Conquering CHD - Delaware

Creating visibility and empowering all impacted by CHD through awareness, knowledge, community and research. Join us!

[Conquering CHD - Delaware @conqueringchdde]

April 21 marks a special date for #HLHS families. 40 years ago, at
@BostonChildrens Hospital, Dr. William Norwood performed the first successful Fontan operation on a child with hypoplastic left heart syndrome, a heart defect that was uniformly fatal at the time #HLHS #CHD #ACHD

[ACHA @ACHA_Heart]

Did you know that CHD-related factors can affect how people with #CHD develop cognitively, socially, and emotionally? #ACHA offers resources—including a Q&A page and webinars—on neurocognitive issues
in congenital heart disease. #CHDCare4Life
https://t.co/HaYG0nYC04

[Conquering CHD - Delaware @conqueringchdde]

Nice- @SistersHeartSBH is soliciting essays from people with Fontan, Single-Ventricle, or Heart Transplant: https://t.co/tvhnMXeKCs

[Conquering CHD - Delaware @conqueringchdde]

Throwback Thursday one day late: Chapter secretary @pennnursinglib’s kid Lucy, when they were Delaware’s next top cardiac model!

[Jacqueline Sanz, PhD, ABPP-CN @JSanzPhD]

Trying again with a screenshot so folks can see the request - cardiac folks spread the word

[ACHA @ACHA_Heart]

#ACHA is a proud part of the Congenital Heart Initiative—a patient-powered registry for #ACHD. Join tomorrow's #WellnessWednesday webinar to learn about the progress we're making & where we're headed: https://t.co/sBkW3pOVhz. We will post a recording. #CHDCare4Life #ACHACares

[Phoenix Children's @PhxChildrens]

#breakthebias #IWD2022

[Dr. Shubhika Srivastava MBBS @shubhi_srivas]

@Nemours echo and thank-you to Nemours cardiac Center women and to all of my colleagues and peers

[Conquering CHD - Delaware @conqueringchdde]

If you’re a #CHD heart warrior, a heart family, or just a #netDE #Delaware stan, this is the t-shirt you’ve been waiting for: https://t.co/IVIXkmEsvy

[Conquering CHD - Delaware @conqueringchdde]

People with #CHD at higher risk from #COVID19, according to a new @american_heart study: CHD families should be aware of the continuing risk even as the pandemic subsides and consult closely with their care teams about preventive and protective measures- https://t.co/jffRKc5uph

[Conquering CHD - Delaware @conqueringchdde]

We love this!

[Cincinnati Children's Heart Institute @CincyKidsHeart]

@NKasparian, Professor of Pediatrics, founding director of the Heart & Mind Wellbeing Center says, "It’s extraordinary how kind words can lift our spirits. Reach out to a friend & find out how they’re doing. Checking in can help us feel connected & cared for!"
@CincyKidsMedArt

[Umme H. Faisal, MBBS @stethospeaks]

If you're a med student or a doctor, chances are that you've definitely heard of the Tetralogy of Fallot. It is a congenital condition caused by a combination of four heart defects (Image below from Wikipedia). However, this thread is not to teach you about TOF. 🧵 1/?

[Conquering CHD - Delaware @conqueringchdde]

Do you remember when you joined Twitter? I do! #MyTwitterAnniversary

[Tracy Livecchi @TracyLivecchi]

I am thrilled to announce that our completed manuscript, Healing hearts and minds: a holistic approach to coping well with congenital heart disease (#CHD) has just been submitted to @OxUniPress. Can’t wait to celebrate one day with @DrLizaMorton in person!

[Nemours Children's Health @Nemours]

Surgery is not always a cure for CHDs. Many individuals with CHDs require additional operations or medications. #AmericanHeartMonth #AmericanHeartAssociation #CardiacTwitter

[Conquering CHD - Delaware @conqueringchdde]

@_StephRomo @Nemours Great to see how this vital team goes from strength to strength!

[ALPS - heArt sibLings ImPact Study @AlpsHeart]

Interesting read - Barriers and facilitators to discussing parent mental health within child health care: Perspectives of parents raising a child with congenital heart disease
https://t.co/iMUyaOQIec

[Anjali Sadhwani @Asadhwani79]

Excited to share our work on fetal brain development and neurodevelopmental outcomes in CHD. ⁦@CaitlinKRollins⁩ ⁦@vrofeber⁩ https://t.co/R7OcoukBzP

[Conquering CHD - Delaware @conqueringchdde]

Happy to have stopped by @Nemours Cardiac Center yesterday with heart warrior Lacey to drop off @JohnCarneyDE’s and the state senate’s (thanks @SarahEMcBride )proclamations for #CHDAwarenessWeek - along with some snacks and refreshments for our amazing caregivers!

[Dr. Shubhika Srivastava MBBS @shubhi_srivas]

CHD Awareness week- @conqueringchdde @CardiacNeuro @SoodErica @nemours cardiac center #mission #CloseTheCareGa promote access to quality-care & outcomes Center for Cardiovascular Research and Innovations @SoodErica @CarissaBakerSm1 enriching lives of our patients & families

[Conquering CHD - Delaware @conqueringchdde]

Thank you to all off our #CHD clinicians who fully understand that the entire family is the subject of the disease and agent in its healing!

[Angira Patel, MD, MPH @angira_patel]

Important message from Drs. Amy Lay and Kiona Allen ⁦@LurieChildrens⁩ ⁦@LurieHeartCtr⁩ ⁦@PCICS2⁩ #CHD Guest Editorial: Growing up in the CCU: Supporting Families Through the Long Haul – PCICS https://t.co/LLGLqyVERw