dadhasaheadache

Living with a loved one in chronic pain. Daily life, fun times & not so fun times, hobbies, interests, other family activities, encouragement & inspiration.

[dadhasaheadache @dadhasaheadache]

Happy New year! 🎉🎉Wishing you all a happy/healthy 2021!
Instead of resolutions I choose a focus word for the year. This year will be #caring. Caring can take on many different forms. I want to focus on all forms this year. ❤️
Do you make resolutions or choose a focus word?

[dadhasaheadache @dadhasaheadache]

They found a leak. Surgery went well he’s in recovery now. 🙏🏻
#csfleak
#cedarssinai

[dadhasaheadache @dadhasaheadache]

And for round two. Off for his first procedure/test today.
#cedarssinai
#csfleak

[dadhasaheadache @dadhasaheadache]

In recovery from his first round of procedures/test. He’s doing well. More procedures/tests in the morning followed right after by surgery. shouod he released in another hour or so. Very long day.
#cedarssinai
#csfleak

[dadhasaheadache @dadhasaheadache]

And here we go. Waiting to go in for the first procedure.
#cedarssinai
#csfleak

[dadhasaheadache @dadhasaheadache]

Have a great & safe July 4th!
#July4th #IndependenceDay

[dadhasaheadache @dadhasaheadache]

Since we are all home decided to use our China for a meal. It should get used sometimes & not just sit there being of no use. The kids thought it was great.
#coronacooking

[dadhasaheadache @dadhasaheadache]

The next Migraine World Summit is right around the corner. Get signed up to get free access. There are so many great speakers & so much information to glean from the interviews. I have learned new things every year!
https://t.co/LAT9KoOclX

[dadhasaheadache @dadhasaheadache]

Wishing everyone a very Merry Christmas!

[dadhasaheadache @dadhasaheadache]

Getting one last procedure in before the end of the year. The spinal fluid leak came back again. Praying this is the final patching procedure & that it will hold. Trying to get back to one headache 24/7 headache instead of two.
#csfleak #leakerslife #utsouthwestern
#chroniclife

[dadhasaheadache @dadhasaheadache]

Happy Thanksgiving! Thankful to get to spend time with family today. Wonderful food & fellowship.
What are you thankful for? https://t.co/X3laXvOGPO

[dadhasaheadache @dadhasaheadache]

Day two of our trip to #UTSouthwestern. yesterday finding leaks. Today patching the leaks. This place is efficient! Following Duke University protocol for spinal fluid leaks! Praying for him to get some relief through this!
#leakerslife
#csfleaks #chronicmigraine

[dadhasaheadache @dadhasaheadache]

We have a new glimmer of hope for the future! ❤️
Saw a specialist this morning. It was a good visit. She has some new things to try that we’ve not tried before. Will be addressing the spinal fluid leaks more as… https://t.co/8ITBTmnLDQ

[dadhasaheadache @dadhasaheadache]

Beautiful sunrise on the East coast this morning. My first sunrise on the beach ever.
#beautifulworld #sunrise #eastcoast #floridasunrise https://t.co/CWYquLiWpi

[dadhasaheadache @dadhasaheadache]

Happy July 4th! Hoping you all got to spend time with friends or family.

Everyone celebrates in their own way, making accommodations as needed.
For us Earplugs, an indoor space to watch, a way to get out of the… https://t.co/39zlmtQTB3

[dadhasaheadache @dadhasaheadache]

@MiladyMigraine There is the spinal fluid leak foundation. They have good info. I googled them.

[dadhasaheadache @dadhasaheadache]

It national migraine & headache awareness month. #Migraine is 1 of the leading disabling diseases. Millions suffer from Migraines. They are more than just a headache.

Specifically this is #LeakWeek. Focusing on spinal fluid leaks this week.
#nationalmigraineswareness

[dadhasaheadache @dadhasaheadache]

It’s taken 3-4 years but We got an appt w/a specialist our neuro sent us too.
A friend mentioned my husband during her visit w/this doc. The doc was intrigued & worked us in.
Not a coincidence. Everything in God’s timing.
#chronicmigraine #chronicpain #eds #csfleak #leakweek

[dadhasaheadache @dadhasaheadache]

Another day, another thing to try. We’re not giving up! Now he’s trying the #Gammacore device. A vagus nerve stimulator for #migraine & #clusterheadaches.
It’s a not easy to keep #positive in the face of so much #pain & so many failed meds, devices & therapies, but we are trying