness Month. Read GPC's recommendations for the design of studies in later phases of drug development to evaluate the ability of disease-modifying agents to delay or prevent the onset of dementia due to Alzheimer’s disease. https://t.co/WMa2yqzCgM
coreNASH has developed a clearly defined core set of outcomes to measure the comparative effectiveness and value of treatments for NASH. #NASHDay#NAFLD https://t.co/CjFewDQv4E
It is estimated that 25–30% of people worldwide currently have nonalcoholic fatty liver disease (#NAFLD) & 2–6% have nonalcoholic steatohepatitis (#NASH), the most severe form of NAFLD. Researchers estimate that the prevalence of #NASH could increase by over 50% by 2030. #NASHDay
@ISPORorg Virtual 2021 is underway! If you're registered, go to the "session gallery" to check @DonnaMessner1's payer/HTA panel, "What Can Be Gained from Payer/HTA Involvement in the Multi-Stakeholder Consensus Development of Core Outcome Sets for Late Phase Clinical Trials?"
Registered for Virtual @ISPORorg 2021? Don't miss
@DonnaMessner1 moderate a panel exploring the potential value of payer and HTA participation in #coreoutcomeset development for drug clinical trials. Access it here: https://t.co/talNWOzfvH
May is #asthma awareness month. The evolution of asthma care calls for a re-examination of outcomes that are most important to patients and other stakeholders. Read coreASTHMA’s published #coreoutcomeset for moderate-to-severe asthma clinical trials https://t.co/c2f5yv6fQx
Check it out! coreASTHMA, jointly led by GPC @cmtp_baltimore and AAN @AllergyAsthmaHQ publishes core outcome set for moderate-to-severe asthma clinical trials https://t.co/c2f5yvnRf7
Have you seen our recent publication? Results from the #coreASTHMA initiative published in Annals of Allergy, Asthma and Immunology, “A multi-stakeholder Delphi consensus core outcome set for clinical trials in moderate-to-severe asthma (coreASTHMA)” https://t.co/c2f5yv6fQx
coreASTHMA releases #CoreOutcomeSet for drug trials in moderate to severe asthma; consensus methods and final core outcome set published in Annals of Allergy, Asthma and Immunology https://t.co/c2f5yv6fQx
Read about GPC @cmtp_baltimore and AAN @AllergyAsthmaHQ ‘s joint coreASTHMA initiative: A multi-stakeholder Delphi consensus core outcome set for clinical trials in moderate-to-severe asthma https://t.co/c2f5yvnRf7
#WorldHemophiliaDay is about celebrating the bleeding disorders community. Read coreHEM's #coreoutcomeset for hemophilia gene therapy clinical trials. https://t.co/m0mcfV77cx
Have you seen our latest stakeholder engagement in asthma research? coreASTHMA has published a #coreoutcomeset for moderate-to-severe asthma clinical trials https://t.co/c2f5yv6fQx