@BBCNews If you'd like to know more about our story, about my '1 in a Billion' autoimmune disease and about just how close I came to dying, then please visit our JustGiving page
https://t.co/Reu5rwjjoI
My wife Joanne Fontana is raising Β£2500 to Help Us Stay Afloat During Our Life Changing Crisis. Check out their @JustGiving page and please donate if you can. Thank you! #JustGiving https://t.co/qRTz0ndwWD
@MartiniGuyYT I could really do with financial freedom, as being in a Yorkshire hospital for almost 2 months and counting is financially crippling me π
@johnnyxbrown At 49 I've literally just been diagnosed with a rare autoimmune disease called Pauci-Immune Pulmonary Capillaritis in my lungs. Still in hospital for it and in the third tweet, most things on that list could easily have contributed to it.
@APompliano I am using ChatGPT to help me with an incredibly rare illness (Pauci-Immune Pulmonary Capillaritis) that took 3 months to diagnose. And it's been spot on with advice and questions to ask the Dr's, especially with side effects from the meds. It's also just been reassuring to me.
@frankbrunoboxer Get well soon Frank π
I've had a similar journey to you recently. For 3 months I was coughing up blood and becoming more and more breathless, but Dr's couldn't pinpoint why. Eventually became hospitalised and they have now narrowed it down to Pauci-Immune Pulmonary Capillaritis.
@j_k_r_lfc@smtm_lfc1975 I'm also having issues with my foot, because of blood clots in both legs. First time I've been out of bed for almost 2 weeks today because of it!
Ironically I went into hospital with an extremely rare lung disease called Pauci-Immune Pulmonary Capillaritis and now this π
@ClaudetteGGibs1 Kind of the sort of thing North Korea and Russia would do π€
I'm sure these stories will do wonders for the U.S.A tourist economy...
@SarahChampion I've been bedridden in hospital for 2 weeks now, I can only tell there's daylight from my window as I'm underneath a canopy. Hopefully in the next couple of weeks I can get to feel Spring like you guys all are, as it was still winter like when I went into hospital.
@BeingBoycie I have a Bronchoscopy due on Thursday and the blurb in the leaflet tells me that I have a 1 in 2500 chance of dying from it π±
I'm not looking forward to that!
@northernassist Be great getting rid of the Class 150 old bangers that spewed burnt diesel fumes in the carriages even during winter, where windows needed to be open because of all the heat soak from the engines. Dread to think what it's done to my lungs!
Anyone else having lung issues?
@NRManc@swtrains_watch@SW_Help I agree. I hadn't realised until recently that the Gov ran Northern. It is horrid! 2 car trains running on routes going through 4 cities in rush hour! That's if they turn up or haven't broken down being 40 year old carriages...