Top Tweets for #LeakWeek
Ahifuga, entre las asociaciones internacionales referentes en Hipotensión Intracraneal y Fugas de Líquido Cefalorraquídeo
Ha participado, por primera vez, en la Spinal CSF Leak Awareness Week, conocida como #Leakweek
https://t.co/DVB4CsHDxM
For the final day of #leakweek, our collaborative slides with @SpinalCSFCanada, @SpinalCSFLeakAu, @csfleakuk & AHIFUGA focused on research.
To start off: recent studies reiterate that the condition significantly affects quality of life across multiple measures.
So grateful for all the efforts that went into #LeakWeek. A big thank you to these charities and the volunteers 🥰🫂:
💜@spinalCSFleak
💙@csfleakuk
💜@SpinalCSFCanada
It's the end of #leakweek & duradash®!
We're thrilled to have met our goal of raising $20,000 to further our mission and fund research, education, and awareness of spinal CSF leak.
We also had 15 landmark light-ups in the US, & our leakweek slides were shared far & wide!
It's the end of #leakweek & duradash®!
We're thrilled to have met our goal of raising $20,000 to further our mission and fund research, education, and awareness of spinal CSF leak.
We also had 15 landmark light-ups in the US, & our leakweek slides were shared far & wide!
This #leakweek, landmarks in the US are lighting up purple for spinal CSF leak awareness! Most of our landmark light ups are shining purple this evening in honor of patients living with spinal CSF leak, with a few later this week. Full list here: https://t.co/DOI3QdWdqx
⬇️ Save the date 🗓 1st - 7th June
@spinalCSFleak 🤝🏻 @csfleakuk 🤝🏻 @SpinalCSFCanada
#LeakWeek #CSFleak #spinalCSFleak #LeakWeek2025
🗓️Save the date! Leak Week 2025 happening 1st to 7th June 2025.
#leakweek2025 #leakweek #csfleak #csfleakassociation
🗓️Save the date! Leak Week 2025 happening 1st to 7th June 2025.
#leakweek2025 #leakweek #csfleak #csfleakassociation
@Bumpy_Bones @prettyfaltig @karensbloodcunt oder sie hat sich selbst suspended wegen wettschulden... #leakweek
To round out this year’s #leakweek, we are ending on a few take-aways from the slides we’ve posted prior. Thank you to all who have shared our slides to help raise awareness & fundraised with us for duradash®.
Thank you also to @csfleakuk & @spinalCSFleak for the collaboration!
My #CSFLeak was the hardest diagnosis and treatment I’ve been through, but I made it out the other side and you can too.
#HoldOnToHope #LeakWeek #SpinalCSFLeak #MigraineAndHeadacheAwarenessMonth #MHAM #NotAlone #Community #Educate #Advocate #AccessToCare #EndStigma
Tonight Kilkenny Castle will light up purple to raise awareness about Spinal CSF leak.
For more information: https://t.co/899Xml0Rgb
#LeakWeek2024 #LeakWeek #SpinalCSFLeakWeek2024 #SpinalCSFLeakAwarenessWeek
Next up for #leakweek is treatment, which may involve conservative measures (such as bedrest), EBPs, transvenous embolizations, and/or surgery.
Today slides cover the types of treatments, aftercare, & also “rebound” pain, RIH, which can occur following successful repair. (1/3)
People affected by spinal CSF leak share what they most want doctors to know in this moving compilation originally presented at the Bridging the Gap Conference on November 11, 2023:
https://t.co/owyWQkCPez
#leakweek
Wear blue, too! Wearing my blue CSF leak wristband to raise awareness of spinal CSF leak & SIH 💙 With usual view of bedroom ceiling 😅
💧@csfleakuk @rarediseaseuk @brainspine @NeuroAlliance #leakweek #leakweek2024 #SpinalCSFLeakAwarenessWeek #spinalCSFleak #CSFleak #PDPH
Day 4 of #leakweek is about the challenges of diagnosis & diagnostic testing. We share the diagnosis tools here in detail, & note normal imaging doesn’t rule out a spinal CSF leak.
Each prompt, correct diagnosis clarifies the path to treatment & the chance of a durable cure.
A sincere thank you to Monique, who secured this proclamation from @GovWhitmer’s office that confirms June 3-8, 2024 Spinal CSF Leak Awareness Week in Michigan. We appreciate the added visibility and proclamation for this underdiagnosed, debilitating condition. #leakweek
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