Dave Smith

Biker, skier, married 40 years father of 2 great boys, from Colorado, spending time in Germany where my wife works, now a pals in the fight for all pals lives.

[Juliet @Julia70256353]

I have the right to live! don't let me die without trying NUROWN. WE DO NOT HAVE TIME. NUROWN YA ACCELERATED ASSESSMENT
#NurownWorld

@Cylebo
@david_setboun
@ralph_kern
@EMA_News
@FDACommissioner
@POTUS
@EU_Commission @Europarl_EN
@Groote
@EU_Health
@SKyriakidesEU

[Juliet @Julia70256353]

#ALS is prevalent among #Veterans - the @US_FDA is holding #NurOwn after passing phase3 trials- WHY? SAVE OUR VETERANS! They deserve to LIVE. ALS is treatable w/ NurOwn, its 100% FATAL w/o NurOwn. Haven't they paid a big enough price already? INHUMANE! VETS deserve better!

[Brian Wallach @bsw5020]

Odd side effect of having ALS/a currently terminal illness: I went from being a 35 year old blissfully unaware of his health care plan to being a 40 year old viscerally aware of every plan nuance and just how important the ACA’s protections are for tens of millions.

[Dave Smith @dcsgermany]

NurOwn Trial Design for Rapidly Progressing ALS Detailed by BrainStorm https://t.co/rnTWb5QTIB

[GypseaSoul @GypseaSoul1982]

Guess she’s never known anyone with ALS!

[Greg Heydet Sr @GregHeydetSr]

@realDonaldTrump @POTUS @VP @als_now @FLOTUS Trump says “he had to get Covid for the people” and he got treatment.ALS patients didn’t ask for ALS, they were just unlucky to get it. So why don’t you allow and sign an executive order for treatments? NurOwn & Tregs. Show us you care

[Shah Minokadeh, M.D. @MinoShah]

Donna died of #ALS denied lifesaving #Nurown

Immeasurable suffering, devastation & death because of years of Dr. Peter Marks & his @FDACBER inaction? #FDAfailedALS

@stevefda @secazar @hhs_ash @SenatorBraun @jefffortenberry @DrWoodcockFDA @NIHDirector
https://t.co/moXxtDfwRL

[Shah Minokadeh, M.D. @MinoShah]

The #FDA has failed the #ALS community.
Immeasurable suffering, tens of 1000s dead, countless families devastated. #Nurown

No urgency for 100% fatal #ALS

@stevefda @secazar @hhs_ash @fdacber @SenatorBraun @jefffortenberry @DrWoodcockFDA @AnandShahFDA @DrAbernethyFDA

[Dave Smith @dcsgermany]

https://t.co/uMgYYHKvRd

[Brian Wallach @bsw5020]

2 ALS patients have more than 75k followers—they won a Congressional Gold Medal (@SteveGleason) and were named to Times’ 100 list (@AdyBarkan).

Me, I’m a random father of 2 trying to end ALS. So I have a favor to ask—can you help me become # 3 and help us win this fight?

[Active Against ALS @ActiveALS]

It’s Rivalry Ride Day! Sadly, No football — and riders may be fewer this year due to COVID-19, but our enthusiasm and determination to defeat ALS is as strong as ever...
https://t.co/ijzEhwE9Ju

[Brian Wallach @bsw5020]

Dear Congress,

This is me👇Three years into my ALS fight. Against all odds I’m still standing. But ALS is relentless. So I need you to be as well. Sign on to and support H.R. 7071, ACT for ALS. It’s time to finally do right by those with ALS. It’s time to #ACTforALS.

-Brian

[Brian Wallach @bsw5020]

I hope that when I breathe my last breath, whenever that may be, that someone, somewhere will write that through his fight with ALS he inspired us to dream of what could be and then to take action to make that better, brighter world real for all.

[Dave Smith @dcsgermany]

I want one of those tattoos also. I will carry the cooler with lunch for you three guys

[Brian Wallach @bsw5020]

I had a dream last night that I was walking down the beach next to @SteveGleason and @AdyBarkan. Just three guys walking. I looked down at our arms and on our left forearm we each had tattooed the words, “We did it. ALS, You Gone.”

Good night moon.

[erin servillo @erinservillo]

Add my husband to the 1000s dead and me to the devastated. #NurOwn now #nevergiveup @alsadvocacy @minosean @stevefda do something now

[Deborah Midgley @DeborahMidgley1]

@realDonaldTrump @POTUS @SecAzar @SteveFDA - Why do you continue to ignore ALS which is 100% FATAL? Do for ALS what you’re doing for Covid!