Colleen Thomas

[Colleen Thomas @collyt]

@DavidJoffe64_2 Can u recommend a good respiratory and sleep specialist in Melbourne? Many ME or long covid studies, want a sleep study done!

[Colleen Thomas @collyt]

@vipintukur Umm 🧐 it’s only taken how many years to figure this out. I could have told you this in 2022!

[Tricia Dearborn @TriciaDearborn]

Hey @Mark_Butler_MP what is your advice for people who need to get vaccinated for Covid but can't tolerate mRNA vaccines?
If it's not gfy, why is #Novavax not being made available?
(And there are plenty of other people who'd like access to this more effective vax also.)

[Tricia Dearborn @TriciaDearborn]

PSA for @Mark_Butler_MP
Why the people want #Novavax.
First, some people literally can't tolerate mRNA vaxes.
And also:
• less waning/better infection protection
• “universal-like” variant coverage
• better mucosal protection
• fewer side effects
• no IgG4 class switching.

[Colleen Thomas @collyt]

@DavidJoffe64 @Yash25571056 The only thing I got from a public hospital long covid clinic here in Melbourne was a chest x ray that my gp could organise! It was abysmal.

[Colleen Thomas @collyt]

@DavidJoffe64 @BigBadDenis Yup me! I was double vaxxed, no booster and developed pots among other things. I actually had to educate local gps that many here were getting pots post covid based on overseas.

[Colleen Thomas @collyt]

@Mon4Kooyong Long Covid. 500 dollars cardiologist as complex case and not even a halter monitor put on me!

[Long Covid Advocacy 💙 @LongCovidAdvoc]

�� Thank you to @ZackPolanski and Dr Amir Khan for discussing Long Covid on @_BoldPolitics for #LongCovidAwarenessMonth

Excellent discussion that includes the lack of care, siloing & investment for people with Long Covid, ME, Fibro and other complex conditions

🖇️ Full segment at 27m 👇️

[Brian Fog @useless_priest]

ME is not a “mystery illness”. It’s an illness that’s been ignored for decades.

[Star💫 @Starseeker1986]

How many people have #LongCovid and is it a ongoing risk?

Prof Danny Altman explains 👇

🦠🦠🦠🦠🦠🦠🦠🦠🦠🦠🦠🦠

[David Joffe MB BS (Hons), PhD, FRACP 🇦🇺 @DavidJoffe64]

I'm afraid you best not look West to Australia if you think our leadership is any more engaged or interested

[David Joffe MB BS (Hons), PhD, FRACP 🇦🇺 @DavidJoffe64]

Sadly the Colleges have been asleep since 2022.

The Royal Australasian College of Physicians has not a single module nor helpful connection to those looking after these folk.

Failure by Design ☠️

[S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic @dysclinic]

Time and time again I see a lot of misconceptions about #POTS and #dysautonomia among physicians of all specialties. I'll repeat as many times as necessary:
‼️ POTS is not a psychiatric or psychological disorder
‼️ POTS is not a functional neurologic disorder or hysteria
‼️ POTS is not the same as anxiety or panic attacks
‼️ POTS is not due to past trauma or childhood adverse experience
‼️ POTS is not caused by deconditioning or laziness: elite athletes can develop POTS.
‼️ POTS is not the latest fad diagnosis: you see more of it because of #COVID, which can cause POTS as part of #LongCOVID.
‼️ POTS patients are no more difficult or whiny or anxious than any other patients with complex, disabling and multisystemic conditions.
‼️ Women with multiple sclerosis used to be labeled as hysterical, anxious and having past trauma: nobody says that about MS anymore so... use the same logic in POTS.
#BrainHealth #MedTwitter #NeuroTwitter
https://t.co/Jeed4xx23W

[Colleen Thomas @collyt]

@DanMissailidis How long is this study going for?
Interested but I think you will find most long covid patients are on h1 and h2 antihistamines and blood thinners. So you have to go off them for ten days, is that right?

[Colleen Thomas @collyt]

@drclairetaylor @UKPoTS Totally agree. Same in Oz. My local gp didn’t do a referral for me to a pots specialist as he didn’t think I had pots. He felt my radial pulse! I knew then that he wasn’t educated on pots. I still see people post covid gaslight and told they just have anxiety!

[Colleen Thomas @collyt]

@loscharlos @ImmunoFever @MIT Not surprised. I have pots post covid and my vessels in my fingers look like I am in my eighties not mid forties, didn’t have them like that precovid

[Standing Up to POTS @POTSActivist]

It's okay to grieve the life you pictured before #POTS. That other life deserves to be mourned. It’s how we honor what mattered.

#dysautonomia #motivationalmonday #chronicillness

[iHeartRadio @iHeartRadio]

BREAKING: Liam Payne has died at the age of 31 after reportedly falling from a balcony in Argentina. We are extremely shocked and heartbroken to hear this news. Sending our love to his family, friends and fans around the world. 💔

[TMZ @TMZ]

Former #OneDirection member #LiamPayne has died at 31. #RIP https://t.co/L4oOpVG3ib

[Colleen Thomas @collyt]

@chydorina I totally agree with you. I get frustrated that some health professionals throw their hands up as soon as they see the word long covid. When many of the ailments we have are common post viral and symptoms can be managed (not cured) by meds.