@KhanSaba1278 Well...wow...this is an absolute 1st for me and such a detailed account of 2 hrs on a Saturday. Here you'd be in trouble for taking photos where children are involved, not even tried to blur faces. Stunned at this and feel I've wasted 2hrs reading it, taking it and and replying.
@nicolesylvie I know the feeling! Its quite debilitating n sad we dont know ourselves anymore,others around seem to think they have answers n advice...but they dont understand even ifit comes from a good place. I would definitely say that these are The Times that you find your true friends.
@HemptressRaven I want to make it clear that I wouldn't advise everybody to Suddenly do this without probably asking neuro.However, I went through all those angles. And still was not heard, hence why I myself took the choice to take meds down very slowly Still hav a way togo, but im not rushing
@HemptressRaven I to am Refractory and neurologist is a nightmare as he's determined for me to stay on med, even though ive had all and unable to have any form of surgery. So I took it into my own hand and even though its taken 2yrs so far im almost 1/2 of one of my meds and feelin the benefits.
@epilepsytime@SeanPreneur It's also hard to get " Normal" type of life, I'd love to work to have more more than living on disability benefits, but they read Epilepsy ( including a CHARITY SHOP....yes I know) they stick their nose in the air and step bk as if they're about to catch it!!
@susannareid100@susannareid100@edballs good morning. I'll make this quick hoping my point gets out there, I heard ur discussion on getting more ppl off benefits & into work. I would love to work I have been refused jobs incl a charity shop they read I've epileptic! & its a No
@GMB@susannareid100 I've received a text message from DWP regarding my review being due (which isn't due) it's asking me to call a number if my paperwork doesn't arrive in 2 wks, I'm wondering if it is a scam, thought ppl needed to know. Txt looks real, but most scams do. TY