Cassie Shafer

Dream big, Work hard; Relax on the beach... CEO @Spondylitis Assoc of America & luv our Spondy community. RTs & endor are my own

[Spondylitis.org @spondylitis]

Could It Be Axial Spondyloarthritis? Inside the A-Tool Screening Survey

The diagnostic delay for spondyloarthritis can be as long as 14 years. But why, and how can we reduce the time?

Rheumatologist Abhijeet Danve, MD, MHS, an Associate Professor of Medicine at Yale University, and developer of the Axial Spondyloarthritis Screening Tool (A-Tool) discusses why diagnostic delays happen, how the A-Tool screening survey was designed to help identify patterns of inflammatory back pain, and how it may support earlier referral to a rheumatologist.

Tune in: https://t.co/Vup37RoAbt

#Diagnosis #screeningtool #inflammatorybackpain #chronicbackpain
#mechanicalbackpain

[Cassie Shafer @cshafercal1]

Never flying through Heathrow again…5th time major baggage issue has occurred. 20,000 bags lost last week!
#BritishAirways #AmericanAirlines #OneWorldEmerald https://t.co/qKCBEMUCTd

[Cassie Shafer @cshafercal1]

@British_Airways do better with customer service for lost luggage. Don’t keep customers in online hell trying to find baggage. Very disappointed with @AmericanAir one world partner @British_Airways
#BritishAirways
#LostBaggage

[Cassie Shafer @cshafercal1]

Spent the morning @IAPA Idaho Assoc of PA’s conference. Great presentation by Dr Patrick Knibbe on “Early Recognition of SpA.”

[Spondylitis.org @spondylitis]

The delay to diagnose remains high for #axpsa patients. How do you accelerate your journey through the healthcare system? More insights from our HealthEd Livestream: Is It Just Back Pain...or Something More?

Watch the recordings now: https://t.co/MIPpGNgMBh

Please also share with someone who may still be looking for answers.

#AnkylosingSpondylitis #Spondyloarthritis #ChronicBackPain #AutoimmuneAwareness #HealthEducation

[Spondylitis.org @spondylitis]

Fatigue hits differently when you live with spondyloarthritis.Fatigue isn’t just being tired — it’s one of the most challenging and misunderstood symptoms of he disease.

In our newest episode of Spondycast, Dr. Susan Murphy introduces the SAA-funded RENEW Study, a groundbreaking research initiative from the University of Michigan focused on fatigue, energy management, and resilience in people living with spondyloarthritis.

If you’re navigating fatigue and wonder what science says about energy management and how to strengthen resilience, this episode is for you.

Listen now: https://t.co/ABwQjfLhYj

#Spondycast #AnkylosingSpondylitis #AxSpA #ChronicIllness #Fatigue #EnergyManagement #Resilience #HealthResearch #PatientEducation

[Spondylitis.org @spondylitis]

SAA’s Livestream “Is it Back Pain…Or Something More?” will begin shortly.
Join us for our first session, "Chronic Back Pain: What You Should Consider," presented by Dr. Charles Odonkor, MD, PhD. at 9:05 am Pacific.

Watch Live on SAA's X, Facebook, Instagram, LinkedIn, and YouTube accounts.

#chronicbackpain #axspa #ankylosingspondylitis #rheumatology #painmanagement

[Spondylitis.org @spondylitis]

Do you know someone still searching for answers about their back pain?

If they're living with persistent back pain — especially if it started before age 45 — and they've also experienced:

• Unexplained eye inflammation (uveitis)
• Psoriasis
• Ongoing fatigue
• Heel pain or tendon pain
• GI issues like Crohn’s disease or ulcerative colitis
• Morning stiffness that improves with movement

It could point to spondyloarthritis, and early diagnosis matters. The right care can reduce disease progression and protect long-term mobility.

Share our upcoming free HealthEd livestream, “Is It Just Back Pain… or Something More?” on February 21, 2026.

Help someone else find the answer: https://t.co/XbadyqJUm7

#axspa #ankylsoingspondylitis #nraxspa #chronicbackpain #IBD #uveitis #colitis

[Spondylitis.org @spondylitis]

Great News! Now you have even more options for Straight Talk on Spondylitis.

Our comprehensive, go-to guide for living with spondylitis is packed with insights, tips, and expert advice on disease management, pain relief, medication tips, diet and exercise, and more.

Now available in eBook, paperback, or as a bundle.

https://t.co/X0S5RsOhjE

[Cassie Shafer @cshafercal1]

Congratulations ⁦@Augurex⁩ for FDA approval. A new great diagnostic tool for physicians trying to diagnosis chronic back pain in patients. We are proud to partner with you!
#ankylosing spondylitis
#Spondylitis
#SAA
#Axial Spondyloarthritis
#Augurex https://t.co/c906IeqmQh

[American College of Rheumatology @ACRheum]

#ACR25 in-person attendees—join us this afternoon for the Opening Session & Awards, 4:00-6:00 PM CT, W375D-E. Then, be sure to make your way to the exciting grand opening of the Networking Lounges from 6:15-7:15 PM CT outside of the Skyline Ballroom! 🎉

[Cassie Shafer @cshafercal1]

Congratulations Dr Deodhar on this great award. Member SAA Medical and Scientific Advisory Board

[American College of Rheumatology @ACRheum]

Congratulations to Atul Deodhar, MD, MRCP, FACP, FACR, recipient of the 2025 Distinguished Clinician Scholar Award! #ACR25

[Spondylitis.org @spondylitis]

Your Voice Matters: SAA Fall Healthcare and Treatment Access Survey. We want to hear from YOU! 🍂🍂
Complete our survey for a chance to win some awesome SAA swag, a FREE Straight Talk book, or an Amazon gift card!
Your experiences are meaningful because they offer valuable insights into your main concerns about access to healthcare, medications, and spondylitis treatment.
Spending just a few minutes on our quick, anonymous survey can make a real difference.
Please take a moment to share your voice and be part of the change: https://t.co/7xJrEmOTvp
#Spondylitis #ankylosingspondylitis #chronicpain #spoonies

[Cassie Shafer @cshafercal1]

Stop Paying Congress During Government Shutdown #SPCDGS

[Spondylitis.org @spondylitis]

Your pain is real!

#ICYMI: Dr. Antonia Repollet, a clinical psychologist at GI Psychology, explains the brain’s role in chronic illness.

https://t.co/I5KlzTNegF

#GutBrainAxis #chronicpain #TraumaInformed #CBT #mindbody #ankylosingspondylitis #PainAwarenessMonth

[Spondylitis.org @spondylitis]

August is National Make a Will Month. Help SAA Help Patients in the Future with a Planned Gift Today.

We all want to find a cure. Whatever your motivation, you will find there are many ways to leave your legacy at SAA. Learn more on our website and take advantage of our planning tools. There are many ways to create your legacy plan. Resources like Freewill are a quick way to get started in the process. Additionally, there is more information about the Quest Legacy Society on our website.

Thank you for helping to ensure SAA is here for generations to come.

Contact Sean Ewert at [email protected] or click on the link to learn more.
https://t.co/tMfrnfLQus

#spondylitis #plannedgiving #support #legacy

[Spondylitis.org @spondylitis]

How Common Is Psoriatic Arthritis in the US Population? Dr. Philip Mease shares these stats.

August is Psoriasis Action Month. Learn More about Psoriatic Arthritis:

https://t.co/SKmojIRbGf

#psoriasis #psoriaticarthritis #jointpain #inflammation #PsA

[Cassie Shafer @cshafercal1]

Land of the free because of the brave!

[Gabriele Corno @Gabriele_Corno]

The fawn is saved, the next day the little one shows up again and from that moment on they become best friends